Non-Eating Child

by Amy Handel
(Bradenton FL)

My 5 1/2 year old still does not eat! She gets ALL of her nutrition from vanilla pediasure! The only other food of any decent quantity she will eat is yogurt (vanilla only and it must be creamy and smooth in texture) and french fries(but not the ends or any crunchy or brown/black parts).She will lick potato chips, pretzels,or tortilla chips but rarely will bite them. We have done all types of therapies but she STILL doesnt eat. Has anyone been through this and what did you do??? Thanks!

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Sep 22, 2016
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10 years - only yogurt and Ruffles
by: Chris R

My son is 11 in December and only eats minigo yogurts and regular ruffles chips. He has a liquid vitamin every morning and liquid iron to help offset what he lacks. He only drinks water. This has been this way since the beginning.

We have had 6 or 7 different feeding specialists work with him with no success. We are spending $1400 a month on yogurt because of the quantity he eats and the fact that he won't eat all in the pack because 1 of the flavors is yucky.

He has made strides in all areas (speech, socializing and academics) but this has never changed. The Ruffles was a big break through about 2 years ago but nothing else has developed since. Everything has to be on his terms or he will shut down or meltdown and throw up.

I truly hope something clicks one day because this is a huge stress emotionally and financially!

Sep 21, 2016
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MY 10 YEAR OLD
by: Anonymous

MY 10 YEAR OLD ONLY LIKES EATING PIZZA WITHOUT CHEESE ONLY TOMATOE SAUCE,FRENCH FRIES,PEANUT BUTTER,PEANUTS AND HOME MADE SOUPS. THIS IS AN EVERYDAY THING. HE DOES TAKE VITAMINS AND LOOKS VERY HEALTHY BUT IM WORRIED THAT HE DOES NOT EAT ANY FISH,MEAT, OR CHICKEN.I SHOULD I WORRY OR IS IT NORMAL. I TRY GIVING HIM NEW THINGS BUT JUST WONT DO IT. WHAT CAN I DO?

Sep 06, 2016
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I have a son 20months does not eat.
by: Anonymous Holland

Hi everyone my son is a very fussy eater most of the time he will pulverize it with his fingers than throws it away. But I juice and make smoothies they have to be smooth or with a water like consistency. I've been doing it for two months now and it works.

On a daily basis he drinks in the morning 250ml greenjuice spinach, carrot, sellery, appel, pear, ginger, lemon or orange, that's the base and i switch it up with other veggies that are adorable. Also every 2 weeks I make a big pan of chicken broth. I freeze it in 50ml cups and do it iin his green juice. You have to find a balance zo that it will taste sweet by adding pineapple, melon, and peach will do. He drinks it in a minute.

Also he drinks fruit smoothies like banana and avocado and mango. Mango peache banana with cilantro. Yellow melon with spinach. Every juice or smoothie he wil drink. Thank god! Give it a shot. start with apple juice and slowly work veggies in small amounts to let them get adjusted.

Good luck to all! God bless! My son is not yet labled as spd

Aug 13, 2016
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My son is 5 and doesn't eat!!! You are not alone!!
by: Anonymous

My son is 5 and he lives almost exclusively on pediasure. I want other parents to know that you are not alone in your struggle. My son was born on time and healthy but for some reason he had a hypersensitive gag reflex at birth and threw up thousands of times in the first 2 years of his life. Because of this, he never could eat anything solid.

We have seen some of the best doctors in the world and had multiple procedures done and he still gags on everything. It is a nightmare for him and our family. My son is otherwise highly intelligent and a very sweet and social and funny kid. He just can't eat!!! Our next step is an MRI of his brain and a live in therapy program. Every doctor is totally baffled by this issue even the psychologists we've seen. We are very grateful for pediasure. Without it, our son would probably not survive.

Jul 28, 2016
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2 year old not eating
by: breanna

My son turn two on April 15,2016 he doesn't want to eat anything I give him most of the time I give him spaghetti ravioli he will eat it and some times he want its very scary I been giving him pediasure that way he can get full can someone possibly tell me what's going on.

Jun 19, 2016
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My experience
by: Joulia

My child was eating only cereals and smooth soup with no pieces until age of 5. then I've discovered he had SPD. Me did a therapy with a speech doctor, a course of OT at home, and a lots and lots of various messy crafts and DIY activities. Now he is seven and eats easily a full pizza or 12 meatballs and a plate of rice with veg for lunch. He is still quite fussy, but he is eating.

I can recommend you start with some flavour your child like and then try to offer her a different food with the same flavour. My son liked ketchup, when he tried it during his speech doctor therapy. So we went on to pizza, potatoes, meatballs. When he got used to meatballs, we moved to fish cakes, ketchup was substituted with mix of yoghurt, ketchup and thy sauce, and so on.

The books you must read : Food Chaining (excellent strategy that works), The Out-of-Sync Child Has Fun (these are usefull) and do a course with speech doctor, he will deal with hipersensivity your child obviously has.

Jun 05, 2016
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borders, get some
by: Anonymous

Hey, you should give me your contact info! I'll pass it on to my O.T. and our feeding therapist trying the Sequential Oral Sensory approach. You can tell them they are doing it all wrong and that they are just not consistent enough. I should probably stop applying at home what I've learned from them since i guess really, the the whole issue is that i must be lazy.

It's nice that you helped a kid!
There dear, you had your "pat on the back"!



Jun 04, 2016
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To "we are their borders "
by: Anonymous

..."My comments in no way referenced children with any disabilities whatsoever"

So why comment on a forum dedicated to Sensory Processing Disorder?
(SPD is a disability and often but not always is found under the umbrella of Autism Spectrum Disorder)
WHO did you think your audience would be here?

We have free speech in this country but that doesn't mean it is without consequence.
Please take your simply stated "Professional" opinion somewhere else!

Jun 04, 2016
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Exceptions excluded; feed your kids
by: We are their borders

Dear trying to help & possibly Grandma: My comments in no way referenced children with any disabilities whatsoever. So if you were offended on your own behalf I'm sorry. I am Not a "Autistic Specialist" therefore I did Not give any advice instructing the feeding care that your "Autistic" child might need! I simply stated my Professional opinion as a Preschool Instructor, Curriculum Director & Licensed Childcare Owner.

For example I currently have a child in my care who will turn 3 this October, who gets dropped off with a bottle every morning for months now. Mom says he won't eat breakfast (not one she had time to cook) so she sends him with a bottle. She fears he'll starve since he gags on most of the foods he eats (and believe me I've seen it) yuck!

According to Daycare laws a child can't just walk around drinking a bottle, nor be put in a crib to drink it on their own. So unless that child is 1 & a 1/2 or younger i am not gonna rock them in a chair while they drink their bottle. But once he's dropped off (I distract him of course) I pour the bottle contents into a drinking cup & place it on an accessible counter. Then I begin to offer different food choices for him to try daily at snack & lunch times.

He started off not feeding himself & gagging/spitting food out of his mouth. But I continued to encourage him to try everything he was offered. I also pointed out that the other children chewed n swallowed their foods while I sat next to him eating my food as well. I started to notice him opening his mouth bigger for some things & barely for others. Which who doesn't have likes & dislikes in food right? I love asparagus, but would never eat Brussel sprouts!

Of course it's easier for me to repeatedly convince a child who isn't my own to try foods even if he gags or not. Anyways one day (after my 3rd child graduated H.S.) I had 1/2 sheet of leftover cake & decided to offer some w/milk after veggies were eaten for snack. So I sorta used it as a bribe (I'm not gonna lie) and to my surprise I noticed that someone was NOT Gagging on the carrots. And then he practically shoved his piece of cake down his throat & for the first time even asked for MORE!!

Two days ago at drop off (before his mom left) he takes the bottle out of his mouth n hands it to me :) And the next day mom brings him in with a cup YAY. Btw he also loves scrambled eggs w/ketchup, green beans, Spanish rice n pinto beans (so far) Overall he eats & sleeps much better on a fuller tummy & his mom has mentioned that he hasn't been sick in awhile <3 So yes it takes more effort to be consistent, but isn't that "Our Jobs" as Parents n Caretakers?? #missionAccomplished #areUstillOffended #2EatOrNot2Eat

May 24, 2016
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Scared
by: Cole

My son will be 3 in September weighs 23 pounds. He can only stomach 2 cans of Pedia sure through his feeding tube, anything more than that will make him throw up. We do not have a diagnosis he dosent have a sensory issue, it's not celiac, chrohns,IBS, OR ANY OF THE OTHER GI TRACT ISSUES. HE HAD A ENDOSCOPY,BARIUM SWALLOW,STOOL TEST, SEVERAL BLOOD TEST. I have put him through so many test that I can't list them here. He has had pyloric stenosis, Also had heart surgery at 3 days old. And has been diagnosed with severe junior inflammatory arthritis struggles to walk every day. I think I'm going to lose my baby. Noone really cares. Say what you want I don't give a s... what more could happen to me.

May 02, 2016
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A mom in desperate need of support
by: Michelle lorenzo

My son is 4 1/2 years old and only drinks pediasure and water.. he has never eaten a peice of solid fooD in his life. He is autistic and after early interventions and a mom.pleading for help I still hit a brick wall. I have not yet heard a testimony with the same condition my son suffers from, so I feel totally alone. Let me mention he did lock a potato chip but that's it. Any feed back will go a long way. Please text me if anybody can relate with my situation 407-745-7747. Thank u so much in advance

May 02, 2016
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Salt is a sensory input
by: Anonymous

Hello, it is sooo nice that I'm not alone! Your child is gravitating towards saltiness because it is a sensoy input. You can try to put salt on things that you are trying to feed her. My three-year-old goes to feeding therapy and they told me that those with severe sensory issues in their mouth will gravitate towards 4 things. Salty, sweet, spicy, and sour. It is because these are sensory inputs.

Your little one reminds me of my little one. He likes sweet and salty. You are doing a great job as a parent. Again, any calories you can get in them is good. People who do not have a child with sensory issues in the mouth do not understand. But you are not alone. I still give my 3 year old 2 cans of pediasure that his doctor prescribed. But, he will only drink vanilla. He also likes French fries, but won't eat the dark parts too or if it's too dark. He will drink a yogurt smoothie, but only one flavor.

I give him vitamins to make up for any nutrition he's lacking. He will not drink milk or juice, only water through a straw cup. Have you ever tried giving your LO ice? My son loves ice, and it's a great sensory input. In fact, sometimes if I give him ice for awhile, he will eventually eat something because his sensory needs are met.

But, It sounds like you are doing great mama!

May 02, 2016
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To the comment that just bashed the mother seeking help
by: Anonymous

To the post that just bashed a mother who is seeking help for their child, you apparently do not have an autistic child. You speak from ignorance to something you do not understand. I have a 3 year old autistic child who refuses to eat. I have to give him pediasure because he was given a diagnosis of failure to thrive. He still does not understand how to use a sippy cup or cup. He has severe sensory issues in his mouth.

I have to count calories just to make sure he gets the bare minimum. I put him in school, but had to take him out due to losing 2 and a half pounds in 3 months. The teachers couldn't even get him to eat. So, tell me, do you think if I don't let him eat, it will resolve itself? No! He will just go without eating! He doesn't understand hunger pains and still cannot tell me he is hungry or thirsty. So, until you experience this as a mom, keep your thoughts and horrible opinions to yourself! They do not help people, and they surely do not help a mother with an autistic child with feeding issues! Ignorant people like yourself really disgust me. I feel for YOUR children, and I hope you do not teach them your hate with no compassion!

To the parent from the original post...you are doing great! Hang in there and know that you are not alone. There are many parents with children with feeding issues. Whatever way you can get calories in is good. Just that you are trying to get help says a lot about you as a parent! Your child is blessed to have you!

Apr 21, 2016
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trying to help
by: Anonymous

hello iam a parent to a 6 year old child that nearly choked a couple of weeks ago.he stopped eating all his favorite foods and cried when he tried, because he said he was afraid of choking again.well thanks to my husband my son is eating again. he told me that this disorder was only in his head, so what my husband did was he had abox of breath right strips you know the ones that help you breath by opening your nose passage. he put a strip on my son and told him to breath in without and with the strip so my son would feel the diffrence. my son said that he did felt the diffrence,so he told my son to eat normal and chew his food before he swallowed that the strips would prevent him from choking. thank god it worked because my son is eating normal without the strips. i hope this helps some parent. good luck

Apr 10, 2016
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to..
by: Grandma

I don't use profanity publicly ( and rather doubt it is allowed here, anyway).. but, I've no doubt I'm not the only person to read your post that felt the urge to do so.

My grandson is very like many of the children described here. I.. was very much like you in my opinion ( or, to be more honest, my judgement of) my sister when her daughter had similar problems years ago).

I was completely IGNORANT. But, at least I wasn't cruel, condescending, or verbose about my uninformed " opinion"

I don't know if this post will be allowed to stay here. Although, I can't imagine why it wouldn't when yours was.

I wonder how many people who have agonized over this for years were brought just a little lower by your " helpfulness".

The rest of you here.. I sympathize, empathize, and wish you all the best in this difficult struggle for your beloved children.

Apr 04, 2016
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To: We are their borders
by: Anonymous

Hahaha! Pretty funny post! Tell it to the parents who have their kids on feeding tubes in the hospital after numerous attempts at feeding therapy.

I wish what you said were true for everyone. Life would be way less complex. By the way,if you dont like, understand or cant tolerate our posts or community, you dont have to read them. ;)

Apr 04, 2016
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All children need borders
by: We are their borders

First off No child in History has Ever been reported for "Starving themselves to death"!!! These kids are not eating because YOU PARENTS keep making Excuses and catering you them! Who's in control, good Lord what/who are creating?? You are making it easier on yourselves because it's harder work to be consistent. You should stick to what food you're serving and let your child sit in front of it until you are all done eating.And eventually (even if it takes a couple of times) your child will eat. But if you give in (because you think your child will die) & give them a bottle or only the limited things that they don't refuse to eat, then you're child now knows "They're in Control" & continue to Refuse to eat. And if I was given only liquid (in a bottle) I'd probably gag eating any foods as well, duh it's common sense.

Even adults who "fast" for 30 days will have trouble eating at first. Now imagine your 2 & 5 yr old who drink bottles n liquidity baby foods feel. Parents You are causing more damage than harm. Not only ones that might cause future eating disorders, but think of the verbal skills they'll be lacking because they're used to sucking a bottle (same goes for pacifiers) or dental care they'll need now.

And then there's the social aspect of it. You do realize that even if kids are "nice" and don't verbally make fun of them at school, they still may avoid your child. That alone has a trickle of effects that are not helpful for your child. So I ask you this, "Do you wanna make things easier for your child now, just so they can pay the price and suffer later"?? If you do, them go ahead and give them that bottle n baby food no matter how old they get. But don't be shocked later when your child goes to school and shoots everyone because they were left out or teased. Simply because no one identified with them throughout their early childhood years (which are detrimental) because you gave into everything they wanted.

We teach our children "rules" now so that when they're older they'll obey "laws". If you say here's your dinner and the consequence is they go to bed one night hungry, the next nt they'll know to try some. Or when they're older & see the "No Shoplifting" but steal anyways (because you gave them that bottle so they wouldn't go to bed hungry) now they're going to jail. I've raised four of my own (and countless others w/20yrs of preschool exp) but after all its your child so it's YOUR CHOICE, but don't say I didn't warn you!!!

Mar 29, 2016
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to 10 yrs old daughter
by: Anonymous

Will she try home made protein shakes or green smoothies? Also, there is something called "mindful" eating where when you sit down to eat, you relax and are calm and focused on the act of eating. Small slow bites (or sips) in a quiet non-distracted atmosphere can help rid her of the fear of choking again. Even one bite is a triumph. Most kids that choke do it when they are eating too fast or are distracted. When she is ready, start with soft foods like mashed avocado or scrambled eggs.

Mar 29, 2016
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Not eating
by: Anonymous

My 10 yrs old daughter stop eating after chocking 3 times from the food she ate, since then , all we can feed her is Pedia sure and she is loosing weight from 89 lbs six months ago and now 74 lbs. we have been to different Doctors still no solution. She has been a picky eater all her life , but now it is so bad , she would not even eat junk food, i am worried, i am terrified please help!!!

Mar 29, 2016
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Sorry...I hope you find answers soon
by: Anonymous

Has she choked before? Look into Homeopathic Bach Flowers for Emotional support. They can be VERY healing for fears. They sell them at most health food stores and they really work well. There is a chart/guide to help figure out which ones work for her. They don't work overnight but will work. Also Young Living Essential oils work very well for emotional things. Try getting her involved with preparing her food/drink. See if she will drink fresh made juice like organic carrot/apple that she helps make. VERY healthy and will help keep her taste buds from becoming too accustom to sugary things. Prayers for you finding answers. :)



Mar 29, 2016
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stressed
by: nancy5440

my five yr old girl has only eaten pudding and drinks pediasure for the past five wks. she is afraid that she will choke. her doctor doesn't seem too concerned either. she just said make the pudding and put butter in it. I am not sure if this is the answer. I tried eggs and noodles but she wont have it. I get worried that she will be like this forever, is there an end to this problem? will it resolve itself? should I take her to a shrink? I am at a loss/.....

Mar 28, 2016
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To Worried sister
by: Anonymous

Your little sister is so lucky to have you because you are watching out for her. I hope that things get better for her, for you and your mom too! Best wishes!

Mar 28, 2016
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Worried sister
by: Anonymous

My sister is 6 years old she use to be chunky if you look at her you think she looks healthy but not to us we see her pale not so energitic she just wants to sit and play video games always in bed.. She will only eat bean burritos from taco bueno not home cooked just from their only no cheese no chilli plain, and spongebob Mac & cheese that's all.. She also goes to therapy speech.. I love her to death . my mom is getting old and she is horribbly sick at times.. I really suggest pediasure it had been amazing. But we still struggle...

Feb 27, 2016
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Don't give up hope!!!
by: Anonymous

Don't give up hope....Please try Young Living Essential Oils. They are truly LIFE CHANGING!


Feb 11, 2016
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Same boat as many of you out there
by: Worried Dad

After reading the experiences everyone else is having, I feel sad and worried for the future of my son.

He's 4 years old and only eats hotdogs, noodles, junk foods and fries. He's basically getting nutrients from pediasure.

We tried forcing him to eat, talking, playing, rewarding,etc. He just doesn't like to eat at all.

He's attending OT sessions for speech at the moment.

I fear for his future because we are not financially blessed and he's expenses is taking around seventy percent of our income. And we cannot save money for his education and future. I wish I can live long enough to work and earn money to support my son, but I know thats not possible.

My wife and I are thinking of having another baby so he can have someone to take care of him when we are not around anymore, but we are worried that our budget might not be able to sustain at the moment.

Sometimes I cry alone when I imagine my son's situation. I feel so helpless as a father.

Feb 10, 2016
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6 Yr Old is the same
by: Tanya

My 6 year old ASD son just gave up eating regular foods and would only eat oikos greek vanilla yogurt and vanilla pediasure for about 5 weeks. He is now only drinking pediasure. We are working with a feeding clinic to try different methods to get him to eat but so far he will only lick other foods and if we ask him to take a bite he screams and runs away. I feel awful giving him just pediasure but his pediatrician isn't really concerned. He isn't losing weight, he is thriving better in school, his behaviour is actually better as well. I know how frustrated you are - I'm feeling the same. It's nice to see other people in the same situation at different stages (children to young adults). I worry so much about his lack of eating.

Feb 06, 2016
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22 year old Aspy
by: Anonymous

My 22 year old son is happier with his life as an adult as he is now able to make sense of the world and understands his Asperger's which have caused him a lot of stress over the years.
Finding the right school which will support your son that has a strong understanding of children on the autism spectrum will make your sons life at school easier.

