It is not just Nathan

by Lea Ann Treloar
(Hawkeye,Iowa)

Since Nathan, who is now 11 was 1 year old we have had problems with the way he ate. He stopped drinking milk at a year. He started to eat food from the table like mashed potatoes, hamburger, for a very short time. All he would drink after not drinking milk was frozen concentrated juices. This in turn led to dental problems. He had to have caps on the majority of his teeth because of enamel decay.


By the time he was two we were both my husband an I at our wits end,and felt like bad parents. Life goes on, you learn to cope, get into the daily rut of just living and surving day to day. We tried bribing, rewarding, threatening; nothing seemed to work. You could offer him anything in the world and he thought about it and would rather not try anything different. He has tried new things like grapes, carrots,and bread. He would put the grape in his mouth and try to not chew it, of course this was not acceptable and was told he had to chew it. He would gag and and almost vomit every time, sometimes he did vomit!

He is also sensitive to smells when I am cooking the rest of the family's dinner and runs around the house with his shirt over his nose, or goes upstairs or outside.

I forgot to tell you his main diet and I mean this is all he will eat period! He used to eat processed american cheese slices. He would take four slices and divide each slice in fourths, stack them up like a tower and eat them. He no longer eats cheese. His main diet consists of baked frozen fries, the fast food fries by Ore-Ida. He wood love it if I would deep fry them, but I have told him that being he only eats fries that they can't be deep fried because it is not healthy. He still drinks frozen Welch's cherry juice, but that too has diminished intake. He has to carry his lunch and it consists of dry cereal, corn chips and water. That is another thing he will eat is any kind of chip just about. Also dry cereal, though he does not like it much, and various crackers and popcorn. His grandma has helped him and tries all the time to get him to try new things and has been successful with pancakes. And if I try the same exact everything in making him pancakes at our house he will not eat them.

If I gave him a choice to eat or starve it would definitely be to starve! I do make him take multi-vitamins,they have to be sour soft chewable. He loves extremely sour things. He will drink real lemon juice concentrate right out of the bottle if you let him.

He is remarkably healthy, he rarely gets cold or flu. Yet, his older sister gets colds a couple times a year. One time and this is the only time he had a ear infection from swimming he would not take Tylenol to reduce the fever or antibiotics by mouth and so we went to the doctor and he had a shot in his rump and was satisfied with that. I have even mentioned gastrostomy to him as a remedy to his eating problem, and the most worry he had about that was the reaction from his peers. Not the surgery itself. Of course I was just trying to scare him.

After reading all the articles I realize that is not the way to deal with this problem. I think he gets teased a lot at school. He did better in his grades when he was younger, now he feels like school is a burden and has trouble completing homework.

He is the best reader for his age,it is amazing his vocabulary, and how he speaks... as an 11 year old. He has a lot of trouble with math which is my poorist subject also. He doesn't listen well or just is ignoring us. He has to have the last word or finds excuses for everything. He has no muscle tone and is weak. His energy level is poor yet in the summer time he will jump on the trampoline for hours. He also loves the water and would stay at the pool all day. He is not under weight and is still on the growth chart, though it is barely on the chart. We have taken him to our family doctor twice about this matter. The first time he said don't worry he will grow out of it.

The next time we wanted to see a specialist and went to Iowa City hospitals and clinics, and were hopeful only to be referred to a psychologist and right away she suggested Prozac of all things. Needless to say I was very disappointed in the medical professionals and we have not been back since. I have been at my wits end for a long time and sometimes I feel I am going over the deep end. I think Nathan feels the same way at times, every so often he will mention something to the sort of "Why was I ever born, or sometimes, "I wish I were dead!" This is so heart breaking.

Please help us find someone in Iowa; our funds are limited, and from what I understand insurance is not picking up the tab. I am hopeful now that there are others, but it is still so depressing that having a normal life seems nearly impossible!

It is wonderful that this site has been made available for the parents and the children and adults that suffer with these disorders. Keep up the wonderful work you are doing, or I am afraid we will all suffer from this dreaded and misunderstood disorder!

Sincerely,
Lea Ann Treloar

Comments for It is not just Nathan

Average Rating starstarstarstarstar

Click here to add your own comments

Dec 23, 2010
Rating
starstarstarstarstar
Im a little differrent..
by: Anonymous

Im 10 years old. And i might be diagnosed with SPD. Although, Im a lot different. Im okay with food and smells. The thing that i dont like is Textures and Touch..

I cant wear JEANS or 'rough' Clothing. It has to be extra soft or something. I wear leggings because i dont like trousers.. I have to wear softened tops. My mom puts extra softener in and tumble drys them.

