Finally Diagnosed/Still Concerned
Hi, I haven't posted anything in awhile. My son was finally evaluated in October 2008. He was diagnosed with 47xyy syndrome, sensory processing disorder, unusual sensitivities, and an unusual history of pica. We saw a Geneticist this week, to get more information about this syndrome which isn't much.
Some websites describe this syndrome as if it is no big deal. Others talked about immaturity, delayed speech, delayed language skills, behavior problems, weakness, poor fine motor coordination, developmental delays, and learning disabilities. There is also information saying that at one time 47xyy syndrome was linked to aggression, and criminal behavior. Even though the geneticist reassured me that studies have found that not to be true, the information is still out there.
I'm still struggling with the school district to test my son. He is in Independent Study through the school district. I was told that for them to test him, he had to be enrolled in a regular class (I recently found out that is not true), which I was totally against because he had not been tested yet.
The Geneticist wants to do more blood work to look deeper in his chromosomes, to see if there might be anything else. During his evaluation, I mentioned him possibly being autistic, or having an autism spectrum disorder. Because he interacted well with the doctor, he did not meet the criteria for an autism spectrum disorder.
When I take my son out in public, he cries when anyone talks or looks at him. Sometimes he will try and hold a conversation but the more questions they asks the more frustrated he becomes. Being a single mother (who is dealing with Panic Attacks/Agoraphobia and possibly SPD, I'm starting to feel overwhelmed with everything.