My son has a great love of music and plays quitar, he owns and has collected over 600 vinyl records and enjoys a very eclectic range of music from classical to the 70's and some 80's music? He wishes he was around in the 70's! He is a walking encyclopaedia on music, musicians and bands world wide? He is well read on music , history and politics, loves watching comedy and music CDs

He is a computer whizz and has many friend he chats to on Facebook and on an Asperger chat site. He doesn't have a lot of close friends that he sees regularly but has a few friends he catches up with at birthdays and the occasional visits. He does not go out on the social scene such as to pubs or dinner as he does not drink alcohol or eat food so has no interest!
He would like a girlfriend but she would need to have the same interest as he does for it to work well.

He has spent a lot of time doing our family tree and has gone as far back as the 1600's!
From his early years in school we had no idea he would be capable of doing what he does today! Although he does not have a job he does do voluntary work for The Victorian Archive centre which he loves and this may lead to a paid job one day if he doesn't become bored with it. He also goes to the gym to help with his muscle and weight as it helps him drink more formula and therefore gain a little weight. He has a pet cockatiel which he loves and our two dogs! Feel free to ask further questions. Hope this helps a little for you and your son.

Feb 05, 2016
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to: No solid foods/ 22 years
by: Anonymous

Can you please tell me a little more about your son? Does he have friends? Has he had a "romantic" type relationships? Did he complete school? Does his have a career? Most importantly...is he happy in life? The reason I ask is that my 5 year son also has autism (and he drinks his pediasure in a bottle). So far, hes healthy and in a special ed school program but I often wonder what his future will look like. He is high functioning but socially there are a lot of hurdles to work with. I am curious how your son has dealt with social cues. I know that every individual is different but I'd still like to know your son's journey a little better. It may help me understand my son's journey.

Feb 04, 2016
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No solid foods ever for my 22 years old ASD son
by: Anonymous

It is a long hard road when you child refuses to eat, I have been through every therapy, doctor, specialist, ASD specialist but my son has confounded them all. He went from baby formula to pediasure and would only take it from a baby bottle until he was 13 years old. Once he reached high school was he finally was able to move to drink from a pop top which was somewhat more socially appropriate! He then went onto adult formula which he now survives very well on although underweight. He is in good health and is hardly ever sick!
My dear son is now 22 years old and has never eaten solid food his whole life!
I wish I could offer some advice but unfortunately because my son was on the autism spectrum (aspergers) he was very strong willed and the fears /anxiety around food were too strong for him to overcome.



Jan 29, 2016
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What has helped us
by: Anonymous

Okay...I guess what I should of done was share what things has helped my granddaughter and a friends son. We use Young Living Essential oils and honestly they have been life changing!!! If you haven't tried them I totally recommend you do. You can diffuse them or use them directly on the skin which makes them very easy. They aren't cheap but many of them you dilute with a carrier oil and they last for months and months so they really end up being affordable. The results have made all the difference.

There are many more options but we started with some of the ADHD oils. These oils have made a HUGE difference!!! We noticed a difference within a week. We started with Stressaway on her wrists and behind ears. We use Vetiver on her toes, Brian Power on her brain stem (back of neck) and Joy over her heart. Before the oils she was having HUGE melt downs where she would shake and cry uncontrollably but we haven't had those issues since we started the oils.

She had more issues with tactile...clothing, shoes and getting dressed but the oils have changed all of that including eating and trying new things. There is an oil called Intouch and one called Reconnect that I think sounds really good too but haven't tried.

My friend had a 4 year old son that just stopped eating one day. He kept acting like his mouth hurt but after zillions of tests the doctors found nothing wrong. He was only drinking so his mother was very upset and searching for answers. She began using some YL oils and now he is eating again. I am not sure which oils she used but I know she LOVES the oils also.

I hope you research some oils for your child and give them a try. I pray that they will be a blessing in your life as they have been for ours.

Jan 29, 2016
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To "nof trying to offend and lighten mood"
by: Anonymous

To: "not trying to offend"...im happy to hear your intention was to help and you did have some good information within Your in-your-face delivery. Thank you for posting because maybe that's the kind of delivery some moms need (just not me).
To: "lighten the mood"...thanks! It was perfect! ;)

Jan 29, 2016
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A little humor to lighten up
by: Anonymous

The other day, my son picked up a niblet of dog food from the dog bowl and held it to his mouth like he was going to eat it. My knee jerk reaction was to stop him, but I didn't. I was actually excited and hoped he would eat the dog food. It would've been progress, but he didn't eat it. If he had eaten it, I wouldn't have put him on a Kibbles and Bits diet for the record.

Jan 28, 2016
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responding...not trying to offend...only help.
by: Anonymous

You may feel it is judgmental but it is actually me trying to help. Sometimes the truth hurts and it can honestly hurt to the point that it wakes you up...forces you to take another look. I care very deeply for each and every parent and child going through this, that is why I take the time to research, read and post. Perhaps there is someone that is reading this and their child is just starting down this path and maybe just maybe they will look at it differently. I hope you can put your hurt feelings aside and see that I posted some very valuable insight and ideas. I get calls almost daily from friends and family asking my advise on many issues involving natural medicine and issues with children, it is my passion to help and teach all the things I have spent a life time learning. I raised 5 children, have 4 grandchildren and I owned and operated a daycare for over 25 years so I do have some experience with children. I just hope and pray that something I posted will help someone. God Bless

Jan 24, 2016
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To the "why is this happening to so many children " poster...
by: Anonymous

You seem awful judgemental. On this board you have parents with kids on feeding tubes who would give anything for their kid to be willing to eat a chip, a chicken nugget, an apple or a smoothie. Yes, you have others who have kids that will only eat a select few items some of which may not be nutritionally sound, but hey, we are here to listen and support each other. No ones situation is exactly the same. We have similarities and we offer suggestions but not in a judgmental way. Sure, we'd all like to have our kids eat whole foods and use fancy oils but we can't starve our kids or force feed them because the problem is beyond being a picky eater and it crushes us daily. So im happy that you have a grandkid thats eats healthy and i really hope you meant well when you posted but it didn't come off that way.

Jan 24, 2016
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Why is this happening to so many children?
by: Anonymous

I am not trying to offend anyone but what seems to be an average response to this problem is junk food. Soo many of the comments say things like...he/she will only eat/drink chocolate milk, pizza, hot dogs, chips, pop tarts, chicken nuggets etc. None of which I would EVER feed my child especially when they aren't eating. I get that they wouldn't eat so you just want them to eat something but why did you even think to offer something like that? You could of offered smoothies with organic raw milk, almond milk, coconut milk, high grade protein powder with berries, a banana, greens the list goes on. I know how hard kids are with this disorder because we have struggled with my granddaughter but we just offer her VERY healthy options and we allowed her to help prepare it and she will usually eat or drink it if she has a help in the preparation. Also has any of you tried Young Living Essential Oils? They have been life changing for my granddaughter. I believe that nutritional deficiencies and toxicity are at the core of this problem and the more they eat only junk the more deficient and toxic they become making them extremely imbalanced. And when they STOP eating they become more imbalanced. How many of you have vaccinated? How many of you were vaccinated while pregnant? How many of you breastfed? WE need to figure out the common denominator...no one else seems to be.

Jan 22, 2016
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2 years
by: Anonymous

My autistic grandson has not eaten solid food for 2 years. One day he just stopped eating. My daughter gave him chocolate milk etc for a year. Now he has a button. I am concerned because he also has an inhaler. What can be done for this boy? It seems like no one is really taking any action. I guess his doctor said sometimes they start eating again. I am worried he is getting thin again. I was told he is on a waiting list for home services. My grandson does attend preschool and takes a lunch box drinks a juice.

Dec 21, 2015
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I've been battling this as well
by: Anonymous

Yes I'm going through the EXACT same thing! He will lick EVERYTHING! But will not chew NOTHING!! He gets all his nutrition from puréed food I make him and he eats yogurt only cotton candy flavor and he will not drink milk or water! Carolinac1988@hotmail.com please email me! I thought I was alone!

Dec 14, 2015
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My 12yr old son
by: Anonymous

Please get on top of this ASAP parents, my son is now 12 and his food intake is only 2 items, which would be bread and starch (hot chips) he constantly has stomach aches and pains, constipated, mood swings, no energy, can't concentrate, effects his and our daily lives. He can't bring himself to eat, doesn't like the smell, touch or the look of foods. Has been like this since we can remember. Has never sat at the dinning table with us. He goes to bed hungry and wakes up hungry. Have tried helping him many times but gets extremely emotional. He is scared to eat but doesn't care if he dies from strarvation, he has told me this. It is so sad and difficult to watch someone go through this. We are now going through an eating disorder program where the first step is talking about it, thank goodness he likes to talk. Anyways I know every child is different but please keep on eye on your kids.

Dec 11, 2015
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7 month old after food tube
by: Anonymous

Hi, you are going to have to talk to your doctor if He/she does not remember how to eat or drink with their mouth. Therapy will be needed. Once he/she will take food and drink with their mouth, then ask doctor to recommended high calorie formula and baby foods. Act fast but take food intro slow.

Dec 11, 2015
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worry about feeding.........
by: Anonymous

hi mam/sir
now my baby is 7 month baby .becoz of health upset v hav given food from rise tube to him from 3 months. now v removed tube but now he is not able to tak sufficient food for his age,but v hav to increse his weight.

now he forgotten all, tht is memory loss,so how i can teach my baby to take food sufficiently???????

Dec 03, 2015
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to Marcy
by: Anonymous

Hi Marcy, you are right to be concerned. His nutrition can be an issue given the things you listed. That said there are cultures who raise their children successfully on a vegetarian diet. I thinl seeing a doc is a good step but trying to incorporate/hide more nutritious foods in what he does eat, like vege, beans, nuts, may also be a good step.
Best wishws

Dec 03, 2015
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Strugglin
by: Marcy

My son is 6 yrs old and won't eat anything that has meat or chicken in it. His go too foods are bread and milk usually. Sometimes he'll eat pizza, waffles, and pop tarts. But he refuses to eat meat and chicken and I'm having such a hard time. I'm not sure what to do. I'm in the process of considering taking him to a specialist. Someone on here said to use oils and I have..but yet nothing. I have literally tried everything. I look at my son and he is starting to look thinner and I can definitly see it in his face that he is losing more and more weight. So if anyone has any other suggestions I'm up for it. Until then I will have to take him to the doctors and see what they say.

A mother in need of some food guidance

Nov 29, 2015
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Response
by: Amy

I feel your pain mama's! I originated this post years ago and now my daughter will be 11 in January and still gets 95% of her nutrients from vanilla with fiber generic pediasure. I order $300 worth every month online and Walmart delivers it to my house. She will eat every now and then but just bites of mostly bread items. Very frustrating and makes you feel like a bad mother. She's very petite but not underweight so I guess that is good anyway... Praying that our children will start to eat eventually! Be blessed this holiday season....

Nov 29, 2015
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to : Irene
by: Anonymous

did you guys recently move to Asia? Was your son always a sparse eater or did that change with move or some other big life event? Will he try smoothies or milkshakes? Given his weight, a doc is a good idea but if you cant get help with a conventional doc, try a alternative medicine doc. Best wishes!

Nov 29, 2015
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My 10 yr. old boy looks anorexic
by: Irene

I love him so much, but I'm at my wits end with him. He has no stamina to continue to play a game, because there's no strength in him. He eats very little. Never eats lunch at school. Breakfast is usually his bigger meal, and dinner. I don't know how he keeps going throughout the day. I'm in dire straights here, and can use some serious help. I've already decided to see a doctor about this. We also live in Asia, which makes matters worse. Everything tastes different, and he complains the cafeteria food is not good. He will not take home lunch, because he's embarrassed. My son is very low key, and shy. I'm not sure if it's because of his personality, that contributes to his eating problems? By the way he's only 47-50 pounds.

Oct 20, 2015
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to Us too
by: Anonymous

Us too as well. Our son is almost 5 and he drinks about 4 to 6 pediasures a day....still in a baby bottle. He will drink water from a cup. He wont drink juice or soda and trust me, we have offered. The issue is, pediasure is his main source of calories because other than that he eats bread. So, we don't want to rock the boat by taking away the bottle. If he stops the Pediasure we will be in big trouble. fortunately the doctors and therapist have all agreed. They just keep trying and we do too.

Oct 20, 2015
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Us too
by: Anonymous

My son is about to turn 5. He does not eat and he also will only drink vanilla pedia sure. The kicker is he only wants it from a baby bottle. We to have been to countless doctors and therapies since he was 10 months old. No resolution.
I'm desperate.

Oct 01, 2015
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Allergies
by: Anna

My son is 20 months and regressed with eating. He never really "ate" though. He'll lick crackers and munchers and that's about it. He was at least eating stage 2 baby food - but only sweet potatoes & turkey, or sweet potatoes and corn. He was also eating stage 3 chicken and vegetables, but stopped. Because of all the beta carotine, his skin turned a little yellow.

The biggest challenge right now is that he's allergic to milk (all milk) and egg whites, which rules out so many foods. He's also bottle dependent. Right now, I make soy "protein shakes", which includes soy formula, rice cereal, and I'm gradually sneaking in soy milk.

His weight is in the 45th percentile, but his height is only in the 10th, which is odd because his dad is 6'3" (I'm 5'6"). I read somewhere that a low height percentile is due to poor nutrition. He also won't drink a liquid vitamin (even if I dilute it with juice).

I told his pediatrician my concerns and since, we've had several referrals and it's stressful. He went to a gastroenterologist, who prescribed reflux medicine. The GI doctor is concerned that there could be some issues because we didn't catch the allergies until he was 8 months (I took him to the doctor in Louisiana every other week saying that something was wrong due to coughing fits at night. The doctor dismissed it and said it was just a cold and to prop him up near a cool mist humidifier. I should've switched doctors a long time ago. Because the doctor downplayed everything, I just thought I was being a nervous first-time mom.

The doctor in Florida is great and taking everything seriously. Along with the referral to the GI, we are also starting feeding therapy, and the speech therapist referred us to an occupational therapist for an evaluation.

This is so difficult! I feel like I'm failing as a mom. I constant,y question what I did wrong. Was I not aggressive enough? Did I breastfeed him too long? Why didn't I introduce solids sooner? I should've been more animated and affirming with every little attempt at eating. Am I being too hard on myself?

He wouldn't eat. He gagged with the slightest texture. Although now, it seems behavioral because if I even bring a new food near him, he pushes it away and starts crying (and that's just with applesauce).

Now I also worry about his teeth from the bottle and am constantly wiping them off or using the finger toothbrush. Has that been an issue for any of you?

Sep 19, 2015
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Pediasure Addict
by: LukesMom

Oh man, finally others in the same boat! I've had the hardest time finding others going through the same thing. My son is a sweetheart but he is not not a fan of eating! He is 21 months and has down syndrome. He would ONLY breastfeed until he was 18 months and now he still breastfeeds once a day and drinks 3 Pediasures. I'm grateful for the Pediasure since it has brought his weight back up and helped us avoid a feeding tube. But we CANNOT get him to eat anything else! He sees an OT 6 times a month and is being seen by a gastroenterologist. He takes medicine for silent reflux. We've tried everything--every food, texture, temperature, spoon/fork/cup/bottle, z-vibes, chewy tubes, adjusting eating posture, rigid routines, oral massage, you name it! He just clenches his mouth closed and turns his head. He is an excellent escape artist! We are currently trying the honey bear sippy cup... also, I'm about to read What's Eating Your Child. Hope it gives us more ideas. Sorry about the rant! Just relieved to hear I'm not alone! Good luck mommas!

Sep 03, 2015
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Marcus Feeding Clinic
by: Marissa

Sorry I hadn't responded yet! Yes, the last person was correct. I took my son to the Marcus Autism Center Feeding Disorders Clinic in Atlanta, Georgia. It is an amazing center and the clinic really does wonders. It is a huge commitment, 8 weeks five days a week, 8 hours a day. It is also strenuous on the parent and child. They use a behavioral approach, but it works wonders. After the 8 weeks they keep you in weekly outpatient visits to continue the improvement. I couldn't say enough how great of a place it is!

Sep 03, 2015
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2 year old limited to certain foods
by: Anonymous

Has anyone had a child who is slightly overweight but also has an eating problem?

They have tested my 2 year old daughter for growth issues as she is a little overweight (some weight has been lost now that she can breathe easier after having enlarged tonsils and adenoids removed).

She has limited herself to 5 foods and won't even entertain trying something else. She also gets quite upset if she can't have her particular brand of custard. She isn't really a big eater despite being overweight. Doctors are monitoring her and her weight but as for food they just tell me she is picky. I tend to think something else is going on. Any thoughts or suggestions would be greatly appreciated.

Aug 31, 2015
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Atlanta Feeding clinic
by: Anonymous

Hi, For some reason I got an email saying there was a new comment on this board but there wasn't. Its OK, it gives me a chance to answer the last comment.

More than likely Marissa took her child to the Marcus Autism Center Pediatric Feeding Disorders in Atlanta GA. They seem like they have an incredible program. I will keep it in mind myself, although I live in Chicago.
Best wishes, -Laura

Aug 28, 2015
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To marissa: eating clinic
by: Anonymous

Can you let me know the clinic in atlanta that has helped your child...my grandaughter use to eat everything in sight as a baby she is now 5 and her 2 yr old brother weighs more than her. She only put three to four foods in her mouth and we know she has a sensory problem but are still experimenting with docttors to try and fix...so far no luck

Aug 21, 2015
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Osteopath
by: Anonymous

There may be something going on in the brain that doctors aren't finding. I would suggest seeing an Osteopath. My Osteopath just helped a 4 yr old that wouldn't eat and weighed only 10 pounds. After 6 visits, the child was eating again and weighed around 40 pounds. It's worth a try.

Jul 24, 2015
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Try Young Living Essential Oils and juicing
by: Anonymous

Please look into trying Young Living Essential Oils. These are the oils that helped my Grand daughter, Stress Away, Vetiver, Brain Power, Joy. It was life changing for her. There is also Cedarwood, Grounding, Peace and Calming, Lavender and so many more that may help. And above all else don't make a big deal out of your Child's food issues telling them they MUST eat. Try just making a beautiful plate of healthy food and asking them to try one bite of each thing on it. They will just surprise you one day and start trying new things. You can juice some healthy Organic Carrot, apple juice and have them help you. If you could get them to drink even a few tablespoons a few times a day they will a benefit. As they become more nutritionally deficient they will have more issues...soo getting kids to consume even small amounts of juice could really help.

My friends son would only drink liquids for months and after MANY doctor and dentist appointments, many tests, with no answers she began using oils and one day he just woke up and asked for solid food. He hasn't stopped eating since! Soo I pray at least one of you guys try the oils and also try the juicing even if you put it in the feeder tube. Lacking even one mineral can cause all kinds of mental health issues soo juicing can help with that. Maybe even growing a garden with your child can help. Please don't quit offering your child healthy food options at EVERY meal because today could be the day they might eat that salad or fruit bowl. God bless

Jul 23, 2015
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Feed them what they like don't force it
by: Tonya

I try everything.I just feed him what he eats because he has to eat! I saw a show before where his 44 year old eat steak and friend, her whole life! It's so many people like this

Jul 14, 2015
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Help me too
by: Anonymous

I'm crying as I read your article because I am struggling with the same thing as well except my son is 10 and still refuses to eat. I tried everything from bribery to threat, nothing works. He eats no meat, no chicken, no vegetables. He will eat pizza, several cereals, waffles, pancakes, french fries, and boxed macaroni and cheese. God forbid I make my own, he will not eat it. He gets supplement attrition is from ensure shakes. He will gladly go to bed instead of eating and I could take away anything from playing video games, swimming, anything that seems most important to him at the time, and he will give that up without a fight if it gets him out of eating! I don't know what to do. He is 10 years old, weighs less than 50 pounds, and is about 50 inches tall. Double help!!