Everyone is different in someway, SPD or not. My different is Touch. Im similar to some other people too, Which i read on this sight. This sight is probably the best for information and real storys about SPD because other people with SPD have wrote stuff on here. I visit this site alot too..

I am NOT diagnosed with SPD yet.. But think i have got it and ive been to the doctors about 3 times too...

Dec 17, 2008
Rating
starstarstarstarstar
Our kids should do lunch!
by: Jacqueline

Oh my gosh, Leanne, I can so relate to what you're going through with Nathan's food issues. My daughter is 7, and her ped. just referred her for a neuropsych evaluation to get a definitive diagnosis of SPD.

Kaitlyn's problems with food started the minute we tried to wean her. She HATED rice cereal and baby food - with the one exception of strained sweet potatoes (I once rushed her to the pediatrician, convinced her liver was failing because she was "jaundiced" when in fact she was turning orange from all the damned yams.) Feeding her was torturous for both of us. It would take forever to get her to accept just a few teaspoonfuls worth of food...just a tiny bit at a time so she wouldn't gag and retch...and more often then not she'd puke it up right away anyway. We had her tested for everything under the sun, including reflux, celiac disease, and dysphagia, but everything came up negative. We finally had to put her in occupational therapy to try and teach her to eat when she was about 18 months old because she was underweight and anemic. (Arrgh!!! You know how people just love to tell parents of kids like ours "not to worry, they'll eat when they're hungry...no child ever starved himself to death." Well guess what??? My kid was doing just that!)Kaitlyn pretty much lived on Pediasure until last year when voluntarily gave it up because she didn't want other kids to think she was a baby. Now at age 7 she has an extremely limited repertoire of foods. She's similar to Nathan in her love of sourness. She craves lemonade (only the all natural kind, because any type of artificial flavoring tastes like poison to her.) She also loves pickles (again, only the all natural kind.) As far as food goes, she's also like Nathan in that she loves the crunch. She only really likes crunchy things such as dry cereal, any and every kind of chips, raw carrots and apples, and toasted english muffins (no butter, thank you very much!) She's a bit unusual in that she likes fruits and vegetables as long as they're raw. She'll eat salad greens and spinach right out of the bag like they were candy (but the thought of salad dressing makes her shudder.) You'd think I'd be thrilled that she eats her veggies, but the downside is that she has an aversion to practically all forms of protein. Chicken nuggets and Yoplait vanilla yogurt are acceptable to her. Nothing else. The only form of cheese that she'll eat is grated Parmesan on a little bit of pasta, and the occasional few bites of pizza (but she has to separate the cheese from the crust because she can't tolerate mixed textures at all. To Kaitlyn the worst food of all is anything soft and creamy. To this day, she gets grossed out if my husband and I eat oatmeal in front of her. Things that kids usually love, like mashed potatoes and chocolate pudding are totally out of the question. It's exhausting just trying to get some kind of minimum caloric intake into her on a daily basis. And don't even get me started on clothing!

Oct 31, 2008
Rating
starstarstarstarstar
prozac
by: Anonymous

My youngest son stopped talking when he was 3 years old. Completely, not even when he woke up in the middle of the night and was scared. He never forgot that he wasn't talking. He was diagnosed with Selective Mutism. I did a lot of reading up on the topic and what worked and didn't. Behavioral therapy was slow progress, it could take years to be back to normal function. Then there was prozac, in combination with the therapy. Some blogs similar to this one had tons of stories of kids making very slow progress with therapy alone so they tried the prozac and had dramatic progress. So we decided to not wait, if the prozac works, let's just do it right away. Let me tell you, within 2 weeks of starting on it he was talking again. And now almost 3 years later it's like it never happened.

Prozac reduces anxiety and lowers inhibitions a little so that he is open to trying new things. We also have issues with food, and we've had a ton of other issues as well, including potty training which didn't happen until well after age 5. I am wondering if he also has SPD, as well as my older son who also is puzzling in his inability to deal with unexpected change and have normal social interactions. But anyway, research the Prozac, it has been a lifesaver for us. He is still on a very low dose, he doesn't know he's taking it, we put it in his milk in the morning, but we're about ready to wean him off it now that he has successfully transitioned to kindergarten.

Good luck with everything!

Sep 08, 2008
Rating
starstarstarstarstar
Nathan
by: Rebecca

Our son's name is Nathan as well. We went to the public school system - they have programs with little or no cost to the parent - we were lucky enough to get our son in with the Scottish rite. You might see if your town has one.

Feb 19, 2008
Rating
starstarstarstarstar
keep fighting
by: Anonymous

there a lot of people who blow this off and think of it as nothing, but it is something! There are a lot... find someone that will listen. There are people everywhere.

Click here to add your own comments

Join in and write your own page! It's easy to do. How? Simply click here to return to Real Stories Of SPD.