Concerned mum of 6yr old boy

by marjory
(glasgow scotland)

My boy is always very loving from a young age. At nursery he would not draw paint or hold a pencil,cut paper. They put it down because he hadn't decided what hand he wanted to use.

Primary one~not too bad very out spoken and friendly,too friendly,wants to kiss and cuddle everyone. Always had problems cutting nails and hair, especially toe nails. Found getting ready for P.E. at school very difficult. Buttons zips shoes all difficult to do. Does not like school shirt and tie. Comes out from school very untidy, shirt hanging out jumper in bag, trousers on back to front.Shoes on wrong feet. Still smiling and very pleased to see me.

Occupational therapist was up at school to report on another classmate when she noticed my boy, asked teacher to ask me for referral.Thank you for small mercies. Within a month he has been diagnosed and now being seen regularly. He has Propriaception it affects his arms shoulders and stomach muscles. Over sensitive hearing, puts hands over ears alot with loud noise. Difficulty using cuttlery and pencils.

We are taking one day at a time at the moment, dont know what else we can do. Just thankful that is all that is wrong. I have
learned alot from this web site thank you. The o.t. did not go into great details, now I understand why, so much to take in. My first meeting since diagnosis is this week. I feel well prepared now, so thank you again.

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Jan 26, 2012
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finally got a diagnosis
by: marjory

Hi its marjory from glasgow and i was reading over all my comments from 2009 and cant believe its been so long. We have another diagnosis of aspergers syndrome and it has all came together, as you will all know this is under the autistic umberella. I am still fighting for help, my son is at main stream school who are not very hot on this subject. Learn as much as possible and teach the teachers. Thats my advice.

My son is still a lovey dovey boy, so kind and gentle. So thats all good. One day at a time.

Jul 14, 2011
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aspergers and autistic spectrum disorder
by: marjory Glasgow

hi again, more info for you. IRLEN glasses as in spectacles,find out about this,ask your optician. Also johansen ias sound therapy. Go on look.ask Speech therapist. Both amazing. Good luck.

Jul 11, 2011
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We now have a diagnosis
by: marjory glasgow scotland

Hi its Marjory, I am Happy to say I was not going mad, I have fought for everything. Last Nov 2010 we where seen by a paediatrician and given a 99.9% diagnosis of autistic specrum disorder / aspergers syndrome. This sounds horrific but i can assure you it could be alot worse. My boy also has reduced proprioception/ this affects balance ie/cant ride a two wheeler bike-can live without that. If i can help anyone i will. My best advice i have received was from autistic spec dis parents advice groups. Be brave lift up the phone. You are not alone.

May 19, 2010
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reply to mum on child
by: Marjory Concerned mum

I am sorry to say i am learning alot on my own.You have to keep asking,phoning,arrange meetings, different dept and try & get them to all work together. I was asking about my sons over sensitive hearing & advised to see a speech therapist. I thought this was strange as his speech is perfect, too perfect sometimes. Went today and it was eyeopening.The speech therapist was brilliant and explained how they can help my son to calm and process noise in a controlled environment.Not sure how this works in a class room. Something else new to learn i guess.

He has also seen a educational psychologist, she retired a week later so waiting for a replacement.
I got in touch with my sons health visitor excellent again, and officially they deal with children until 5yrs. She made an exception. We are on list to see school health,ie-support for school with social issues&play. My advice at the moment is keep a file and keep phoning and asking questions, I have realised no one else will do this only parents. Good luck. If i can help feel free. If you have advice for me ;all appreciated.

Feb 26, 2010
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reply to 19/1/10
by: Anonymous

sorry it has taken so long to reply to you. Since i wrote about my son lots have happened. I witnesses with my own eyes how excercises works for my child. the o.t. asked him to write his name on a line. it was all up and down, while sitting he fidgeted. some excercises later she asked him again to write his name on a straight line. PERFECT. SAT still no movement. He now has ten mints exercises at school in morn with classroom asst. The teacher notices big improvement, he has a screw like device on the end of his pen to move when he is sitting. Also a water cushion on his chair that stops the movement at table in school. I also do exercise at night and i too see a big difference.He has not been cured i dont think he ever will be, we have to accept this . Good luck to you all and be patient. x

Jan 19, 2010
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same here
by: Stockport mum

I also have a seven year old boy, has many of the difficulties you have mentioned. We have seen an OT and they have said because he is not struggling to much they have suggested that school should pick up the Slack and help him more. He struggles with writing and dressing himself, strong smells , tastes ,texture, rigid routines. Well behaved and very loving in school, teacher says he always polite and good, just a nightmare with other siblings when he comes home from school. Doesn't like the dark, very clumsy and struggles with spacial awareness, stamps his feet when he walks.

Can also be very emotional, dislikes loud noises, shouting, hoover, banging ,motorbikes, sirens. Any suggestions as to getting more help, from school and external agencies. We live in Cheshire England. I COMPLETELY SYMPATHISE WITH YOU ALL OUT THERE, FROM ONE STRESSED MUM TO ANOTHER!!!!!!!

Nov 23, 2009
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reply to question above
by: Anonymous

My son was born 2 days late, at 8lbs, so no he was not born early. He was born very quick and I believe the term is breach. His head was facing wrong way. I am rhesus negative he is positive,that is blood groups, so i had anti d injections when pregnant. Hope this helps you.
mum
glasgow
scotland

Nov 16, 2009
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I too have a 6 year old boy
by: Anonymous

I know too how you feel. My son hasn't been diagnosed with this yet!! He is very affectionate, shoes go on the wrong feet, shirt and shorts goes on backwards. Hates getting his hair cut etc. He can not regulate his body - by this I mean he will put flannel pj's on in summer (we live in Sunny Queensland) or he will wear a single and undies to bed in the middle of winter. He doesn't know how to pull up his blanket at night when he is cold. If I put a jumper on him in the morning, he will leave it on all day - even when it's 30 degrees. He is 6 years old and we have been going to a speech therapist and OT since he was 4. We knew something was wrong because he just couldn't get his colours right, he still has trouble with pink and purple. Finally, his OT suggested that he may be suffering from SPD. I have just found this website and you're letter was the first one I read. Just makes more and more sense.

Nov 16, 2009
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same
by: Anonymous

Your son sounds just like my almost 8yr old daughter. We are also new to this diagnosis. We are also doing OT.
Just wondering if your child was born prematurely? My daughter was born at 28wks and weighed 1lbs 10oz.
As hard as this is, I can say what keeps me going is that she is a very happy child and so far her differences don't seem to bother her.

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