Jul 09, 2015
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to carrie in akron ohio
by: Anonymous

Im in the same boat. I have an almost 5 year old. He drinks 5-6 pediasures every day (and he insists on using a baby bottle). He eats the inside only of croissants which we buy in bulk at Costco,red grapes and sometimes small oranges. He used to eat blueberries and crackers but he hasnt for about 2 years now. His growth has been fine because of the pediasure which is why we dont want to disturb the fact that he uses the bottle but we are lost because he will start school in a year. We go to speech therapy once a week and our new therapist is about to try to help with his food issues so, we will see.

Because his growth has been good, our docs dont have answers except to keep up the pediasure and keep with speech therapy. We are on a wait list for OT.

I guess i wrote this to you because i wanted you to know you are not alone. Sometimes i cry because i worry what will happen to him as he gets older.

If i find something that helps, i will post it. Good luck to you and you little one!

Jul 09, 2015
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How to reintroduce food?
by: Carrie, Akron, Ohio

My 4.5 yr old son drinks chocolate Pediasure almost exclusively. His father and I are divorced. At dad's house he also eats microwavable Velveeta shells and cheese. At my house he eats Club crackers and cream cheese.The crackers cannot be mini size, broken or any brand but Keebler. The cream cheese must be whipped. At 18 mos he ate about 10 to 15 different foods. My ex introduced Pediasure and since he has all but quit eating. We have tried dr after dr and therapist after therapist. None have any progress. All agree he is an extreme case. Any suggestions would be appreciated.

Jul 03, 2015
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to 13 yr old and to lo
by: Anonymous

To 13yr old: 95lbs at age 13 isnt enough to merit the statement someone made. He is not anorexic because he does not fear fat but he fears new foods. Hes eating and thats most important. try to get him to take a vitamin with food. He may in fact grow out of it but he may not. persistence with the doctors is key.

To lo: Vomiting and bad bowel movements are not due to this diet. you need to seek a doctor. This could be a simple virus or more serious like a bowel obstruction.

My best wishes to you all.

Jul 03, 2015
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please pray
by: lo

Hey mothers my 6 1/2 year old eat 3 things potatos, fries, popcorn . Recently he has had stomach pains horrible smelling bowel movements and experiencing vomiting daily. He eats everyday but is naturally thin and tall. He cannot afford to lose any weight. I don't know if it's a nervous thing that's why he's throwing up or his diet is now affecting . I just want my baby to be healthy and I wanna help him any answers suggestions? Please pray

Jun 09, 2015
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13 year old
by: Anonymous

my son is now 13 he has not at regular food since he was one all he eats is fries and chips and pop corn I can not seem to get him to eat anything else the doctors tell me he will grow out of it but it has been 12 years and he is not growing out of it someone told me he will be lucky if he makes it to see 20 he only weighs like 95 pounds I tried getting him help but doctors are not helping with anything I don't know what else to do for him I want him to live his life and have his own kids some day but the way he is going I am not sure that is going to happen

Jun 08, 2015
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To: Shelly Reylek
by: Anonymous

Have you tried Essential Oils? No but I haven't thought about this. Im not sure how it would help with eating issues but then again...who knows? Once I started thinking about it, I can see how some oils could help behavioral issues with SPD (like maybe to relax...i never thought about massage before for this). If you can share a little regarding the kinds of oils you've used and the benefits you've seen, I would be grateful. In the end, I may not see it as useful but I think keeping an open mind is incredibly important. Sincerely, -Laura

Jun 08, 2015
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Have you tried Essential Oils?
by: Shelly Reylek

Have any of you tried Young Living Essential Oils? My granddaughter is improving so much from a sensory disorder after using oils. Reading all of your comments it sounds like they might work for some of your children. Heart breaking to read all of these comments. I can tell you what is working for us if you want.

Jun 02, 2015
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Update-Feeding Clinics Work
by: Marissa

I posted a while back about my son who is now 2 years old not eating anything but milk and pediasure in a bottle. We are in week 7 of an 8 week intensive feeding program in Atlanta and the place is amazing. My son is eating all sorts of foods (still in puree form) and is feeding himself and enjoying it. It is still a long road, but I have seen many kids come through with a variety eating problems and have seen remarkable improvement in all of them.I highly recommend doing such a program, these things rarely correct themselves without intervention and weekly feeding therapy was useless for us given the severity of his issues.

Jun 02, 2015
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so difficult
by: Anonymous

Hello,

My son is the one mentioned that does not eat food. Any food. Nothing goes into his mouth, near his, on his lips, just nothing. The feeding tube has helped. He weighed 33 pounds (at 5yrs old) and now weighs 40. And for that I am thankful. His pediatric gastro doctor said if we hadn't done the feeding tube when we did, that he was going to have a stroke. I just wish that he could tell us why he hates food. The look? The smell? The shapes? I had no idea. And it will remain a mystery.

Still no progress with drinking either. Just chocolate milk in a sippy cup. No other liquids.

I'm happy with the tube because we are able to give him things that he needs. All his meds (because that is a battle all on its own) and where as its summer, we can give water and not have to worry about dehydration. And he is able to spend the day outside. Last summer his activities were very limited because of his lack of liquid intake. He had heat exhaustion once and that was pretty scary.

I guess all we can do is pray. Pray that some day, someone will be able to give us answers. And I wish that for all of you and your loved ones.
It's so weird for me. I don't know what it's like to make my child 3 meals a day. Whether or not if it was only 4 specific things. I miss him asking me for oat meal, or spaghetti, or any of his favorite foods. He was the type of baby that we had to give him his veggies last because he would eat them all before the rest of his meal.
But we will continue to try. And continue to pray and hope for the day to come where he wants to eat ANYTHING.

I wish you all the very best of luck!

Jun 02, 2015
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Have 20 year old twins with autism
by: MARGRIT ZITO

My boys had eating issues and found that they did not get hunger pains like us and they would be very sensitive to textures.

I had enrolled them in a "pediatric feeding disorders program" at the Cleveland Clinic Childrens Hospital. They were out patients for 4 years starting with appointments daily to in the end only going once a week. Very intensive, very emotional, very expensive BUT WORTH EVERY SINGLE DOLLAR!

May 14, 2015
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Non Eating 3 yr old
by: Anonymous

Hello
I am on the same boat, I have a 3 yr old who
Doesn't eat except ( fries. At times) milk crackers
Cookies, chips, pound cake used to eat Pasta
And used to eat oat meal.
Since we traveled to Mexico over a year ago
He has negated food. ( he did get really sick on this trip)
After so many appointments with the pediatrician
And after changing pediatrician.
We were sent to a gastro due to bad constipation issue
And he send us to a Feeding specialist
( I didn't even know that feeding therapy existed till then)
I am now a mother of 4 never had this issue before only till now with this child.
So our feeding therapy started once a week, we r now on week 3 and it's all baby steps.... He is now leaning to food the food, kiss it and licking it.... Now we tried the bite and spit out
And still trying as he is not happy with this part.
Now the feeding therapist sent us over for occupational Therapy, and she sent us over to a child development center and even suggested a psychologist to pin point where the issue comes from... As I understand in order to feeding work we need to combine all those therapy.
My schedule now is 2-3 x a week
Very exhausting specially having 4 kids and a youngest being 10 months.... But I am not giving up. MOTHERS I have cried for days feeling guilt and blame. Wondering if I didn't do something or if I did something to cause all of this.
And i will say this to each of you!!!!
YOU ARE NOT A FAILURE.... Keep trying, go after all the resources available.. ( I just started as well) this week my son tried and had an yorgut (yoplaid)
We are humans. Motherhood does not come with an instruction manual!!!! Seek help
Breath Be strong!!!!! And the most important of all
Your LOVE will made your child feel better at any situation
Even this one!



May 06, 2015
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to pulling your hair out...8 yr old son
by: Anonymous

im totally praying for you and your son. You may want to consider a psychologist. Tge reason is at the age of 10, my mom choked on a vitamin and almost didn't make it. i was there but got so scared i ran and hid. i barely ate for months after that, fearing that i would choke too. i remember grabbing on the the table anytime i would swallow. i lost a lot of weight in a bad way. i finally talked with someone and realized i was doing this because of the fear. Maybe your son has some fear now regarding his throat and swallowing because of what what happened. Big hugs to you!

May 06, 2015
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My 8 year old son will not eat either.....
by: Anonymous

PUlling out my hair as I type.... My 8 yr old son says he swallowed a fingernail in school back in Feb and he hasn't swallowed any type of semi solid food since... Yogurt, pudding is still a go, but now he has himself convinced that even creamy peanut butter has chunks in it too.... We've been to er, doc, back to er, therapy, useless surgery ( they put him under to scope his throat as a means to prove to him he's ok, but it didn't work with him) back to therapy, back to the doc.... souped him up on protein drinks, but now he's lost another 8 pounds... my baby is skin and bones and our whole church has been praying and I just don't know what else to do for himm... his pedi says just make food and if he eats he eats, he says his hunger will eventually outweigh his fear....

I lost my dad to throat cancer in Dec, I was his only caregiver as he lived in our home, the boys saw him fading because he literally couldn't swallow, and so his bones stuck out just like my son's are starting to.... I feel so defeated, and as comforting a it is to see other people going through this with me, It's not the " how to fix this" I was looking for... :( I will more than likely be admitting him to the hospital for fluids and such on Friday, I will get back on and post what the docs did/said then.... Please, if you;r going through this and get answers to a cure, PLEASE don't forget to get back on here and share the new with us... PS, that belly tube post about the child not eating for over a year scared the crud out of me... Pray for my baby and I will be praying for yours as well.

May 06, 2015
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Looking for answers
by: Killsmethaticanthelphim

My boy is now 6 and hasn't eaten anything other than uncooked noodles, jam sandwichs since age 2.... and for the last 2 years he started eating chicken nuggets & dim sims now and then , it seems he can't shake the cold &flu he has had. For months now ,he is always sleepy but has bursts of energy though the day but when he gets home from school just wants to sleep.. We have 7 other kids who eat everything we give them , he will not even eat a lollie unless he knows he likes it and refuses to try anything he dosnt know,,

May 03, 2015
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4 yr old
by: Anonymous

my 4 yr old little boy is in almost the same boat i give him vitanims liquid of course but he wont drink out of a cup only a bottle and only one certan bottle he will only drink chocolate milk or pediasure he will only eat smooth gerber baby yogurt i have talked to his doctor repeatly with no answers so i took it in my own hands to find other specialist to get him tested still no answers im so worried and lost on what to do :/ but you are not alone at least your kid will eat french fries my kid eats nothing and barely yogurt

Apr 28, 2015
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for:my eight year old only eats...
by: Anonymous

My little guy eats three things however if he only ate junky stuff I would just as worried as you. How is his weight and over all health? Has the doc said anything about Bp, sugar or cholesterol issues? If there are health issues, you will have to take him to a nutritionist. If the doc says hes a normal weight with normal blood tests then I would say choose your battles carefully. Given the list of food he likes, he seems to like strong flavors with salty/sweet being at the top of the list. Since you have a busy life and little income I would say start small. Maybe on a day where you dont work, make your own pizza. Get just a few toppings and let the kids add them. Home made pizza is better than delivery. there are already made pizza shells and pizza sauce. Just grab some shredded cheese. Start with the toppings you know they like the first couple times. try to add veggies at a later date once you are successful.

Maybe salty sweet granola bars or healthier types of chips. Given him what he wants but slightly changed. I hope this helps! Best wishes!

Apr 28, 2015
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My eight year old only eats...
by: Anonymous

OK, so my eight year old boy does eat. Here is what he eats: Nutella sandwiches, Fritos, french fries, in and out burger (with everything, even the onions), potato chips, chocolate milk, brownies, waffles with chocolate chips, orange juice, boosted fruit juice, pizza. It is amazing how many kids love french fires, isn't it? But I am worried because, even though he doesn't sound as difficult and impossible as some of the kids mentioned here in terms of eating habits, he will not eat fruits, vegetables, or anything much else. Oh, and sometimes he will eat a pretzel or chicken nuggets. That is still not even close to what most kids his age eat. His classmates bring sandwiches with lettuce and cheese and interesting stuff and he either will not eat his lunch or will eat a Nutella sandwich or a delivered Subway lunch or a delivered pizza.

Ok, so this information doesn't sound so bad in this forum. But having mealtimes with him is frustrating. I eat everything and his older brother and sister eat most things. I have always exposed him to many foods. With great great difficulty he will eat half a banana. If I bribe him with playing a video game afterwards. And not everyday. So this doesn't sound so bad here but it adds more problems to a very busy day of a single mom with three kids working ful time (forty hours a week), with a college degree, on food stamps! I could make the food assistance last if only he ate like a ....normal kid. And no, I agree with most moms he, getting my kid hungry simply gets him cranky and weak. And he will still not eat. I will try over his vacation this thing called, "do not feed him junk food like chips, pizza, chicken nuggets and he will start eating like normal". Right now he has school and homework and I can't send him to school without eating.

At summer day camp, where he will have no HW or class work, just sports, I will try again.i agree with most comments and the common thread here is that these are extreme examples and doctors are not used to seeing them or are prepared to help solve these problems. It is an all consuming battle on the parents'' part and for single parents it is an all consuming never ending battle that they face alone, whether the dad left, was never around, or passed away. Life is not fair, but this feels so unfair. And yes, I too am blamed all the time for my son' bad eating habits, no eating habits, tantrums if he is angry or hungry. Never ends.

It is good to know I am not alone in all this. I know, many parents would gladly take a child like mine that requires no feeding tube or pedialite. Thank you all for posting something (minus some useless things from a few). I appreciate it. It gives me strength

Apr 24, 2015
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GAPS diet for healing
by: angathome

try the GAPS diet for healing sensory issues and much more Free webinar for limited time here: https://healthhomehappy.leadpages.net/sensory-processing-disorders/

Apr 23, 2015
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same pain here
by: Anonymous

Same pain is here my 3.5 yr old daughter does not eat anything from about 1 year what should i do for her she became weak as per day. I am so upset about this

Apr 03, 2015
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To: i feel your pain
by: Anonymous

i felt desperate reading your post. My son will at least take pediasure and currently eat 3 solids. I cant even imagine how you deal with your situation. ive been looking into some things regarding sensory and food and came across a hospital in Philadelphia that has a pediatric feeding and swallowing center. Its called CHOP.i have no idea of cost, insurance or anything. we are in another state and have an HMO so im not sure if we would be able to swing it but it may be something for you to look into.

I too do not understand why my son wont try anything new. he used to eat 5 things but hes taken 2 off the list and never gone back. Mo matter what we try you just cannot get him to put it in his mouth. people often dont get it. its not that hes being picky or bratty its that he just cannot find his way to accept it.
i truly hope that all our kiddos with this issue can find their way and that all us parents keep our sanity along the way.

Apr 02, 2015
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I feel your pain.
by: Anonymous

My son is 5 and hasn't eaten in over a year. Yes you read that correctly.. a year. He had a G-tube or feeding tube put in about 5 weeks ago. The ONLY thing he drinks is chocolate milk. NOTHING goes in his mouth. Not yogurt, crackers, french fries... nothing. We have tried everything you can imagine. From no chocolate milk to bribing him with his favorite things. He won't drink any nutritional shakes. Not powder or pre-made. Not half and half, nothing. No food. I don't understand how a child can survive on just milk. I'm hoping that some day this will change. But what do we do from here? No one can help us. No one can give me any answers. Why does he hate food and will he ever eat again?

Mar 28, 2015
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Mine to
by: NevadaMom

My son only eats vanilla pedicure as well.We get him to eat those puff things for baby's that melt fast in his mouth.He goes to feeding speach an of therapy's. My biggest helper has been bribery!!Try a bite an or even just touch it to your lips an you can do some thing she likes..I'm working on consistency.Its a long process they tell me.I'm a Mom an it scares me to death!Just know your not alone.

Mar 23, 2015
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Getting your child to take their meds
by: Anonymous

I know how you feel. Both me and my husband had to take time off to get our son to take his liquid meds. One of us held him down, the other one put it in his mouth. Obviously...he vomited it out. We did this a few times and had to pick up an additional prescription since we pretty much went through most of it! Next..I mixed it in with his milk in a bottle. I warmed it and made him drink it. He detected it right away...so I took out the syringe and said...either you drink your milk or you take the medicine with the syringe again. He drank his milk. After a few times of doing this, he took his milk with the meds without me threatening him. Tough love. Wish you the best.

Mar 14, 2015
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question for all of you
by: Anonymous

So my question is this. my son, who has SPD was sick. we were given meds and it was liquid. my son wont put anything in his mouth other than what he wants (which is extremely little and limited ). we used a dropper but of course you have to get past the teeth, which are clenched shut. once you forcefully get past the teeth the issue is swallowing. Thats the part where he spits it out and your left with a sick kid and wasted medicine. so im curious, what has worked and not worked for all of you? if you used a reward, what was it and how did you explain it? rewards with food wont work with this one because he doesn't care. thanks in advance

Mar 10, 2015
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Same same same situation here
by: Anonymous

My child has sensory disorder, has not been diagnosed with autism yet, but it has been 2 years he is on pediasure only and crackers, and one type of yougurt only the baby yougurt one, I lost my hope, therapies don't help!!! Please tell me when this will be over? How much more do I need to wait!!! I can't see the light !!! I need support and successful stories!!!

Mar 09, 2015
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To Gabi
by: Anonymous

Hi Gaby, i wish i could help but all i can feel is your pain. my 4 yr old has been on pediasure for over two years. its really hard to support financially. he only eats a couple kinds of fruit and a particular bread occasionally. We've never tried the "starve" method. I doubt we ever will because i know, in the case of our son, it would cause him to panic regarding food and would make things worse for us. I assume you have the doctor's OK to try this method and you are keeping him/her posted as to the progression.

Please know that there are others like you who feel the emotional stress from our children not willing to eat. Its more than being "picky", its something deep down within them that will not allow themselves to eat. Its not anyone's fault.

Mar 09, 2015
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My 4 year old used to eat and suddenly stopped
by: GABY

My 4 year old used to eat solid food such as rice, fufu, chicken, then he suddenly stopped. I put him on pediasure for over 2 years which cost me so much money. One day, I told him pedasure was gone and that there was only regularly whole milk, which is started drinking, then fruits, candy,( anything sweet). Doritos is about the only chips he eats. But, I want him to go back to eating solid food like he used to when he was 1 year old. Today makes it day 2 since I've started doing the "starve him and he will eventually eat" method and it doesnt seem to work. They say to do it for 4 days, but seeing my son weak as he is right now is really not making it easy. If you have a solution to this particular problem, PLEASE HELP!

Jan 07, 2015
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8 year old son still wont eat
by: mom of 8 year old

I too have same problem with my now 8 year old. Will only eat fries, grilled cheese and shredded cheese and pizza but only with the cheese off. I tried to get him to try something new tonight and he freaked..im very frustrated and concerned about my sons health..Dr has said for years he will eat in time....well when???

Dec 13, 2014
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My son is in the same boat
by: Anonymous

My son is 2 and a half years old now, and still doesn't chew, and doesn't like to eat. He has been seeing OT for more than a year and still no progress. I feel so stressed out every time we go OT, because feel like they blame me for not offer enough opportunities for my son to eat hard, crunchy foods and self feed himself. Only if they can come and see I have tons of crunchy, chewy snacks for him, but he just doesn't like to eat. I cut back the milk, no milk during day time, it does help either. He still eat 3 stage baby food, mashed potatoes, self pasta, and he eats while playing or watching TV, without distraction he won't eat. When he is very hungry, he swallows very fast the first few spoons, and then keep the food in his mouth for a long time. He was diagnosed with austism when he was 20 month old. I am thinking about let him and myself have a break from OT...sorry that I don't have any advice, just that I can feel how you feel

Dec 08, 2014
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Oops!
by: Anonymous

I should have mentioned my boy is 5 1/2 years old now.

