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I really believe I have this, but no one believes me.

by Sierra
(Ohio)

About half a year ago, my mom and aunt were talking about my cousin, because the doctor was talking about this kind of disorder, and my aunt showed my mom this website and realized me and my cousin both had a lot of the same, and different symptoms of this.

I looked into it myself and realized I had many more then what they could of ever thought, I have at least 59 of them. (Every thing listed- not just one headline.)

But yet, my mom, and my Grandparents don't believe me when I tell them about it, I'm starting to think they think I'm lying. (Really badly on a 'memory' problem. I have one, very badly, because I can't remember many things that happen five minutes from now.) And I've ran out of ways to prove it to them, and they doctor told my aunt that not many doctors believe in this- so they won't take me to one to see if I have it or not.

Anyone have some story similar to this?
Or, found a way to prove it to someone in your family?

I've tried everything a thirteen year old girl could think of!




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I really believe I have this, but no one believes me.

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Mar 21, 2012
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going true the same
by: lil confused

trust me i know how hard it is. i am going true the exactly the same thing only way way worse. i am 15 and began suspecting possible adhd in late 14s. i never told my parents about it because i knew this would happen but when i finally gathered the courage, all they did was say that i am just using it as an excuse to explain my behavior and am plain lazy. my mum even called it a 'disease' and said that i am faking symptoms because i want to get diagnosed. my dad rang the school and they put me down even more by saying the exact same: i am using this as an excuse. and on top of that the matter got even worse.

i am about to get kicked out of my music school because they are unsatisfied with me (forgetting books, being late or missing lessons, being rude to teachers, blah) AND my parents have been called into my regular school because of my behavior and my constant forgetfulness and distractibility. and the funny thing is ? everyone is criticising me about this, my parents said that i behave like a rebelious boy! my teachers are really unhappy with me, my grades are down so much and i have a state exam at the end of this year, as for my friends ?? yeah i dont have any. well i mean i have 1 or 2, if i can even call them that because all they do is put me down.

i understand how you must feel and how frustrating it can be, when everyone around you is criticising you but nobody sees the big picture. keep on pushing, keep bugging them about it. somebody will have to help you, do not loose hope, even when it gets really tough. trust me, there are people out there going true much worse, so do not leave this, deal as quickly as you can. visit online support groups... talk to someone, and it will make you feel better. oh and SORRY i know this is very long

Mar 21, 2012
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going true the same
by: person.

hey there, i am going true exactly the same thing...i think i might have adhd but absolutely nobody is listening. both my parents said i am using it as an excuse to get away with what i do. my mum even called it a dicease and said i am faking symptoms just so i get diagnosed. my dad rang the school, and talked to them but all of them said the same thing : i am trying to use it as an excuse. it is getting worse and worse every day. my parents were called into the school recently because of my bad behavior and forgetting books and stuff, and the teachers are going really mad at me. and of coarse i dont really have that many friends to share this with. i wish you the very best of luck, hang in there. i am trying the best i can but nobody is listening, not my so called friends, not my parents, not the school all im left with is hope. what you should do is keep on pushing your parents and doctors to help you. keep asking untill they will help you. that is what i am doing at the moment. if you leave it too long it can become a really big issue, in my case it already has, best of luck :)

Jun 01, 2011
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book i read
by: Anonymous

"Disconnected KidsDisability Books)" by Dr. Melillo is a good book that allows you to test and begin treating yourself at home. What he describes, Functional Disconnection Syndrome, sounds very similar to SPD. He believes it is the cause of ADHD, Autism, Asperger's, dyslexia, and more. Some parents claim their children have made great improvements and some completely recover from Autism and Autism spectrum disorders.

Apr 03, 2011
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hang in there
by: Anonymous

Hi. I am 34 and just going thru all the evaluations with my 5 year old son. some days it is like they are talking about me. sometimes i even get jealous of the assistance he will be getting. my mom (a nurse) just thought I was a pain about things. she had larger issues with one of my siblings that required more attention. Also no one talked about or thought about these things then without being labeled in a very negative fashion.

My feeling about what you wrote is that yes, you likely do have alot of the symptoms, but chances are you are able to manage them - even tho i am sure it is difficult for you - better than your cousin and that is why they aren't taking it seriously. If you are able to function even somewhat normally, people tend to not pay as much attention. That is my thought. Definitely talk to a counselor at your school. There are teams of professionals there that may be able to help you communicate your concerns with your parents and possibly even do an evaluation. Schools cant typically make a diagnosis tho.
Good luck!!!

Mar 14, 2011
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I've been there!
by: s0ph1st

I had the same problem through much of my younger life. My father, who made the most noise (my biggest issue), was the last one to believe it was real. He assumed I was just hyper-controlling or very obsessive, not actually pained by tap-tap-tapping his silverware at dinner, trying to chomp chips during a conversation, etc. It got to the point where I just went to boarding school ("just" went -- it was a battle!) to avoid it, but I still had to come home to it.

Eventually, it got to a really bad point of trying to avoid this. It ended up becoming more and more visible how much these things affected me, until eventually no one could really deny that SOMETHING bigger was going on. It also helped a lot that my mother (who has some slight symptoms as well) sat down and talked to him about it all.

It sucks right now, I'm sure, but perseverance and honesty can go a long way, especially with the ones that matter most. I wish there were some way to better contact you -- even having someone to empathize (and complain to) helps a lot.
Keep your chin up -- you'll be ok!

Mar 09, 2011
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Hi
by: Anonymous

I too had a lot of symptoms starting when I was about 11. I kept it hidden as no one knew about this disorder and I didn't know what was wrong with me. I too was told by my parents to stop worrying.. I'm not sure about your state but where I live you can get free counseling through the government and you may be able to access this. However if your family is in denial maybe talk to the school counselor? Yes as teens we go through a lot of hormonal changes and sometimes we read things and may believe that we have some symptoms about a disorder we read about; but in my case I am an adult now and because I was not helped at a young age I continue to have difficulty with the disorder If you have difficulty getting your point across you also might want to put it in words and give to your family. Or start a journal to keep track of your symptoms.
Hang in there.

Mar 09, 2011
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Comment for No One Believes Me
by: Anonymous

Dear 13 year Old
Dont trouble trouble till trouble troubles you. The more you research the more you will find that everything fits your persona. I believe that if each one of us is evaluated, some shrink may find something wrong with each of us at some level.
My advise to you would be, enjoy life like a thirteen year old should. Leave the problems to mums and aunts and doctors.
I do believe you may have lapses of memory. If you do have a serious problem it will eventually begin to show and affect you.
On the other hand if the problem is there, its not that your mum does not believe you, she has a hard time absorbing it and may be in denial.Do you take multivitamins and eat wholesome food.

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