Dec 08, 2014
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Same boat! It's a mystery:(....
by: Kelly

Hi Amy,
My youngest boy has never eaten either. He had heart surgery at 6 months, never progressed into solids, became very unwell, vomiting constantly, then he was diagnosed with respiratory issues and severe GERD (reflux), but since has never eaten, and like your child lives on vanilla pediadure and a specific vanilla yogurt, the creamy kind! We have ruled out autism, but do have an ODD diagnosis. We have ruled out genetic syndromes I think, there is nothing anatomically wrong, however he has had his tonsils and adenoids removed as they were massive. So it seems this started as a result of medical issues but has turned into a psychological and physiological inability to eat, lacking any oral motor skills normal kids would have and an amazing control over hunger, I.e. The "let them get hungry enough and they'll eat!" Does not apply to these kids, as it's as foreign to them as eating a piece of the rug! We have been to every doctor imaginable, and seen Every therapist and team there is in our province in Canada, and no one knows what to make of him.
Thanks for posting, I hope you share any progress you make.
Good luck!!

Nov 24, 2014
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No need for solids untill 24 months
by: Anonymous

My baby is 10 months old and ONLY drinks goatsmilk.

she has never had any form of food or water. Not even baby cereals. With that being said. She has never in her life suffered any form of illness. Not even through infection, cold, flue or any allergies. Babies, until 24 months, do not need solid food. Int fact, there organs such as their pancreas and kidneys are not fully developed yet to process any food other then natural milk.

i know this information is completely against the grain. But my child is the only living child i know who has never ever suffered any form of illness and its because i feed her only natural fresh goatsmilk and i intend to do so till the age of 2.

Take a leap of faith and feed your baby only GM. Them whats them thrive. It works!
Good luck

Nov 17, 2014
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check out RUSSEL SILVER SYNDROME
by: Anonymous

dear friends,
your child may have Russel Silver Syndrome. check it out. it is rare. go to the magic foundation to see if that is what he has. treatment is growth hormone among other things. good luck.

Nov 15, 2014
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to anonymous mom of one
by: Anonymous

I live in Illinois which has Early Intervention. Check in your state what early childhood programs are available. Start there because those types of services can help you get therapy for your child and diagnosis. Services are often billed on a sliding scale making it free or affordable for families with low income. Best wishes.

Nov 14, 2014
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helppp
by: Anonymous mom of one

My 19 month old was full term and weighed 5lbs and 12 ozs she now weights 19.5 lbs the doctor says she is underweight but she said to put her on breakfast essentials and to give her 5 cups fruit veggies each a day and she needs to eat 4-5 times n snacks but she will not hold still to do this...n she doesn't say a lot what should I di

Nov 07, 2014
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Nutrition Response Testing
by: Anonymous

I have my son who is 5 and only eats chips,granola bars, crackers and almost any baked good see a Nutrition response practitioner. He has had Kawasaki Disease, has apraxia speech disorder at one point was diagnosed with autism but now I think there saying not any longer. He has Gi issues that the Gi Doc can not explain. I've found and make from scratch even crackers that don't contain what he can't have and have seen crazy awesome results his speech and social skills have stumped his therapists. What my Nutrition Response Practitioner does is hard to explain I suggest googling it. Also I've heard some pretty awesome things about the GAPS Diet also. Any changes regarding quality of the foods our kids do eat helps.

Nov 04, 2014
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19 Month old living on Pediasure and Milk
by: Marissa

I also have a 19 month old son who does not eat solid food. For a few months he would eat yogurt and other baby food purees, but he never chewed anything solid. He has since decided he no longer will eat any puree or yogurt. He is living off of Pediasure and Milk. We have had him evaluated and has been going to feeding therapy (OT, speech, and now behavioral psychologist) since 11 months. Has anyone tried the intensive feeding clinics and if so, were they helpful?

Oct 21, 2014
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Smh
by: Tonya

To frustrated Lisa, yes they say it's my fault to but you try and try and things don't change! My som daughter told me to take everything from he and he will eat.Why would I starve my child. I didn't do it.

Oct 21, 2014
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Only eat fries
by: Tonya

My 13 year old only likes fries.I Dnt know what to do!!!He eats cereal,pancakes,fruits,chips and fries!!!I try to get him to eat a nugget today! He gag and try to make himself throw it up!Help please

Oct 19, 2014
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Not swallowing
by: Anonymous

My son was not eating at all. We had to purée all his food. He was diagnosed with oral dysphasia. It is a neurological issue where the brain is sending signals to the mouth to swallow but there is an inability for his brain to connect this process. It can be treated with therapy. He is 6 now and can eat soft foods like hot dogs, ham/turkey rolled up and cut, etc. I would talk to a pedi neuro for more insight. Good luck!

Oct 09, 2014
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to frustrated Lisa
by: Anonymous

You may want to contact early intervention services in your area and ask them how to go about getting a real diagnosis. We did this before our son turned 3yrs old. It helps because you have something concrete to show your insurance and the school your child will attend. The diagnosis is done in a play room with a doctor and therapists. My husband and I were in the room the whole time. All the evaluators had interactions with our son and then drew their conclusions. It was a good experience.


Oct 09, 2014
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Frustrated
by: Lisa

I have a five year old. He has never had anything but yogurt (at least it's stoney field organic), bananas, grapes, coco puffs cereal, pb and Nutella sandwichs. He is overweight because of the food choices and is hungry a lot. Well it is all carbs he is eating so of course. He will not even open his mouth to try any other food not mentioned and in fact will gag if we get near him with it. The doctor says she thinks he has a "autism like" sensory disorder, but he is not autistic. He was referred to OT, but insurance does not recognize this sensory disorder, it will cost me out of pocket 50 dollars for every 15 minutes on the clock. Of course most people thinks it's all my fault and say, he will eat it when he gets hungry enough! I'm lost and don't know what to do.

Oct 04, 2014
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same boat
by: little tree and me

No one else i know seems to understand. People advise us to just starve him...he will eat. Its ridiculous. It's painful cause you know hes hungry but there is something so innately powerful within him that wont allow him to eat. All I can say is that we have to keep looking for help because there is no one answer to fit all. For us, pediasure helps keep the weight on but all food is still a major challenge. I will keep looking but it helps to know that YOU guys understand.

Aug 28, 2014
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Buy this book!!
by: Anonymous

I hve a 4 year old son who has a sensory food aversion since he was a baby. That turned into a post traumatic food aversion after he choked when trying to swallow. It's been really hard and I know what you are all going through. He has been living on just pediasure for a month since they changed the packaging on his yogurt. I HIGHLY RECOMEND BUYING A BOOK CALLED "When Your Child Won't Eat or Eats Too Much: A Parents' Guide for the Prevention and Treatment of Feeding Problems in Young Children". It has given us some new techniques to try. Good luck....I know we need it.

Aug 08, 2014
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remove the excitotoxins and acrylomide
by: Anonymous

Please be sure you remove all neurotoxic foods! This has changed my son within 3 weeks. He loved french fries and chips, both of which cause HEATOX/Acrylamide. I realized I was treating my son to a double whammy with both excitotoxins and acrylamide. Both of these are a drain on glutathione. This must have been killing brain cells left and right. I gave him aspartame because I thought it would lessen the tantrams. Terrible. So, I'm cooking everything with no hidden MSG, juicing greens, herbs, and fruit and mixing it with decaf green tea. The decaf green tea really does increase GABA, which makes for a calm child.

Just began fermented foods again and removed the extra B12. I've got a totally different child in 3 weeks.

Jul 30, 2014
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thank you
by: Amy

Thank you penny and anonymous... Thats an interesting website penny, I will def look into SED more!!!

Jul 29, 2014
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5-Year-Old Autistic Son Won't Eat
by: Anonymous

My heart goes out to every one of you. I have a 5 year-old son with high-functioning autism that refuses nearly all foods. He survives on formula, and will drink up to 80 ounces of formula a day. He will eat only a few foods, mostly meat, cheese, and chips. At this point he is growing normally, but my pediatrician did have me switch his formula to an older baby/toddler formula for more accurate nutrition for his age. I routinely try new foods that are consistent in taste/texture with the types of foods he will eat. I have been able to expand his diet by a few foods each year. I also make sure to put out a variety of foods and invite him to try them all, typically finger foods such as fruits, raw vegetables, nuts, glasses of juice, etc. I have also found that I can hand feed him when he is occupied with something else, such as me reading him a story, watching television, or when someone is tickling his back and legs while I attempt to feed him. He will not eat from a utensil; I have to put it in his mouth using my fingers. I sometimes have success renaming foods to gain his curiosity (mashed potatoes are "clouds", and asparagus are "flowers"). I often reward him when he takes a bite of a new food with a "pirate coin" that he can use to purchase small toys or ipad games. I also invite competition and have "races" between him and his sister to see who can eat something faster. I also try to get him more exercise such as walking and swimming as activity will increase his appetite. I also have found that he will take gummy vitamins, so I supplement his diet with these. I never refuse to give him his formula because my goal is to keep my son healthy.

As a side note, I know there is a drug called ciproheptadine that can be prescribed to children to increase their appetite. My doctor prescribed this for my daughter's migraine headaches, and her appetite skyrocketed while on the drug. I hope that my experiences with my son help someone out there going through similar problems. Good luck to you all and never give up on those sweet children who wouldn't make it without our undying love and devotion.

Jul 29, 2014
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Sensory Eating Disorder
by: Penny

I hate to tell you but I've been dealing with this all my sons life. Doctor kept telling me he will start eating table food. Well he didn't, finally went to a bigger hospital where they tested him and found out he had sensory deprivation/dysphagia. Well he is 16 years old now, 5'7 and weighs 95lbs. He has OCD issues which I think are connected to his sensory deprivation. I have come across what they call SED (selective eating disorder) go to this website and you will see a lot of info.
http://mealtimehostage.com/2012/12/13/picky-eating-vs-selective-eating-disorder/

His counselor told me to get a neurophyscological evaluation done, that is my next step. I'm scared out of my mind trying to handle this all on my own, my husband, his dad, passed from cancer 8 years ago. I also have a diabetic daughter whose was diagnosed at 15 months, now she is 14 years old, but that is still a handful too. I pray to God for help everyday. I wish everyone luck with this. Do not give up, we can't......

Jul 21, 2014
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17 months boy not eat
by: Anonymous

my son is 17 months now he was premature, from beginning i have a problem with feeding, now he doesnt like food and he is not eating at all he just have bottle 3 times a day. does any one have same experience ?any solution?

Jul 17, 2014
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my grandbaby
by: Anonymous

Has anyone else ever had a problem with their baby keeping food down? Brinley will either spit it up little by little or throw it up all at once. I've tried adding a little rice cereal per her nutritionist and I've tried adding a lot per her pediatrician and neither has helped. What else should I do or try? She is 3 months old and is drinking soy dou to lactose intolerance.

Jul 12, 2014
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5Y/o undiagnosed daughter who is tube fed
by: Best children

Hello, i have a daughter who will be 5y/o in 2weeks, she refuse to eat since1year of age started tube feeds at 2years old. My princess have been to so many doctors and had so many test ran on her every single test have been normal. She is very well developed, great speech, walk great, everything about her is normal or above normal except the fact that she won't eat. My princess weighs 29lbs ans is a little short for her age, but all children don't grow the same. She constantly complains of belly aches especially after eating. She have been tested for everything i can think of every year, and still all test are negative. At age 1 she started having seizures since then are has had a total of 5 seizures with the most recent one being 2years ago, all EEG'S are normal, not on no meds. never found where seizures were coming from. Im very confused and unsure why no one can figure out why my daughter won't eat. She is on 12hr feeds through the night and just started bolus feeds 2days ago. She was without any feeding tube for 3 months and stated loosing weight because she won't eat, only willing on drinking 6oz of fluid a day and like food seasonings that's all. Anyone here with similar issues with their child. Need answers

Jul 07, 2014
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Cassandra-
by: Anonymous

'Take control as a parent'? Do you even have a child with sensory issues, or do you just want to rant against Big Business?

Your post wasn't the least bit helpful to me, Cassandra, and I came to this page through a search. If I were a thin-skinned person I'd be very upset by your response.

Jun 20, 2014
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Masther Nurture
by: Cassandra

It seems pretty obvious what deficiencies are lacking. Licking salty chips, really? The neurotoxins get ya craving, sure, but did you know that we need to get organic sodium, calcium, amino acids etc from Alkaline green foods? Celery, cucumber, roots and all Leaves blended or juiced or food processed are the tasty place to get your 'salt' whereas any bitter is balanced by either adding omega 3fattyacids (flax -chia sprouts or hempOil) Fats in moderation! Or 50%50% greens and Fruit, perfectly ripened before turning alcoholic.

Coconut and other oils like sesame or mustard can be used on skin, joints, and swish in teeth nightly (dont swallow oil ever) your children will be sick if they cant utilize quickexit fuel like warm banana and pear, potatoes, yams, anything they like: take control as a parent and realize this innocent kid is designed to like something, if You only try anew every day. I advise Against store-yogurts and meat esp that isnt grass-fed 100% (butter-ghee grass fed are Ok) You really dont want processed or dead things Stuck in their eluminative canal for dayyys. Keep Water in them first of all, never tap or impure with dye etc, have Probiotic or cultured foods, Raw or lightly frozen Fiber with Every meal, and a little weeds or green lettuce, spinach, parsley, beet Top etc Every day that Healing or Growth/green is what you want to see. Im telling you about Elimination Communication method for diaperless babes even: consumerism is a DEaTH trap. Do not expect to raise a Fully human child on Products or pus LONGTErm for good Breathe, touch and loving speech, fruits and roots fuel every cell. Water should never meet grease or acid inside, and if we are bloated with waste, experiencing hellish heartburn, enemas @ home or with a professional colonHydroherapist are life-giving and reverse many ailments.

Herbology is where the life is at. Remember you want to pass vibrant energy through your family to move and even rest well. Remember mother and Earth will save you and Not the patriarchy SY$tem of greedy snakes.. You have been given a powerful birthright. Together we must survive¡!

Jun 19, 2014
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same problem w 5 yr old!
by: Colleen

My son will only do pedisure and choc milk, fruit snacks, and once in a while catalog, usually dry. . I have talked to doctor's and nutritionalists and they say as long as he's not underweight there's nothing they can do. .. they referred me to a pediatric neurologist. .. that went no where. I believe he has a terrible anxiety about eating but idk... I worried what to do when he starts school next year :-(

Jun 19, 2014
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How to make my 17 months son love eating
by: Deepthi

Hi my son is 17 months old doesn't open his mouth for eating anything I have to forcible sit him hold his hands & feed, even though he is hungry he won't eat anything not even a chocolate, biscuit ice creams etc. I have to make a paste of food & make him to eat even though he doesn't like it. I don't understand how to make him love eating. He doent open his mouth for brushing also he thinks that if he open's his mouth I will feed him, he has a strong feeling that I feed him forcibly. please suggest me how to make my child eat without forcing him.

Jun 09, 2014
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in response
by: Brandi & Tomoka

Thank u for the advice on the pedisure. Im spending $540 monthly just on babyfood & soy formula alone, not to mention the cereal & water. The dr.s also were telling me for years there wasnt n e thing wrong with Tomoka. It was VERY frustrating to say the least. We havent received W.I.C. since he,was 2, due to the fact that he wouldnt eat solids nor could he tolerate dairy or milk. Tomoka n I received a COMBINED total of $25cost of living increase which took $125 away in my foodstamps. I dont understand this system thats supposed to b there for help, especially for those of us that have special needs. I too am disabled n a single parent, with NO FAMILY, nor form of support either financial oe emotional. I get so scared for us sometimes, that im not sure what we r going to do to make it by. This month I wasnt able to pay rent due to having to borrow against our disability checks to make it with the $20 cans of formula n diapers. Our truck broke down n I was ripped off by a mechanic for $500!! People r not what they used to b, n it seems no matter how hard I try... I cant come up. And even with his therapists weve had since he was 2, I never was told a thing about SPD. How is it our "PROFESSIONALS" we turn to arent even educated enough to help educate us with our most precious commodities???? My son is my world, n now im sitting & wondering where will we go n worse how will we get there? Beware parents or n e one in Daytona.... Aaron Heinsman, took mt money to fix my vehicle, knowing how hard my struggles were, n ripped me off n left us rideless! As I pray for answers n solutions I still pray for all of u going threw this ordeal with ur children. If n e one knows of a dairy free substitute for pediasure let me know. God bless to all!! Sorry for all the venting about my other problems... I just have no one else to talk to. N I dont want to c this guy take from one more person EVER!

Jun 08, 2014
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my 16 month son wont eat anything
by: Anonymous

My son is 16 months old son will not eat anything except avocado and yorgurt.He has been diagnosed with infantile spasms. He is slow in his development and I try hard to teach him to pick up his food but he does not understand how to grasp things in his hand. He drinks liquids and demands milk a lot but won't eat. He states off in space when I try to feed him. Its been going on for months and months I am worried he is not getting proper nutrition. I need help!!! Being to pediatrician they said he is fine and I know its not the case. Can someone give me a suggestion on what to do??

Jun 07, 2014
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Non eating grandson
by: Anonymous

I have a beautiful, gentle 19 month grandson who refuses to eat with a spoon.He also walks on his tippie toes.

He rarely if ever eats soupy or creamy meals.
I worry that he is lacking nutrition, and in the back of my mind I silently worry he may be slightly autistic, please help.
Worried grandmother.

Jun 06, 2014
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response
by: Amy

my daughter drinks 6 pediasure per day ( at least!) We use Walmarts version, Parents choice, which is $8 for a 6 pack of vanilla with fiber. It does contain dairy and unfortrunately alot of sugar. They have healthier, organic and even dairy free versions but you will be paying A LOT more for them... Good luck!

Jun 05, 2014
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to cindy from brandi
by: Anonymous

Thank u soooo very much for ur response. I will try the pedisure. I worry because he is so very set in his ways, & n e thing I try to introduce new things he just throws it across the room. But by ALL MEANS I will try that. If u got even just 6 lbs in a year its 6 more than my little Tomoka has gained in iver a year. I hope n pray with all that's in me it will work!! The grads soy formula & babyfoods run me $540 a month without the cereal n flouride water included. He also will not use toothpaste of n e flavor when brushing his teeth only water. Does pediasure have dairy in it? Tomoka is also allergic to meat n dairy. I wish u much luck with ur precious one too!!

Jun 05, 2014
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Brandi
by: Cindy

My son is very similar to your son, although he's not autistic; but he is 5 years old & has never had solid foods. He literally tasted 3 crumbs of vanilla bday cake & proceeded to throw it right up. The dr/nutritionist put him on Pediasure. He drinks 3-5 cans a day; they provide the calories & also the nutrients he needs. He thankfully gained 6 lbs this year & is up to 41 lbs at 42 inches. He only drinks Pediasure & vanilla yogurt. I mean it's not ideal & it's full of sugars, but he needs the calories, b/c he too is always running/on the go.

We've been to gastro/allergist, ped, etc. & there's nothing physically wrong, although he has sensory issues.

Jun 05, 2014
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Try this for non eating
by: Anonymous

Hello I have grandson with dandy-walker syndrome.He is 4 years old.I take green beans.carrots pudding,banannas,Fresh Broccolli,and milk.Drain the can goods and then wash them.I puree them until they are liquid. Then I stick them in a large pitcher. I go back and mix a little bit of powder chocolate milk w ith a couple packets of sugar splenda. Then I mix every thing together. I have a sippy cup that I enlarged the 2 holes a little bigger so it will flow better. Sometimes I have to get that intial taste into his mouth. But if he gets out of hand I sit it down on the ground.But eventually he well get himself and drink it. I have been trying different health bars. same way as the drink. Try to give them a little taste. If they don't want it sit it on a table that is about as high as there waist. Try fig bars. Make sure the are not allergic to any ingrediants you give them. Taste what ever you make them to see if it would be appealing to them. Do not try forcing these things in there mouth to the point there scared of them. Sometimes I think he appreciates getting them himself.

Jun 04, 2014
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my worries
by: Nina

Hello everyone I have two boys my oldest is 4 with speech delay and my youngest is 3 years old also with speech delay. My 3 years old son has autism and I believe spd also as well. I'm kind of worried about his eating. Well he eats only baby strawberry ceareal oatmeal with milk cold an doesn't want to drink out of cup. I also have to feed him his food. When he was like 9 months old he used to hold bottle or cup but after I took him to get more shots he came home didn't want to hold a cup or bottle no more. He will eat number 3 fruit and vegetables pureed baby food but not his favorite food. I've tried making really tasty foods and blending them he gags. Anything tasty he just won't eat. He also goes to special ed pre school and doesn't want to eat when they feed him. I hate that he doesn't feed himself. I'm wondering if he will ever grow out of this eating thing.

Jun 03, 2014
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havent seen any responces.....
by: Brandi & Tomoka

Is there NO ONE out there with the same issues me??? Im so SCARED n a single mom with out any family to turn to or ask for help. PLEASE if theres ANYONE out there thats been where I am & can offer some advice I would appreciate it soooo much

Jun 03, 2014
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need answers
by: Anonymous

has anyone gotten any answers as to why this is. My nephew is like this and I'm worried a bit as well as his parents etc. His dr. is concerned too because he is not gaining weight. what can be done? will he grow out of this ? please help

Jun 02, 2014
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For Jenn who posted on Mar 20 My 19 Month Old
by: WorriedMommie

Jenn I was wondering have you found out anything since you said you were awaiting an appt. My son is 19 months and your story fits mine almost completely. He too mainly only eats stage 3 baby food, yogurt, applesauce, and milk. The only table foods he will eat is grits, oatmeal, and mashed potatoes. He will eat those fine. I sometimes give him nibbles of my food and he eats fine, however, I have been unsuccessful in getting him to eat a plate for dinner of table foods. He also doesnt feed himself I have to feed him. He can and will eat with his hands only cookies and cheerios though. Self feeding with a spoon he will not do. He will sit with food in his mouth forever not swallowing. (table foods that is) Help or advice from a fellow mom experiencing similar would be so comforting. He has an upcoming well baby appt close to the end of this month where I will discuss this on going issue with his doctor. At last chk up I told her pretty much the same because I was concerned that he was only still eating stage 3 foods and at that time she said he was pretty normal for him since at the time he didnt have all of his teeth. I dont know. Just need answers I am as we all tend to be about our children very concerned.

Jun 02, 2014
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Julie M re: meds
by: Anonymous

Clonidine is a blood pressure medication and it will cause anyone with normal blood pressure to develop low blood pressure, and which you become dizzy and nauseous.

Maybe your son is also suffering gastro paresis. Many Autistic kids suffer from chronic stomach problems.. From constipation, ( which you should use Miralax) acid reflux to gastro paresis. This is just my personal belief from the research I've don't over the years, but I do not believe kids are born autistic. I do beleive Autism is vaccine induced in children who already suffer from a genetic disorder. MMR vaccine! I've read a lot of the research that's been done, and it's mighty strange to me how many premature children, including my own, have been diagnosed with Autism. I also know for a fact that a family won a lawsuit in a case of a child receiving 9'vaccines in one appointment and developing Autism directly following. The specialist at Boston Children's said that the child already had a mitochondrial disease - in their opinion. And that's why they developed Autism like symptoms. It was Autism. Anyway, my point is, if we can discover what other problems, aside from Autism, that our children suffer. We can help them improve physically and behaviorally. Please look into vitamin B, omega 3 and vitamin C treatment for your child as well. This can improve your child's Austism symptoms a great deal! I'm amazed just after a few weeks of vitamin therapy with my daughter. Vitamin B is very important!

May 31, 2014
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Autistic 5 yr old. will puke if he swallows even a lump of food
by: Brandi & Tomoka

My autistic son only drinks liquids. He will chew but spit out certain foods like bread, hot dogs, bologna & chips of sorts. He survives on graduates soy formula with baby cereal & stage 2 baby fruits in a bottle about every 2 to 3 hours. He will take stage 2 certain veggies by spoon but thats it. Hes allergic to dairy & meats. He will puke if there is any sort of lump even if its,a soft one. Im so worried about him ending up needing a feeding tube because I know he would tear it out. He cant even stand a rag onhis shirts. Hes non stop moving & burns off every thing he takes in. I feed him bottles even in his sleep twice a night to try to keep some calories not ran off. Ive had him to gastrologists and an upper gi done. Theres nothing wrong to cause this disorder. Im scared he will become unhealthy. He is 3'6 & weighs 36lbs. He would NEVER leave a stint for a feeding tube alone if it comes to that. What do I dobfor him???

May 28, 2014
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my son 18 years not eating
by: shaikha

He doesn't like eating. .he lives on little juices. ..any body can help

May 27, 2014
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8 year old son
by: Anonymous

Hi , I have a son who is almost 9. He hasn't eaten anything other than baby cereal since the age of two. I have been back and forth to doctors , speech therapist , occupational therapist Everyone. Nothing has helped. He has a problem with throwing up. He has had this issue since the age of two. He has never eaten meat. The only time he had veggies and fruit was when I started him on soft food. He was under weight at the age of 3. Now he is 133 lbs. he put on weight rapidly. The weight gain is due to the fact that his diet consists of only one kind of baby cereal, chips only lays plain, chocolate bar but only a kit Kay or aero. He can eat a grilled cheese made home or mcdonalds. And McDonald fries. He is supper picky and gags at the sight of any food we r eating. His body is storing fat because of his bad eating habits and not knowing when he is going to eat. He can go hrs without any food. I have been waiting right years for someone to help me. I have went to anyone who could help. Nothing works. Does anyone have a child as bad as mine. Thanks

May 23, 2014
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11 year old son born Micropremie
by: julie m

my son is now 11 very under weight already for his height and age over the last two months we have been giving him Clonidine to help him sleep and shortly after he began losing his appetite and now the last month he throws up the very little he does eat. I am not sure they are related,

His GI thinks not that it might be Reflux or something we are giving him liquid zantac for that but he literally wont eat. if I get 4 bites in him he throws them up. what can I give for weight gain or to induce appetite

May 10, 2014
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my 3 yr old with a gtube
by: joseph

My daughter was born with Pierre Robin syndrome, and she has a g tube, and she also only drink vanilla pediasure, everything else she lucks as well, now she has acid reflux and we are going threw hell, please if there's anyone out there that knows what's good for a 3 yr old with a bad cough , please let me know cause every med. Is 4 yrs and up

Apr 30, 2014
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about your daughter
by: Anonymous

Hi,

I have a 6 year old. She was a year ago diagnosed with ADHD. She is an extremely picky eater. Also this past month finally was diagnosed with being autistic and is on the low spectrum.

I have done research online myself and your daughter may have a sensory problem.

I have found this website to be a bit helpful.

Definitely if it continues have your daughter evaluated by a specialist which you can get a referral through your pediatrician. Bring up the fact about a sensory problem.

This website has sosme good ideas for the extremely pickiest of eaters my daughter included.

It has helped some but my daughter will now eat vegetables. Which is a huge thing for her.

http://www.autismspeaks.org/family-services/health-and-wellness/nutrition/seven-ways-help-picky-eater-autism

check out the website. Hope it helps. Good luck with your daughter. Parenting is a huge and tough journey so take it easy and relax don't get yourself too overwhelmed.


Apr 30, 2014
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RESPOSE
by: Amy

Kelly, i would get him an OT eval asap! That is usually the age the symptoms start so the earlier you get intervention, the better!
Mom of the 18 month old- I would recommend waiting until his mouth heals first then if he isnt eating still, get him evaluated. For now i would give more soft foods than pediasure- you dont want him to get hooked on drinking his meals as that is really hard to break them of that habit...
Good luck!

Apr 29, 2014
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25 year old with down syndrome refuses to try any thing except oatmeal cakes
by: Anonymous

.My son is 25 years old and simply refuses to eat anything except Little Debbie oatmeal pies,we have tried everthing,just wondering if any one has this problem or answer to it.Thanks

Apr 24, 2014
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18mo old not eating after falling down stairs
by: Jersey Mom

Hi... I am happy I came across this website. My son has always been a picky eater but would eat. Last Monday we both fell down the stairs and he busted his mouth- so now for the past couple of days he will not put any food in his mouth. He might put a couple of pieces but will spit it out. I called the Pediatrician and they told me to get Pediasure so that he will continue to get the nutrients and calories. However, I feel like that might have been a bad idea. All he wants is liquid- this am I was able to give him a couple of spoonfuls of yogurt but that was it. His usual foods are yogurt, crackers, pasta (loves), french fries, potatoes, peas, meatballs, etc- I am just praying that he isn't developing some kind of eating disorder because of him busting his bottom lip while falling down the stairs. Does anyone have any advice? Should I just give it some time since he just injured himself. Please any feedback is appreciated!

makeledjones@gmail.com
TX!

Apr 16, 2014
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WORRIED MOMMY
by: KELLY

HELLO MY NAME IS KELLY. I HAVE 3 CHILDREN 2 OF WHICH ARE ON THE AUSTISM SPECTRUM. MY THIRD CHILD AND YOUNGEST WHO IS 25 MONTHS OLD IS DEMINSTRATING SOME VERY WORRING BEHAVIORS SUCH AS NOT EATING, CRIES AND SAYS OUCH WHEN PICKED UP OR HELD. WHEN HE HAS A TANTRUM THERE IS NO CALMING HIM. HE IS SENSITIVE TO NEW OR SUDDEN SOUNDS. HE IS STARTING TO STACK AND LINES HIS BLOCKS AND CARS. IM NOT SURE WHAT TO DO ABOUT HIM SEEMING TO BE PAINED WHEN TOUCHED AND REALLY HAVE NO CLUE OF WHAT TO DO ABOUT EATING. MY TWO GIRLS WHO ARE ON THE SPECTRUM ONE WHO HAS aSPERGERS AND MY YOUNGEST GIRL WHO HAS PDD , ARE COMPLETELY DIFFERENT, WITH MY SON THIS IS ALL VERY NEW AND DONT KNOW WHAT TO DO. CAN OMEBODY GIVE ME SOME INSIGHT OF WHAT MIGHT BE WRONG WITH MY SON AND HOW TO GO ABOUT GETTING HIM TO EAT.

Mar 21, 2014
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For Jenn
by: Amy

Hi Jenn! My daughter, now 9, was diagnosed w SPD at 2 1/2 years old. She was diagnosed ADHD at 5 but not ASD. She has profound oral sensory defensiveness and will eat very little beyond white toast and nibbles of crackers. Other than that, you would not know she is a special needs child. She is extremely social, speaks and sings beautifully and can express her wants and needs. My son, 3 1/2, was diagnosed with SPD as well as ASD but now its looking like he may just be profoundly SPD although they say its too soon to really know. My son has behaviors that my daugther did not, such as- rocking, repetitive motions and words, stacking objects in a line and having much difficulty transitioning so there may be some ASD in him. from what I have learned from the OT and SLT's, while ASD kids most likely have some sort of sensory issue- SPD kids are rarely ASD. Thats why diagnosis is difficult at young ages. Hope that helps! :)

Mar 20, 2014
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One more thing
by: Jenn

Sorry for my double post earlier.

My question to parents on here are all of your children autistic? Is Psd separate from autism?

My son is very interactive, loving, social, and doesn't show any other issues aside from not being very communicative verbally for his age.

Just wondering what other parent's experience is?

Thank you

Mar 20, 2014
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My 19 month old
by: Jenn

We are awaiting our appointment at the local developmental center for our 19 month old. Our child lives off of baby food, baby cereal, yogurt and milk. Fortunately for us, he is robust and healthy which is why I don't think his Dr. was concerned.
After our first assessment at our house, that afternoon I happened to give my son some small oyster crackers. He started biting them and eating. That was his first time eating any food other than his constants. That night he ate some pasta. This was a first for us. I was ecstatic. He continues to eat the crackers, but won't eat pasta. A couple of times he has gagged and puked on the crackers. Once he ate some scrambled egg too, but wouldn't the next time. Soo mystifying to me. He has loved yogurt, and I started giving him some Activia which has chunks in it. Only a few times has he caught the fact that it has pieces, and he will pull them out of his mouth but not gag and puke. I gave him some toast with butter tonight, and he nibbled a little. He was at least trying it. I am so concerned, as they say his speech may have been affected by not eating. His vocabulary is low for his age, and I am so worried. I have heard stories from others that one day it just seems to click, but I know from my daughter what fear in a little one can do. She had a couple of very hard stools when she was little and that kicked off an almost three year battle of constipation for her that took forever to overcome. I will be asking at the center for a referral to a pediatric GI or whoever does swallow tests.
One tip I have that I noticed is that when I feed him a pretty thick mixture of cereal and baby food he starts to make his gagging noise and I rub my hand under his chin and it seems to make him stop. Almost like a distraction so they aren't focusing on what is in their mouth.

I sound positive, but really I feel so defeated. We have made some minor steps recently and that is exciting, but I know we have a long way to go.

Whomever has little ones even at 12 months, push it with your Dr. I wish I had. I feel like we have lost 9 months worth of time we could have been working with an OT.

Good luck to you all!


Mar 17, 2014
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3.5 year old only eats stage 3 baby foods
by: Anonymous

Hello, I have a beautiful 3 and a half year old boy that does not eat any thing with texture. He currently eats stage 3 baby food, yogurt and baby rice cereal. He will not try any thing with texture or put it near his mouth. We had feeding therapy for a year and still no progress. My son has autism and spd. It is so frustrating and i hope that one day he will try and eat some real food. All I can say is hang in there, I feel your pain. Keep trying and don't give up. Many blessings to you and your family :)

Mar 17, 2014
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5 yo son not eating
by: Anonymous

My 5 yo son was not really interested in food since i can remember. He was not like other babies who grabbed food when they see it. Now he still has a very limited diet. He only eats bread but throws away the crust and only eats the white part. When he eats cookies he only eats the pale ones. He doesnt like any kind of wet gooey food. And he has specific brands he want to eat any other brand or change in taste will not eat. I cant sneak any good food in his regutlar diet because he can tell even the slightest chamge in taste and stop eating. He is on pediasure and dibencozide. He is foing to start 1st grade and im afraid he wont get enough from what he is eating to sustain him for a whole day schooling.

Mar 14, 2014
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worried momma #2
by: Anonymous

Dear worried momma...
I'm in almost the exact situation as you. My son was always above weight in percentile from birth. He got a stomach bug 8 months ago and that was it for eating. He lost 10 pounds in 8 months and you can imagine how frightening that was for me. I also let him eat candy for breakfast because I was grateful for the calories in him if he ate it. When I asked him why he won't eat he said he felt sick. He also developed constipation and would only poop 1 time a week. Pediatrician recommended pediatric gi doctor. We went and are in the process of trying her recommendations. She said most stomach issues in children stem from diet. She put him on ..no juice..asked him to try 1 new fruit or veg a week and low if any lactose. He is on a soluble prevacid daily and fiber gummy for constipation. It is slowly making things better. One he started to poop regularly he ate more and has gained 4 lbs. It's still a daily battle and slow process though. My advice is try a gi doc. Best of luck to you and sorry my post is so long but I find it comforting when I read posts and realize I'm not alone. Wanted u to feel the same. Take care

Mar 08, 2014
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To Desiree
by: Anonymous

We're going through the same thing with our toddler (RSV and all) and was recently told by 2nd dietician (who we really like) not to get frustrated with the OT process. Success can't be measured in the short term. It can take a long time, sometimes years, to accomplish the 30+ steps to successful eating. I know it's easier said than done. The key is to have a good OT.

Feb 14, 2014
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For Jen
by: Amy

I would start going to a feeding therapist ASAP so she can reverse the fear of eating in your daughter... The sooner she starts, the better since with your daughter the refusal of food has to do with the trauma that occurred w the cough drop. Call the nearest big children's hospital to you and speak with their OT/SLT (occupational therapy and speech language therapist/pathologist) dept and they can direct you in the right wat to go! Good luck!

Feb 10, 2014
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To Michelle mother of Ezra
by: Anonymous

My friends son, mikie, has noonan syndrome. Her name is Selina, and you can contact her at selinybeeny80@gmail.com. She would love to talk with you!
Shandie

Feb 08, 2014
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My 3yr old choked, and now refuses all solid foods! HELP ME!
by: Jen

I'm pretty sure that I am going to lose my mind! My 3yr old choked on a cough drop about a week ago, she has always been a small child 29lbs, but omg I'm losing it! She used to eat literally all day! And now.... she has became a licker. She will dip a fry into ranch and only lick the ranch. ABSOULTLEY ZERO solid food. I've taken her to a ent and her pediatrician numerous times in the last week. She tells me she is scared to swallow. She is basically living on pedi sure shakes. Can someone help me/us. I feel I'm going to have a nervous breakdown. Thank you for reading. Jen kyser stl, mo

Feb 06, 2014
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My 16 year old has lived off of pasta since 2
by: Diane

Hello everyone! When I accidentally clicked on this link, I could not believe my eyes. I thought that I was the only one that has had to live through this. My daughter is 16 years old. She does not worry about weight but then again she is very thin.Since she was 2 years old she has lived off pasta and I can tell when she's getting sick of it because she starts eating french fries. She always picks the brown, burnt, or crunchy pieces and throws them away. She will occasionally eat scrambled eggs but she throws most of it out because she doesn't like how it looks. She will not drink the last few ounces of her juice or milk because she says it looks "weird." Her physician has told me that a child will never die of starvation as long as food is available. She will not even taste the healthy meals that the rest of us are eating. She will eat at O'Charley's but she only eats their pasta and she puts all the parsley on her napkin.She had her first date last night and when he asked her where she wanted to eat she responded with "McDonald's." I can see her picking the burnt edges off of her fries. She see's a nutritionists but and counselor but she is in perfect health but I still worry myself sick.We go through the same thing with medicines. She says that medicines make her feel as if she is a "chemical."
Good luck everyone.Since she was old enough to talk she has told me how bad she hurts all over. I have taken her to every specialists possible and now we're starting on another round. My life is spent researching this problem.

Feb 05, 2014
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Daughter Phobic of New Foods
by: Laura

My 5 year old daughter has struggled with her eating since about a year old (she actually ate really well before that). The only coincidence is that's around the time I weaned her. We've had her checked out by a pediatric neurologist. Nothing really going on here except an eating issue. Recommendation was OT from someone who specializes in food. The last OT we saw forced her to eat, but I'm willing to try someone new. My specific reason for posting is that I was recently diagnosed with Celiac Disease. In my quest for information and recipes, I came across this book: The Kid-Friendly ADHD & Autism Cookbook: The Ultimate Guide to the Gluten-Free, Casein-Free Diet. Before you discount this if your child does not have ADHD or Autism, please let me explain. We are not dealing with either one of those (well, she's young for an ADHD diagnosis). The book was more for recipe ideas for myself initially. Until I started reading. This book is something every parent of a child with eating issues should read. It may or may not apply, but you should give it a glance. They talk about food sensitivities (don't have to have an allergy or medical diagnosis for a sensitivity) and especially casein (from milk) and gluten (from wheat, barley, rye). These foods can have an opioid effect in children who are unable to fully digest them. This can cause 2 things (addiction to the food, AND sensory issues which make it difficult for them to tolerate other textures, tastes...and a host of other sensory behaviors). They talk about how to break the cycle (initial sneaky substitutions, supplements because usually deficiencies result which exacerbate the effects of the food issues, etc.). I'm not saying it will solve all problems for everyone, but it is a very interesting read and covers so much more than I have mentioned. It's a great resource. There are also recipes. I tried the pancakes. I will make them again, but remember next time to toast the quinoa flour first (it's pretty bad raw). Otherwise, they were delicious. My son loved them (but he's not the one I'm concerned about). I think if I toast the quinoa flour, I can get my daughter to try them, too (the smell and taste of untoasted is very strong; live and learn). My daughter also has GI issues (we're getting her tested for Celiac since I have it), and the book goes over so many other culprits for food sensitivities/allergies and behavioral issues. Check it out free at your library. I did that, and then purchased it when I realized that it was something I could use for my gluten-free eating as well as helping my daughter. Good luck to you all. I hope we all have wonderful eaters in our not-too-distant futures. : )

Jan 26, 2014
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My 19 month old stopped eating
by: Desiree

My 19 month old son with ds used to eat solids, although not all foods but he was gaining weight. Then he got rsv and it's been a month and he went from wanting food to now not showing any interest. In the meantime I used pediasure to supplement bc he was losing so much weight. His ot wants me to do the SOS picky eater program but I don't see it working. All he wants is pediasure out of the bottle. He will lick foods and take 1-2 bites but constantly requests pediasure. Have any of your children gone from being an ok eater to not eating? Any suggestions for me? I'm so frustrated although I try not to show him plus I have a 2 month old...

Jan 24, 2014
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8 year old daughter lost weight
by: Anonymous

My daughter is 8 years old. She inks takes liquids. She chews food and spits it out and won't swallow. Doctors checked get our and ran test and going nothing wrong. Get saliva and she keeps saying something stuck in her throat. Doctors found nothing. I'm scared for my little girl. I'm thinking maybe someone or something happened to get. We asked her and she said no. I bought ensure and she drinks it. But what confused me is she will eat junk food. Candy or soft chips. I really don't know what to do. She is losing to much weight that I get sick from my stomach. I cry and pray. I really need help

Jan 23, 2014
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6 year old son - Survives on milk w CIB in a baby bottle
by: Boopster

This is my 3rd or 4th post re this topic on this board...
Wanted all to know they're not alone.
My son has a DX of profound childhood apraxia of speech
He only speaks a few words. We discovered slight tongue tie at 1 yr & he had surgery 2 correct it
We have seen numerous private feeding therapists to address this & even took a month from work to make a 1.5 hour drive each way to St Joseph's Feeding Clinic. Our son is still just as bad as ever. He will only drink milk with carnation instant from a baby bottle only ...presented in any other way leads to complete refusals. Once in awhile he'll eat applesauce, soft cereal bars, yogurt & toast. All must b brand specific.
I get really peeved when insensitive & Unknowledgeable folks refer to him as a picky eater. Picky eater?
We've actually gone thru stages where he'd rather starve himself than eat. We manage to keep him on growth chart w milk w CIB...otherwise we'd be looking at a feeding tube
It's very scary, worrisome & overwhelming
We are stressed to the max & have tried EVERYTHING !
He has had every test imaginable...all genetics were fine...2 endoscopies were fine...MRI/EEG fine...
Oh did I mention he doesn't sleep either
We've had 3 sleep studies . He just had tonsils & adenoids removed. Still doesn't sleep well. DX-Ed with Central asleep Apnea
6 year old boy who goes into fight/flight mode over food
We are at our wits end & don't know what to do anymore

Jan 23, 2014
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exactly the same
by: Jacklynn

my 2 year old son is the exact same way. He was a very healthy little boy until 10 months old then he just stopped eating. He also lives of a g tube that feeds him vanilla pediasure just as your daughter does. Also its very strange but all my son will eat too is French fries and pudding. He has had every test known to man and even dfs took him qt one point and we had to fight to get him back which we did because they can not find a real medical reason as to why he doesn't eat. They say its a medical issue but they don't know what kind of medical issue. Very stressful. I just think its odd for them to not know why so many children do this. In my research I have found thousands of kids like this with no diagnosis. Lost and confused

Jan 19, 2014
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Doesn't eat anything
by: Anonymous

Hello. I have a 19 month old with a food aversion. We have been in feeding therapy for 7 months. We have had little luck. He will not close his mouth around food. He will only lick Doritos and triscuits. He survives on formula. I would love to hear suggestions or talk to people in similar situations. My email is rayfamily4512@yahoo.com. I feel so defeated most days

Jan 19, 2014
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Ezra
by: Michelle

I have recently taken my son to the cardiologist for his check up. He has a pulmonary stenosis. He looked at Ezra symptoms and said he thinks Ezra might gave Noonan Syndrome. Does anyone know of someone or has a child with Noonan Syndrome. Ezra is still not eating solids only drinking Pediasure.

Jan 16, 2014
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food neophobia
by: Anonymous

FOOD NEO-PHOBIA. most of your comments look like my life, switching to only about 3/4 foods that I will/can eat w/o vomiting/crying/panicking ect.. this started at 4. but can start as early as 2 years old. there is no cure.

Jan 15, 2014
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help my 5 yr old does NOT eat
by: Anonymous

My daughter is 5 year old does not eat any solid foods. She will only drink liquids like Pediasure, yogurts, juice,.watee. I have taken her to a Pediatrician. They stated she doesnt have anything wrong. I honestly dont know what to do, please HELP!!!

Jan 13, 2014
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repeating my same story
by: Anonymous

When I was a child I had eating problems, I didn't like to eat!, I hated the food, I was a skinny child, this continued until I was 20 years old!... but I think the problem it was because my mother made so much pressure to eat, that I was stressed when I was watching the food, so later becomes a bad habit of not eating.

Now my daughter is having the same problem!...this makes me crazy!, she is very slim, repeating the same situation of my youth.
I have 5 years giving her pediasure, chicken soups, and bread, she was accepting meat but have a month that she doesn't want to eat! just pediasure, m&m;s, and nutella...I saw that Im repeating the same procedure of my mom, doing to much pressure to my daughter...I will try to be less stressed on it...my daughter told me a list of food that she will be agree to eat, I will see if works.

Jan 10, 2014
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Worried Mama
by: Anonymous

My 5 year old has always been an extremely picky eater, but since he started Kindergarten this year he has dropped allot of the foods he would eat. We are down to 3 things: chicken nuggets, spaghetti, and m&ms. I give him vitamins and he occasionally will drink milk for me, but lately he eats very little and complains that his stomach hurts or he's gonna throw up. We went to a feeding therapist and after my so told her he wasn't going to touch any of the food, the food therapist recommended we see a pediatric GI dr and an occupational therapist to determine if he has sensory integration disorder. I'm so desperate just for him to eat that I let him eat m&ms before he goes to school just so he has something in his stomach because he doesn't eat during the day. I feel like he feels bad all of the time cause he's always hungry.hoping to get some answers soon.

Jan 08, 2014
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Responses
by: Amy

I feel for everyone who writes on this post... we are now 7 years into the non eating thing (my DD will be 9 in 2 weeks!) and it continues to be a struggle. While my daughter CAN physically eat (there are no obstructions or physical reasons for her to not eat)she has told me many times that food tastes so horrible and disgusting to her, like us eating dog poop or a shoe! My hope is that as peer pressure begins it will propel her to eat more things for the sake of fitting in. i have a friend who went through the same thing with her son and once he became an adolescent he ate more due to peer pressure...he is still picky but at least can eat some regular meals now. Praying for you all!

Jan 08, 2014
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To Cindy.....
by: Beth

Are you still on here? I would love to talk to you. I read about your son on your Nov. 3 post, and thought you were talking about my son. lol. They could be twins. Please email me bethbrown76@gmail.com

Thank you!!

Jan 08, 2014
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Twins
by: Foods yuck

My 8 year old twins have never eaten a proper meal.not interested in food.only love chocolate and custard.very energetic .the girls are short so it has affected there height as well as there weight.Have been told since they were tube fed as babies they may not thrive.You need to see a throat speciist, my daughters throats were to small,making it impossible to swallow .drs don't yet know weather to operate or not yet as they r so young.massive risks involved.good luck.remember mothers are ways right,fight for your child/children .never ever give up.your their voice . Lots of love

Jan 08, 2014
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6 YEAR OLD TWINS
by: Vomit ville

My six year old son ,cannot swallow food,chews it for 20minutes or more,then when he finally swallows it takes same time for next peace and so on.feeding lasts up to two hours ,only for him to vomit it all up at the end.the other twin sometimes vomits,this sets the other twin into vomit mode.help have no answers and am a single mother with four older children.

Jan 03, 2014
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please help me
by: sydney howard

My sons almost 2 he barely eats. Gets nutrition from carnaions. Been to feeding therphy had gi scope done we dont know what to do he only eats a few breads or grain products or yogurt & not alot & not all the time. i know children with mental disorders have trouble eating but i know in my heart theres nothing wrong with him like that. If anyone has any info w/ a child this young please share my email is sydh25@gmail.com thank you & god bless!

Jan 01, 2014
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Not eating alot
by: Anonymous

My daughter can eat like 2 or 3 bites out of her food she says she can't eat the whole thing because she feels like she's gonna throw up but she says she's always hungry but can't eat I need advice !! comment please

Dec 28, 2013
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My grand daughter
by: Anonymous

My grand daughter was a very good eater ,candy never had enough this year after the flu shot she got a cold that lasted few month and lost appetite for everything no breakfast only juice in school for lunch yogurt and the candy she holds to it
Don't know what to do pediatrician is out because they don't do anything .thank you so much for any suggestions

Dec 24, 2013
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I wasn't ever hungry
by: Linda

I was six, tall and weighed 32 pounds. It was only when the dr. threatened to force feed me that I got scared enough to eat. My parents tried everything. It was only as I got older that I realized that I never felt hungry, which explained why I didn't eat. I guess all of what worked for me is a repeat of other lists. Make funny names for things...a peanut butter and banana sandwich renamed a monkey sandwich and sprinkled with sugar was suddenly edible. Introducing a new food with only 1 piece, then building up to 2 pieces and so on. I ate lima beans this way and still love them! My parents would let me eat baby food, even though I was 8. Trading tv time for eating was great once I liked a show. Good luck!

Dec 21, 2013
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Chrishena, perhaps
by: Anonymous

Hi, I'm sorry you're going through this with your daughter. With my son we ended up seeing a developmental physician who gave a number of tests (more psychological, physical) and she had an intense interview with me and then they diagnosed him w/ SPD (Sensory Processing Disorder). There is nothing physically wrong with my 4 1/2 year old; he just will NOT chew/eat ANYTHING but Pediasure, smooth, vanilla yogurt.

Also try calling your local hospitals and ask if they have a feeding program.

Dec 21, 2013
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6 year old not eating
by: Chrishena

My 6 yr old daughter was a 33 week premie. Resently she has started not eating and will even throw a fit until she makes herself throw up. She holds food in her mouth and says she can't swallow. We live near The Woodlands, Texas so I'm wondering how we find out if SPD is whats veen wrong with her. She weighs 33 lbs and has for years. My hidbznd and I have taken her to GI doctors and had so many test run that are all normal. chrishenacampbell@yahoo.com is my email if anyone has any suggestions on what we can do. Its frusterating the whole family and has us so worried.

Dec 06, 2013
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Ezra
by: Michelle

Hello everyone. Ezra will be 2 on the 17th. He still only drinks Pediasure with 3 spoons of rice porridge in a bottle. I have been trying to get him to drink out of a sippy cup or use a straw but that just freaks him out. Also when he sees his bottle he throws up. When he is done throwing up he starts to drink, you dare take that bottle away. Trouble. I have to hide the bottle before feeding him and then give it to him quickly so that he doesn't throw up. That way the floor, myself and Ezra are free from vomit.

Dec 02, 2013
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response for barbara and concerned grandmother
by: Amy

Barbara- I would suggest getting your daughter evaluated for SPD asap. Th earlier the intervention, the better. My daughter, who is almost 9 now, is very bright and made honor roll last quarter. SPD kids can be exceedingly bright (I have a SPD niece with a genius IQ!) so don't let that deter you from having her checked.
Concerned grandmother- All Children's hospital in St Pete has a program called Happy mealtimes so look into that for your grandchild! Wish you all the best of luck!

Dec 01, 2013
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Wants to eat, but cannot.
by: Concerned Grandmother

I have two grandchildren who are such a challenge. He will eat most fruits, bread products, yoghurt. She eats mainly dry cereal, pretzels, chips and peanut butter. You can see that he really wants to try new foods, but he cannot make himself do it. If we talk him into it, he throws up. I am looking for help in the Tampa, Fl to Orlando, Fl area......or even beyond. Thank you for any suggestions.

Nov 20, 2013
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Got diagnosed
by: Tiffmama3

I wrote way back on April 18th, thinking how my son had a very limited appetite!! And was concerned what to do and found this site and wrote and which is crazy now to think all this time...now it makes sense! My son is 31 months tomorrow and he about a month ago got diagnosed with sensory processing disorder and 2 weeks ago autism spectrum disorder. I obviously knew he had some quirks or specifics but Dr kept saying he'll eat when he's hungry. Well did not work...back fired. Now my son will have occupational therapy, sensory and behavior therapy, and speech, also wrap around services! Good luck to all you other moms out there! Support each other! :)

Nov 20, 2013
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my picky girl
by: BARBARA

NOT SURE WHEN YOU WROTE THIS BUT WHAT STRUCK WAS THE WAY YOUR DAUGHTER? WAS SO PICKY ABOUT THE FRIES AND THE ENDS, BROWN ETC. MINE THE SAME WAY AND SO SO PICKY I FEEL LIKE SCREAMING AND FEEL LIKE SHE IS GOING TO WASTE AWAY.PLEASE EMAIL ME happyg.ma@yahoo.com or anyone that can help i went over the sensory disorder checklists and she is none of these as a matter of fact she is overly smart for her age and very articulate

Nov 10, 2013
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Picky eater vs feeding disorder
by: Boopster

To the poster below re picky eater advice
Thanks...but many iof our children w SPD & other challenges are not picky eaters
My son has a feeding disorder
It has taken me years to educate friends & family
Our top Docs at 2 of the top feeding clinics in the country told us to have folks call them for clarification
I'm sure your advice will be helpful to kids who fall in the picky eater category , but my guess is if most posters here had kids who were picky eaters ...they wouldn't need this site

Nov 10, 2013
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Kelly Q
by: Cindy

Kelly, Q; what does flu vaccines have to do with it? I'm just curious; my children don't receive the flu shot anyway.

I know the behavioralist he has been working with determined a lot is psychological w/ him & behavioral.

Nov 10, 2013
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Comments
by: Kelly

I would suggest reading the GAPS book (Gut and Psychology Syndrome) by Natasha Campbell-McBride. Also, refrain from any vaccines or flu shots as it only exacerbates the problem. Many people don't want to hear this, but homeschooling may be the only option while your child is on the GAPS diet. Depending on your child's situation, restoring their health can be a full time job and quite often great sacrifices need to be made in order to help them.

Nov 09, 2013
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6and half month old baby
by: shona

hi, can anyone advice me what can i give my little boy baby of 6 and half months , who is not willing to take any kind of food even he dont want formula feeds. he continuously want to be breast feeded. im nt able to sleep properly or to do my household properly. can anyone guide me.

Nov 06, 2013
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Picky eater smoothie suggestion
by: Chloe

My picky eater loves to only drink milk all day and eat little snack foods. What I do with my picky eater is I create smoothies with the Nutribullet and secretly throw vegetables that do not have a strong flavor such a spinach in it. A smoothie would consist of her vanilla flavored almond milk, Liberte yogurt, strawberry flavor or blueberry, honey, blueberries, strawberries, spinach leaves, maybe a few almonds and a vitamin liquid supplement if i have one on hand. So it is very rich and filling. I mix it up adding different fruits but she still gets the flavor of the milk she loves and the yogurt but with added benefits.

Nov 05, 2013
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CIB and milk
by: Boopster

Hi Cindy and other Moms going through this,
I cannot believe there are folks out there going through this. We went to St Josephs Feeding Cliinic in Paterson, NJ and my son at 6 still continues to refuse all foods w exception of

Milk from a baby bottle with Carnation Instant Breakfast...he can drink from a cup ...but if you put it in a cup...he refuses
Nutrigrain Bars...brand specific flavor specific
Yogurt ...Has to be YoKids yogurt...specific flavors
American Cheese
Applesauce...has to be Motts Original

He has a dX of CAS and potential ADHD
I'm convinced he is on the spectrum as he is non vebal has so many sensory issues...tantrums a lot and has sleeping disorder. We have seen experts all TOP in the field. We have been as far as going to Mayo Clinic . As of yet, noone has put him on the spectrum.

At 6 I cannot send him to school with a baby bottle...so he starves during his school day which makes him tired and cranky. I wish I could find the help I need

Nov 05, 2013
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3 year old girl refuse to eat
by: Anonymous

my daughter is 3 years now and have autism she used to eat normal like any other child but when she turned 2 years she stopped eating everything,she has been living on just milk for more than one year im feeling so down i have tried all methods with her but if you oblige her she becomes angry and aggressive i just wonder how she can live just on liquid thats really so hard for me to believe.

Nov 04, 2013
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not all after all
by: karen

Worried


Oh my I thought I was the only person in this world with a non eating child. My son was born 32wks premature and was also a twin. He spent about 3mths in hospital in fl with a tube down his throat. He has never eaten anything solid. He drinks pedeasure only vanilla don't like strawberry anymore hardly like the pudding snack anymore. He is almost nine now. He will drink water and juice he will chew gum an suck candy but won't east solid foods. Thank God there is other mothers out there that knows what am going through. Its hard



Nov 04, 2013
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Son age 9
by: Anonymous

My son is 9 and was born with a cleft lip
And palate however he ate loads as a baby when we fed him! Now since the age of about 2 he's had a eating problem he's not fussy about what food it's really the quantity he just doesn't enjoy food! He's meant to be on 2 fortisip shakes a day and 3 30ml shots of procal a long with a normal breakfast lunch and dinner! However he struggles and doesn't really eat much. He says it hurts to eat or he's just not hungry. It's caused many a row due to just plain frustration! He's sat with a dinner before now for over an hour and half and still not finished it. I've tried the whole taking it away after a certain amount of time but when you look at your son so under weight you just want them to eat to help themself out! He's had lots of tests but nothing coming back!! He's currently 2st 12 so that's 40lbs so he's not even on the weight graph for his age! It's getting to the point where I don't know how else to make him eat??

Nov 04, 2013
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Boopster; totally understand
by: Cindy

Boopster, you described my son as well---I spoke about him on this thread as well. He's 4.5 now & his ONLY nutrition at all is Vanilla Pediasure & Vanilla Creamy Yoplait Yogurt--nothing else at all. Thankfully he loves his Poly Vi Sol vitamins so that may help him a bit.

He too was drinking the Pediasure from his baby bottle until 3.5 until he was in an intensive feeding program at St. Mary's Hospital in NY. It was M-F 8-3 & although it usually ends in 8 weeks, they held him for 10. When he entered her was only "eating" Vanilla Pediasure from the bottle, that's it. It took weeks just for him to have the yogurt touch his finger & bring to his mouth. Then his meal would consist of 1 spoon of yogurt. It was torture & total baby steps & a lot of sensory work as well & play therapy.

He was drinking water from a regular cup when he went in but refused Pediasure unless it was in his bottle. It took him throwing the bottle at the psychologist & behavioralist & hours of tiny steps w/ the cup. He actually left the program still using the bottle but a few weeks later at home following the steps they used w/ him I got him to give his baby bottle to "babies that need it" in our mailbox & he was ready for a big boy cup. It sounds absurd & I know your child is older so that won't work, but your child sounds like my son in that a lot seems to be more behavioral or sensory related as I'm sure he's able to drink from a cup.

Nov 04, 2013
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response
by: Amy

It took a long time to get my daughter to switch from her sippy cup of Pediasure to drinking from the actual Pediasure bottle. The oral processing disorder caused her to want to suck as she got soothing from it. She will be 9 in january and while she drinks her pediasure without issue, she still eats very very little.... There are so few answers out there.....

Nov 04, 2013
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CIB w milk/BAby bottle - My son too!
by: Boopster

This is my son. I wrote some time ago. My son is now 6 and survives on CIB w milk and will only drink from a baby bottle. We've been to every expert and to a top feeding clinic in the country. I fear that someday he'll just stop taking his milk w CIB altogether. It's hard to believe there is someone else out there with my same situation. How do you cope...because I'm having a really hard time coping along with all of his other issues! (he has CAS as well)

Nov 04, 2013
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4 Year Old does not eat food
by: Anonymous

My child is 4 he does not eAt anything only Carnation instant Breakfast in a bottle only he is such a strong willed child I don't know what to do I am going through Hasbro Hospital but feel helpless he has become extremely anemic and Iron Deficient :-(

Oct 28, 2013
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limited dietary variance
by: janna

My grandson is 13 and will only eat pepperoni pizza, bacon, French fries, Wendy's chicken tenders and blueberries. This has been going on since early childhood. He won't try anything new and will gag if forced to. I know he needs some kind of counseling, but what kind?

Oct 09, 2013
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PROBIOTICS - OMEGA 3
by: Marie

We went through this here are some input to help you. You guys need to reconnect the brain and let the toxins (metals) go out of the bodies of your little ones.

Add probiotics to their diet (real strong, not just probiotic yogurt), they need to potty 2 times a day! Once you have their Gut back, you will see progress.

If they don't eat solid it's because they are afraid, solid food hurt their throat (from past reflux or other things that leads to GAG reflex). Because they are not eating solid food they have poor muscle and motor planning since they are not easting food that require to make a bollus in their mouth and are not able to chew. They need to learn to chew and they need a plastic chewy tube and a NUK brush to desensitive their mouth prior to each eating.

Oct 08, 2013
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Can't Swallow
by: Cayla

I have a daughter who is 19 months old. She was born March 8, 2012 at 33 weeks. Aside from being on a 50/50 mix of Enfamil EnfaCare Preemie Formula and Rice Milk, she cannot swallow any solid foods. She LOVES food but no matter what it is, she cannot swallow it. She spits it out. I can't get her into the doctor until November 4th. Any ideas? I know they will want to do a swallow study on her but any idea what else she may be in for?

Sep 29, 2013
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Ezra
by: Michelle

I have a little boy named Ezra. He will be 2 in December. He only started drinking a bottle at about 9 months. He had a PEG inserted at 8mths which was replaced with a mic-key when he was a year old. We feed him pediasure and mix it with 2 spoons of porridge. If I try to feed him anything else he either screams and cries as if I am putting knives in his mouth or just throws up everything. I was told by doctors that he has neurological delays.He sits now but cannot walk yet and he says Dada and Mama but cannot speak yet. When he gets ill he throws up no matter what it is. We have been blessed with amazing family, work, friends and doctors support. I am so amazed at the stories I have been reading on this site. Amazed that Ezra is not alone. There are other special children out there that doesn't need food to make them happy. All they need is Love. We will rather have Ezra eating Peadisure all his life than not gave him at all.

Sep 12, 2013
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Leticia
by: Amy

Yes! my daughter is now 8 and still eats very little food... Although it is hard to go through, it helps knowing that we are not the only ones going through it! Good luck to you as well Leticia!

Sep 10, 2013
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My son has never chewed before
by: Leticia Ayala

Amy Handle I was so stund that you are going through the exact same thing my son is a 5yearold that only takes chocolate pudding and lives off of strawberry pediaSure we have done all therapies and he wouldn't even touch the food or even attempt to try it my son my son was diagnosed with a feeding disorder. So were in the same boat I hope your tot gets better

Aug 31, 2013
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Baby Bottle Curiosity
by: Anonymous

Hello,

In response to the Mother's concern regarding her child's fascination with baby bottles, I believe that entertaining that idea would not be wise. Through my own experiences with a sensory child, 3 1/2 yr old boy, soon to be 4 in November 2013, he would put toys in his mouth since the time he grew teeth almost up until he started Preschool. Like your daughter, my son would literally gnaw off the coating of most toys. After a slew of pediatric, feeding and early intervention therapies did I learn that his desire to eat his toys rather than play with them was an attempt to satisfy an oral-motor sensory need. Textural challenges, toy chewing etc can all be resolved (for the most part; it will be a journey that requires much patience of the caregiver) with the help of a Occupational and Feeding Therapist. It is believed that giving a child a baby bottle after age one will lead to cavities. The baby bottle may become a security blanket for her and a power struggle may develop over time. An Occupational Therapist alone or combined with a Feeding Therapist is an avenue you may want to look into. My son had chewing difficulties and a speech delay early on, but is doing SO much better now that he got the right course of professional treatment. Good luck and hang in there.

Aug 31, 2013
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SPD and wanting to drink from a baby bottle
by: Anonymous

My daughter was diagnosed SPD at 21/2. She is 7 now. Still is very picky and very texture sensitive example won't eat yogurt with lumps etc. most nights goes without eating supper as she simply refuses to eat what I made. She has recently started drinking from a toy baby bottle and is really focused on it. She has asked for a real baby bottle, which I have considered as she has chewed this toy one all up and I fear her choking. Any feedback would be helpful. Is this a sensory thing? Should I allow her to have a real baby bottle? I can't think of a reason why she is motivated to drink from a baby bottle. Thank you in advance.

Aug 28, 2013
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non eating child
by: darlene

I take care of a handicap child who is 12. He ended up with a feeding tube because you could not get him to eat much of anything. They put him on pediasure night time feedings. After a few days he would projectile vomite. The pediasure alone was to much for his stomach. When the mother started this he was 38lbs. I found a bigger g tube that she had been given. I now grind everything to a puree and put that through his feeding tube. He can have prime rib and all. The only thing that does not grind well is sausage, corn things like that. We have him up to 65 lbs. It has taken time since others unfortunately do not bother to do this. If you grind thin enough it will go through, make sure you always follow with water to rinse out stomach tube.

Aug 13, 2013
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SPD
by: ZAC

4 year old who just started to eat fruit Dole lunch size. We spent time in Children's Institute in Pittsburgh. Very helpful but when insurance stops paying. You are back to square one He is too been on pedisure..We are trying. To get him off all milk products and get rid of Pedisure. That is not a options. We are tired frusrated and need other options.
ZAS

Aug 09, 2013
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my daughter is Type 1 Diabetic and also a dangerously picky eater for years
by: Anonymous

Hi - to those who have a child with Type 1 Diabetes that won't eat....I am in the same boat. My child ate fine up until around 2 years old. Then was diagnosed Type 1 diabetic at 2.5 years old. From there, the "picky eating" only got worse. She often complains of stomach aches. She is tested for celiac once a year, and it is always negative. But we suspected lactose intolerance and switched to lactose free products, and that really did seem to help. The doctor recommended we get her on something called Florastor, it's a probiotic. We have yet to try the actual Florastor, but we did try a brand of drinkable kids yogurt called Probugs (visit lifeway dot net, we found it in our grocery store yogurt isle). It has probiotics and I swear to you that while she drank this.....her appetite increased! The only problem is that after enough time went by, she tired of it and stopped drinking them. There are times that her eating has improved and I feel so happy about it all. But then she will relapse back into "anti-food mode" and I feel such incredible despair. It literally sends me into a depressive hole, it's awful (the feeling of failure as a parent, etc...). Especially when she is low and I have to force carbs on her to keep her alive - something I hate to do. I still don't have any solutions. I mean, everyone knows what good nutrition is. I don't need a nutritionist to tell me WHAT to serve my child. What no one can figure out though is how you get a person to eat that has no interest in it. No one can make a child eat if they don't want to. Sure, you can bribe, lure, etc.... But if they see through it, your up a creek.

Jul 28, 2013
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for Angela
by: Amy

Yes, def have your ped put in a referral for an evaluation! I'm surprised no one has looked at this on a sensory level, ESP the feeding specialist as they should def be familiar w SPD... Good luck! Keep us posted!

Jul 26, 2013
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What more can we do?
by: Angela

I felt my eyes fill with tears. I honestly thought we were the only ones who had it this severe with out son. He will be 4 in September. Up until this week we were seeing a feeding specialist who gave up on us after things weren't going as planned for her. She said we needed to see a behavioral specialist because its just his attitude. Our son ate normal up until 9 months. At that point it was like someone turned off a switch. From that point on he only eats gerber oatmeal with whole milk and vanilla yogurt. Occasionally he will have a fiber cookie. Now this week he has given up on everything. He'll have a couple bites of either his yogurt or cereal and stop or start gagging. He won't drink anything other than water. It's so heart breaking. He is almost 4 and weights 33 lbs on a good day. I have 3 other children a 7 yr old and 1 yr old twins who eat everything in site. My heart is so heavy for my son. I don't know what more I can do. After reading all these posts I'm hopeful though. No one had ever mentioned to us about a sensory issue so first thing in the morning I'm calling the ped for a referral.

Jun 21, 2013
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for drumchic
by: Amy

Hi, I'm Amy and i originated this post 3 years ago for my daughter who is now 8. Resource for kids is a healthier Pediasure-like drink but is expensive. My 10 year old is a type 1 diabetic so i understand the worry About carbs and lows and highs! Is your son on a medication for the regurgitation? Google the resource for kids and see what you think about it. Also I highly recommend the insulin pump! We switched to it 3 years ago and love it!!!

Jun 21, 2013
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my son is same
by: Drumchic

My 5 year old son has some type of feeding disorder/issue as well for many years. Still no diagnosis of what's going on and no one seems to do anything about it. Trying to find feeding specialists in a clinic, but nothing here so far. He lives on a steady diet of pediasure through a g-tube in his stomach and now we're having troubles just getting him to take it. He has turned type 1 diabetic just a few months ago and now it's hard to regulate blood sugars because of the feeding issue in and of itself. He just threw up his pediasure here tonight. Hopefully the blood sugars won't go too low because of the correction for the carbs that he was given and now that he threw up they aren't there. Anyone else seen this in a child. Desperately need help here! All the things I'm reading about pediasure say the stuff isn't good and he's had a steady diet of it for the last 4 years! Need some points into any direction if anyone can help! Thanks!

May 23, 2013
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Breaks my heart
by: Nina

Doctors find him healthy & tall for his age but I know he's hungry at times It's very stressing I don't want him to keep going through this ....

May 23, 2013
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Breaks my heart
by: Nina

I have a 3 year old that will only drink milk & pediasure shakes will only eat cookies crackers fries & sometimes grapes & bananas I feel so bad when we go out to eat & he just sits there not wanting to eat anything it breaks my heart I want answers why

May 08, 2013
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5 yr old survives on milk w CIB
by: Boopster

Carnation Instant Breakfast & Nutrigrain bars
His food repertoire has always been limited
Now he's down to 2 things...milk & cereal bars
If he eliminates these I dont know what we'll do
We r so worried
Have done feeding clinics & private therapy
Have even been out to Mayo for evaluation
He has profound Childhood Apraxia of speech but otherwise no medical explanation for his extreme food aversion
It's all consuming & overwhelming
We don't know what to do

Apr 23, 2013
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Response to "what can I do?"
by: Amy

When I originated this post 3 years ago, I thought I was the only one dealing with this issue. I'm a nurse but I had never heard of SPD before my daughters diagnoses of it when she was 2 1/2 (she is now 8). I wrote the post several years after we started therapy to see if anyone else was dealing with it and wAs amazed at so many responses. "What can we do?" Is a completely subjective question that depends upon us, our children as individuals as well as the support and care that is offered to us. I know people who have posted on here several years ago and their children are eating now! Praise God for that! My daughter still struggles with eating as well as texture.... I can only tell you what I do as well as what I do not do... I encourage her to try food every day, I have her sit with us at the dinner table with a small plate of SOMETHING (even if its only ranch dressing) I pray with her and for her that she will one day be able to eat like a typical child and I praise her when she tries new things and when she eats. I do NOT make her feel guilty when she can not eat something, I do not yell at her or try to shame her into eating, I do not focus on her limits but on her possibilities and I do not let her see my frustration Anymore. She feels different enough as it is, me adding to that will simply take a toll on her self esteem. I know that feeding therapy and occupational therapy work wonderful for some oral SPD kids so if you have not tried that, I would encourage you to do so. For kids Under the age of 3, it is free in most states and most insurances cover some sort of therapy after the age of 3. I would encourage early intervention and that you read up on sensory processing disorders as much as possible (the out of sync child is a good book to start with) and that you pray and have a close friend you can vent to. Do not blame your spouse- they are feeling as helpless as you- you need to lift each other up! I hope this helps someone... I know it is not a definitive answer to the said question, but the answer is relative to each child. One more thing worth mentioning, 2 moms I know had success with inpatient, intense workshop feeding therapy. I would call the largest children's hospital her you and ask if they have such a program. (The hospital near me, All Children's in St Petersburg, has one called happy meal times but there is a long waiting list) I truly wish you all the best of luck with finding the right answer for your child.... :))

Apr 22, 2013
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Yes, what can we do
by: esdmama3

I have commented yesterday I believe it was about my 25 month son...and yes I'm glad we all can relate so we know we're not the only ones dealing with this BUT like the person below said what can we do...to fix this! And what is the problem, why are they not eating? :(

Apr 22, 2013
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Me too!!!!
by: jwbmom

My son just turned 5, and we have also spend thousands of dollars to try to figure out what is wrong. He has NEVER eaten anything solid. Everything he eats I puree in a blender. I'm glad I'm not the only one, but at the same time... WHAT CAN WE DO?

Apr 22, 2013
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responses
by: Amy

For my baby- have you tried Pediasure? That is my daughters life blood!
Ashley- as long as your baby is not emaciated and sickly and is able to swallow they will not tube him... The kids i know of who got feeding tubes were totally unable to swallow. Hope that helps....

Apr 22, 2013
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my baby
by: Anonymous

I have a 23 months old who just eat little r nothing am worry that the things he intake doesn't give im the amount of nutrition he need. What can I do.

Apr 22, 2013
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2.5 yr old wont eat
by: Ashley

Thought we were the only ones going through this. My little boy won't eat hardly anything. He mainly eats pizza, goldfish, cookies, pancakes, and bananas. He only drinks water. I wish I could get him to drink pediasure. He is also not taking any vitamins. Can't mix it because the foods he eats aren't "mix able". He won't eat the gummie vitamins either. At what point will doctors say he needs a tube? He's not losing weight and his pediatrician isn't much help. Just says to put food in front of him and eventually he'll eat it but I don't want to starve him. His therapists says its best to keep it positive. So worried he's goi g to end up with a tube.

Apr 18, 2013
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Glad i'm not the only one
by: esdmama3

I have a 25 month old who has been a extreme picky eater since about 14 months? He will only eats snacks usually, strawberries, blueberries,grapes and apples. And a pediasure. I am at loss what to do. He will look at my food, and gag and run away won't even try it. They dr told me to make him eat what I'm eating and not to cater to what he eats. Well that's not gonna work, he then doesn't eat anything for days. :( I am so glad to come across this page and see I'm not the only one dealing with this.

Apr 18, 2013
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responses
by: Amy

Thank you all for you're responses! We have our daughter sit at the dinner table and drink her Pediasure sometimes she will take bites or licks of what I'm serving but other times she refuses. It is very frustrating and if others judge we have to let it roll of off our shoulders and understand they just have no clue. I how you all have good support systems that help you and encourage you! Be blessed, Amy

Apr 17, 2013
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Frustrated mom
by: Gloria

My Son 6 1/2 has had feeding issues his whole life! We have spent thousands of dollars trying to figure it out! Now our delima is we make to much to get help and yet we do not make enough to keep paying hundreds of dollars an hour for feeding therapy which BTW does NOT work. My son eats Trix Yougart ONLY! 3 to four pedia sures a day and it can't be the one with fiber! He eats m&ms, McDonald French fries only, and is interested in talking about food but will not eat them! He will eat Doritos as long as there only Nacho and I am relived that other people are going through this! He's crazy thin but very active, smart other moms judge me on a daily basis but what do you expect when you send your child to school packing him five yougarts for lunch! Never the less unless your in our situation who are you to judge!!! Good luck other moms the forcing my child to eat backfired and he didn't eat a thing for almost a month so yeah if he's getting pedia sur down it keeps him off the tube and he's at least eating the listed above so thanks moms for making me realize we are not the only ones!

Apr 17, 2013
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A worried mom too
by: Flora

Oh my Gosh I really thought I was the only mom going through this!! My 61/2 year old son is going through this still. We have had him tested to see if he's Autistic they said no he had general anxiety disorder! He only drinks vanilla pedia sure, French fries not the burnt ones, trix yougart Only, ! And Doritos only nacho ones! We have him drinking four pedia surges a day because we are so scared.

Mar 25, 2013
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I know what everyone is going through.
by: Anonymous

I have a 11 year old son with SPD. He also didn't want to eat most foods and would have trouble if he put a bite that was too big in his mouth or if it was the wrong texture. I think he and most kids have a real problem with the texture but they also I think mix it with a little bit of habit and want to get what they prefer like kids without SPD.

I didn't see much discussion on atmosphere of dinner time. When a kid eats finger foods like fries and the family is having a regular meal it makes extra work. I was in the habit of just giving my so what he would eat when it was done so he didn't always have his meal with the family at the table. So even if a child only drinks pedia Sure it is still good to make the have it at the table with the family. My son ate a lot more than most kids mentioned so it was easier but we still couldn't have made it with out help from his doctor and therapist.

We made sure we ate together, had 2 things on the table he would eat ( I hope everyone is able to get up to those 2 foods) and never asked him to eat, never made him try the other food and didn't discuss eating. We would just talk about regular stuff and it takes all the stressful talk and fighting about the eating away.
It did make a big difference in the relaxed atmosphere. He was able to not worry if we were going to hassle him to eat or hear just try a little bite and all the stuff we usually told him. It also helped to make sure he was at the table because it helped him to actually see and get a better smell of the other foods. Some of them just the sight would make him gag so of course we put those on the other end of the table. He still has a few issues but he eats more and more as time goes by and putting him at the table and not causing emotional stress helped him so much. It actually helped the whole family. It is stressful when you have a child that won't eat, I know this first hand so I wish all speedy improvements and hope my story helps.

Mar 21, 2013
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Happy to see others
by: Amazed

I have a 3 year old that lives off chocolate pediiasure, crackers, dry cereal and bacon. We don't know what to do anymore, but it is so nice to find a site that has people that are going through this!!!

Mar 17, 2013
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3 yr old has not ate in 2 weeks
by: Anonymous

My 3 yr old granddaughter has not ate anything in 2 weeks. She ask for food, but then she sucks on it and spits it out. She was constipated, so the doctor gave her several medications to clear her out, but she's still not eating and we are going on almost 3 weeks now. The hospital said to take her to a nutritionist, but what good is that going to do if she's not swallowing the food just sucking on it? She will drink water and rice dream (she's allergic to dairy) but that's all she will drink.

Mar 10, 2013
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7 year old girl who wont eat .
by: Anonymous

my 7 year old girl only eats yogurts and custard . she has 3 bottles peadisure a day. has been diagnosed with ASD. she is a very happy easy going child despite all this. only weighs 2 stone 5 lbs. i have tried everything and nothing has worked.

Mar 06, 2013
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For military action
by: Amy

That is so awesome that worked for you! We actually did that with our daughter but for us it backfired unfortunately .... But at least it worked and now your child is eating! Be blessed!

Mar 05, 2013
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Military action :)
by: Anonymous

Hi. My son is 5 yr old and I have had a problem like yours. He won't eat any solid food just his Pediasure and oh, mushroom soup. We tried to put him on OT, but it doesn't work. So, I tried doing one thing that I'm sure most of the parents would disagree. But I had no choice, I don't want him to continue like these. It affects his way of life, he have this speech delay (expressive language - according to the child development specialist) because of his feeding problem.

His pedia told me to let him eat food with the texture he likes, like soup. Then one day I cooked squash with malunggay and told my son it's a yellow soup since I mashed the squash with rice. He doesn't like it still, so I did what I think is neccessary. I forced him to open his mouth and put the food inside, he's like going to puke but I hold his chin to his mouth to make it close and let him chew his food and swallow, then he realized he can eat solid food. Well, it's like magic, he ate it all :) He continue to eat from that day, but only wet foods (broth). Like soupy stuffs. I put the soup on rice and mix it with fried fish or chicken and he likes that.

After just one week I've seen the result. He gained weight, well he must have. Soupy foods are very healthy since I made it with vegetables. While he still drinks his Pediasure. (It's Only 2 months now since I got him to eat solid foods)

That's my story... A little harsh for some, but it did work for me ;p I am hoping for the best for all the parents like me ... Godbless us

Feb 20, 2013
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reply
by: Amy

Thanks all for your comments. I originated this post a few years back and now my daughter is 8 and still gets 95% of her nutrients from pediasure. she drinks 6 to 7 a day- more if she is in a growth spurt. I feel your frustration and disappointment as we have undergone many tests, therapies and feeding therapy to no avail. My hope is that as she enters adolescence , peer pressure will make her desire to eat, even if only to fit in. I have a friend whose son did that and now eats some foods at 14. My prayers are with you all!

Feb 19, 2013
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june
by: mother of 6 yr old autistic boy

My son is 6. He was diagnosed at age 1. He ate very normally the first year and progressed mentally fine. His taste in food decreased after 1. He now will drink anything you give him. Solid foods he eats pop tarts and cereal, pancakes sometimes, french tst, and bacon some times. He eats fruit snacks granola bars toast , pb and jelly , grill cheese, chicken nuggets breaded only, pizza is his fav and pizza rolls. Lots of breaded items. I've recently put hime on probiotics, fish oil, immune booster and multi vitamin still not much change in his diet food wise. I'm working on getting him on a gfcf diet but taking it slow. Also anyone have any tips on potty training.

Feb 17, 2013
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my child also barely eats
by: moon

My daughter is 22 months old. She was eating baby food and baby cereal. She cant do textures of any kind or she vomits. She's being evaluated for autism and since has stopped eating. She will sometimes eat a bite or two of a baby food custard or hummus. Other than that its pediasure but only from a bottle. She has a feeding evaluation in a few weeks. I just wanted to share that I know how all of you feel. Its heartbreaking when your child has problems. Especially when others act like you're insane. my husband left us when she was a baby and is just now filing divorce. He thinks her issues are stupid and that if i starve her she will eat. He also hasn't seen her in a year. So I KNOW how frustrating it all is. We will all get through this.

Feb 14, 2013
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pediasure addict
by: rachel

Not sure if my comment has loaded so will write again.

My daughter is almost two and survives on 6/7 bottles of pediasure a day. Never eaten a rusk let alone a meal. Its only recently that she has started to drink water still trying to progress with other fluids.

She likes to lick things occasionally chew something but always spits it out never swallows.

The doctors/specialists we have seen are at a complete loss as to why or how to proceed with getting her to eat food.





Feb 14, 2013
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My daughter has never eaten a meal
by: rachel

My daughter is about to turn 2 and lives on pediasure 6/7 bottles a day which she will only take from the one bottle (I have tried about a dozen others and she would rather starve). It's only the past month that I have managed to get her to take the bottle of somebody other than me which means I have never been able to leave her with anybody.

She wont take medication by spoon/syringe I can't even hide it in the milk she knows something is up if I even put a bit of water in it and will refuse the bottle.

She will lick some foods like crisps, she might on occasion chew something but never swallows anything. It is only the past six months that I have managed to get her to drink water other than pediasure. That's how slow our progress is.

If by some chance she does swallow something she will make herself sick to bring it up. If something is in the back of her mouth she will cough it out or stick her fingers to the back of the throat to get it.

I have to get up still every night to give her a bottle as she can't go through the night without milk. She will just cry for hours on end until you give it to her, then she will go straight back to sleep until breakfast.

The doctors/specialists are at a complete loss as she doesn't fit the normal food aversion types/brackets. She has no medical condition or learning disability if anything she is pretty bright.

She might not stick food in her mouth but anything non food goes straight in. Loves to lick pretty much anything that isn't food.

Feb 14, 2013
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for Lauren
by: Amy

I'm sop sorry for what you are going through. To have a child eat and then lose those skills must be so heartbreaking to watch. I pray that you're son will start eating again and that the Drs know exactly what needs top be done. Its so frustrating to feel like there is nothing you can do....

Feb 14, 2013
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worried :(
by: Anonymous

My son is ASD and will only eat yogurt apart from weetabix in the morning. Its very worrying :(

Feb 10, 2013
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7 year old son
by: Lauren

Hi! My name is Lauren... my son is 7 and we have been dealing with him not really eating for almost 7 weeks now. He did eat normally for the longest time, but 7 weeks ago, he was chewing food and it got stuck in his throat. He didn't choke but he coughed and gagged and he did get it out. He ate for a week and then quit. He said he wasn't swallowing right. We took him to the DR, who checked his tonsils. They were fine. We took him to the ER and they did a probe up his nose and down his throat and there was nothing going on. Took him to a gastro dr that said anxiety. So, we've made progress but took some steps back after he got so nervous that he vomited his milk twice. Now he's done with milk.
He takes over an hour to drink a cup of anything. It's frustrating because there aren't enough hours in the day to get all his food and drinks in. I am really losing it.. no one knows how to help. He eats some tomato soup and potato soup (no potatoes) and goldfish here and there (10 maybe max) but he always has a drink in his mouth.. he doesn't pick up a cup and grasp it correctly and doesn't just drink like a normal child does. He doesn't hold scissors correctly.. has always gagged on certain textures. I have always believed he had a SPD and fine motor delay, but never had him diagnosed. He won't drink pediasure. He vomited one and that was the end of it. He's so tiny to begin with (19 percent for weight) and I am really not sure how to help him drink faster and start eating again!!!
Please contact me at: hayesfamof4@yahoo.com
if anyone needs to chat.
Lauren

Feb 08, 2013
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There is hope
by: Jackie

My grandson has lived with me and his parents since birth. We started taking him to an OT for feeding therapy a year ago...he was 3 at the time. At the time of his first visit he was only eating goldfish crackers, applesauce and drinking milk. Mealtimes were so disheartening. All we ever hoped for is for our little one to eat. He has been diagnosed with SPD. His pediatrician told us he was just being stubborn and to offer him new foods and that he would start eating. Not true....I guess he is the 10% that would starve himself. He went for 5 days and hardly ate a thing. Every week the therapist asks us to offer him the new foods at home she gives him during therapy. We tried week after week and he refused to even put them in his mouth. Now finally after a year of therapy something just seemed to click these past few weeks. You wouldn't believe the foods he has started eating....and a lot of it. I am beginning to wonder if I will need to take him to therapy for eating too much now. We are still not at the messy food stage like pizza, burgers, etc (he doesn't like his hands getting dirty) but here is an example of what he had for dinner last week....all in one night that is. 3 fish sticks (first time for him), some fries, a cheese stick, a whole wheat pretzel dunked in peanut butter, a whole banana, half an apple, a package of pizza pringle stix, a piece of fruit leather, 5 yogurt cookies, 4 townhouse crackers, dried strawberries and mangoes and a cup of almond milk!. It took a year of hard work but he is now well on his way to becoming an eating machine so please do not give up. We never thought it would happen. I know therapy is expensive but now I am glad we continued with it.

Jan 31, 2013
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3 yr old has never eaten a solid :(
by: Sarah

Thank you everyone for sharing your stories. My son is 3 and will only eat yogurt, fruit smoothies (with no fruit chunks), baby cereal that has to be completely smooth and smooth baby food. We saw a ST for over a year with no progress however she thought since he wasn't "too" skinny that he was fine. I also switched peds because I felt he wasn't taking it seriously and my new ped sent us to Johns Hopkins - we've been there twice so far...they did the swallow test and she saw some abnormalities - she mentioned the possibility of a laryngeal cleft which is super rare. My son still drinks out of bottles but also can do sippy cups but he he can't handle a #4 nipple or else he chokes. He can't drink fast at all and has a cough after he drinks (nothing serous but she felt it was notable). We go back on Feb 15th for an airways clinic where he meets with a GI, an ear nose and throat doc, and a pulmonary specialist where they will probably have to do the test with the tube down his nose while he's awake which brings tears to my eyes thinking about it. I, like all of you seem to be, am overwrought with emotion - frustrated, sad, overwhelmed, etc. and everyone looks at me like I'm crazy when I tell them he can't eat. All my friends think its behavioral but I just can't accept that - he wants to eat so bad - Johns Hopkins agreed with me. Another thing to note he has been tentatively diagnosed with asthma and he has eczema pretty bad - he has always had it but within the past 4 weeks he has had it so bad so we are seeing an allergist march 8th. Anyways - I feel all of your pain - I dream of the day he will eat a cracker or a sandwich. He literally has never had anything beyond puréed food and a little stage 3 but he gags and vomits which makes me so sad. Has anyone had this and then finally got a diagnosis and been able to eat?? Thanks again for sharing your stories...it helps to know I'm not alone.

Jan 26, 2013
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My 7 Year old wont eat
by: Cindy Coleman

My daughter used to be a good eater but after a bout with strep throat she has basically quit eat anything she said it taste funny I don't know what to do its been almost a week without food she eats ice and maybe apple sauce please any tips you can contact me on Facebook @Cindy Coleman please help I am worried sick about her

Jan 26, 2013
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Thank you
by: Amy

Thank you for the advice! She doesn't eat veggies but does like activia, green label! I will try it! :)

Jan 25, 2013
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For Amy
by: Anonymous

Since your daughter likes things that are smooth in texture it should be very easy to "sneak" unsaturated fatty foods into foods she already likes. if she eats ice cream, poor in a bit of HOMO milk, olive oil is a good example of an unsaturated fat item too. you can poor it into soup-, over her veggies, over french fries, make a "rainbow chart" tell her to make a rainbow with her favorite foods. start with red;pomegranit range juice. Yellow: bananas. green: brocoli (if she doesnt eat green veggies give her activia "the label is green ;)) blue: blueberries purplegrapes. all these foods are hi in antioxidants and lycopene. cancer fighting, prevention of heart disease and helps brain developement.

Jan 22, 2013
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not eating
by: Amanda

Wow I thought I was alone..My son is 6 and non verbal and has autism we have been to doctor to doctor to specialist to specialist he wen to an out patient program and all we got was a few bites of strawberry yougurt but thats basically all he has is pediasure and milk and a couple bites of yogurt. he will take things off the floor like if his little sister drops a cheerio or goldfish and will eat the crumbs also no food items lately but very small pieces.. So good luck to all of you going through this you are not alone!

Jan 16, 2013
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for overwhelmed mom and Angela
by: Amy

Thank you for your posts! My daughter is 8 today and still gets 95-100% of her nutrients from Pediasure. We have had little steps forward, little steps back... She is a bright, energetic and loving girl- gets excellent grades in school and has many friends but still just cant enjoy the process of eating... Food feels foreign in her mouth and she so desperately wants to be "normal" and eat. She gets self-concious when the other kids watch her drink her pediasure and ask her "Why dont you eat?" and my prayer is that she will learn to eat some regular foods on a daily basis. It is a good feeling to know that we are not alone in this... Be blessed, Amy

Jan 14, 2013
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My 7yr old Son lives off of Pediasure
by: Angela

I'm soooo glad i found this!! I thought i was the only one on the planet going threw this, I thought that there were no other kids that didnt eat food/solids like my son!?...Like a few of the comments on here, my son started off eating but then just stopped when he was 6mths old. He just had no interest in food anymore, he would gag.He was diagnosed with Autism at 1yrs old. So he has been living off of pediasures his whole little life. If he doesnt have the pediasure he will sometimes eat a little oatmeal, cream of wheat or vanilla pudding. But nowhere near enough to get the nutrients...and he gets really tired and weak without the pediasures. We can see his body change just after a few days of not drinking them. his stomach gets enlarged as if he's a malnutrition child while the rest of his limbs get really skinny. So we know that he NEEDS those pediasures in order to stay healthy. We dont know why he cant chew, but he is willing to taste certain things with his tongue. Its been years of stress for us because our child does not eat. He is scheduled to have a modified Barium swallow done this week and im anxious to see what the problem is, My husband & I can totally relate to every one of these articles, we have argued and even blamed eachother as to why our son will not eat...I feel relieved to know that other people out here in the world feel our struggles and pain. and that we are not the only family dealing with this issue . I hope and pray that one day my child will be able to eat. If i had one wish- It would be that my son could eat food.

Jan 03, 2013
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Overwhelmed Mom
by: Anonymous

Hello. I've done several internet searches on toddler feeding difficulties and keep coming back to this forum. I've read almost every post with sympathy in my heart. I too have a three yr. old son who cannot chew. He is in a feeding program currently, one day per wk, one hr. session. He was diagnosed with Autism at age two. My husband and I, including his pediatrician, etc strongly feel its sensory related.  He is a happy, healthy, active boy, not exhibiting signs/symptoms otherwise characteristic of Autism. He has been to two other feeding therapists but his progress is very SLOW. And to boot, he still puts toys and fingers in his mouth.  Over the past two yrs it has been an overwhelming task seeking out one professional opinion after the other. He understands what chewing means, however, the actual motion is a physical impossibility most times. I was told his feeding delay was due in part to his apraxia and poor oral/motor planning. At first we thought this would be something he would outgrow in time. We even convinced ourselves that. No one in the family has had children that didn't know how to chew. Nor did they understand it. So who can we really turn to solicit advice, except the professionals?

Most days its a struggle to get thru mealtimes. He is just slowly starting to self feed. We still have to prompt him to pick up his utensil time and time again. I'm an emotional wreck....but some days are better than others. I fear if he doesn't learn to chew soon, he will be hungry and become terribly undernourished in full-time school. Right now he is in a special preschool program, where he gets the individualized attention during snack time. Sadly, I feel time is not on our side. His current feeding therapist believes once he gets older, his cognitive skills will come into play and he will therefore, grasp the concept of chewing. Every day is a challenge....emotionally and psychologically. I live, breathe, eat, sleep my son's feeding difficulties. I understand what it means to be overwhelmed, wondering when this will all be a thing of the past. My thoughts and prayers are with every parent here. I know your struggles. And patience can only take you so far. But please do believe this -- there IS hope.
If anyone can offer any suggestions, comments as to what they've tried and/or had success in, I would love to read about it.

Nov 27, 2012
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For Ani
by: Amy

My husband felt the same way as you too in the beginning and believed that if we would just let her get hungry enough, while withholding her Pediasure, she would eat food. That resulted in her becoming dehydrated and losing weight and strength. That totally changed his perspective and he was then able to see that he was wrong- this was not a simple matter of her "choosing" not to eat. Its so easy to point a finger and judge... unfortunately compassion and understanding are becoming obsolete in this world, as your post shows. My prayer for you would be that God would soften your heart and open your eyes, lest you be in the position one day of being on this side of judgement...

Nov 22, 2012
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Ignorant
by: Cindy NY

Ani, I don't want to attack you, but I do want to let you know in my son's case & I'm sure many, if not all, the parents on this board; their children do not eat because they haven't learned how (during the 4-7 month range); have sensory issues or actual physical issues.

My pediatrician gave me the same advice after my son stopped eating all his baby food at 2 (he never had a solid food, as of yet at 3.5). He said put the food in front of him and sooner or later he'll eat. Well, I did this for 3 days. He ate NOTHING...absolutely nothing but water (and juice once a day). At that point I went back to giving him his Pediasure--the only thing keeping him alive (without a feeding tube).

When I went to an intensive feeding program, the dr. there told me 10% of children would starve to death...given the above scenario. Sure that might work for some children, but some children never learned how to chew (like my son). After 10 weeks in a feeding program for 7 hours a day; he is finally eating vanilla yogurt & pudding in addition to his Pediasure. I'm thrilled. He continues to see a feeding therapist and speech therapist as his muscles are weak from not chewing for so long. He has yet to get his 3 year old molars b/c he doesn't bite.

Given the smallest bit of mashed banana he gagged and spit it up.

I'm sorry if I'm coming down hard on you, but I'm so tired of people thinking, "oh just do this" or saying "my child is "fussy" too"--they don't get it. It's something we stress over daily. Mealtimes are a struggle and something we have to consider before going out. It affects him at school where his friends ask why won't you eat my birthday cupcake or even the juice they offer.


Nov 22, 2012
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For a change
by: Ani

For a change, I'd narrate a father's perspective. I'm a father of a 6 year old girl.

While going through many posts of a 'non-eating' child, only one thing came in my mind and that is of poor judgement on the part of parents!

Whether your child eats or not depends on you and not on your child.

I might sound inhuman, but just leave the child with the option of eating what you want him/her to eat or remain hungry. The child should only be permitted to have water during this course, if he/she doesnt eat the food. Do it for 2-3 days. May be 4-5 for a more stubborn child. While during this period, you've to act absolutely cool and calm and indifferent. You should not show even a small sense of anger or dejection.

He/she will follow suit and never be disobedient.



Nov 05, 2012
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response
by: Amy

thanks for your comment! I know how frustrating it is- people look at you so strangely when you tell them your child doesnt eat! my daughter will be 8 in Jan and still gets all her nutrients from pediasure but i am hopeful that she will be able to eat food like a "normal" kid one day... until then, my husband and I make sure she doesnt feel somehow less than other kids her age and we encourage her to at least lick something new as much as possible! Good luck to you!

Nov 01, 2012
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sensory seeker
by: Anonymous

I am so glad to find other moms out there who are going through the same or similar situation, I am just so tired of seeing other moms faces when I tell them that my 20 month old toddler will not eat and listening to them saying thats weird my baby eats so much. grrr.. I am so irritated I don't understand why this has been such a struggle, but anyway my son since he was born started to have GERD he went through many formulas, then had barium studies 2 times failed since he would not even drink the barium. his baby food was a struggle he did not eat it well until 8 months he was eating very well for that whole month it was amazing. the 10 months came and since then he will not eat anything other than pedicure sometimes yogurt if lucky and cheeto puffs. thats all!! he sees a occupational therapist for feeding issues and sensory issues but to this point has not really helped, I tell myself i will just stop trying maybe when he's in school he will see other kids eat and want to do the same, but after seeing that there are kids here up to age 7 that still have the same problem just makes me more frustrated, I really hope we can find the answer to this feeding, sensory issues. Im sorry I was no help for anyone i just really needed to let this out to moms who have actually gone through what I am going :(
thanks and good luck to you all!

Oct 03, 2012
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6yr old on Pediasure
by: Anonymous

I am so glad to have found this page, my son turned 6 this past August and is still not eating any solids...it started when he was 6 mos old and was introduced to baby food, his favorite was squash and applesauce...3 months later out of nowhere he refuses to eat it anymore and started to spit it out and gag whenever i would try to feed it to him, the baby cereals you mix with their formula was the 1st thing he ever threw up, he could never keep it down. He now only drinks pediasure (vanilla only) from his bottle and refuses to drink from a sippy/cup. he eats only certain brands of yogurts and just banana baby food stage 2. He has a very low muscle tone and constantly drools a lot, he refuses to put anything in his mouth and only licks doritos or cheetos etc. if he gets any crumbs in his mouth he cries and quickly spits it out or gags if it went too far into his mouth. we have tried OT's at school which he currently attends and even outside OT's and nothing has changed. Sometimes I feel like sending his baby bottles with him to school so that he at least drinks his pediasure because he refuses to eat anything at school and he's there full day and by the time he gets home in the afternoon he is starving and drinks about 16oz of his pediasure all at once. it's very frustrating when you see your child not wanting to eat :(. I'm glad i found that theres others out there going through what i am and can be able to share good and bad experiences with or any helpful medical information. thanx

Sep 20, 2012
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Cindy
by: Amy

Cindy that's awesome! We have a program like that in St Pete, about 45 mins away, that is a live-in, 30 day program that I am looking into doing. My daughter was on waiting list but once she stopped outpatient therapy she had to be removed. (they can only attend if they are currently seen by a feeding therapist and have been for at least a year) the outpatient did not really help and she still gets all her nutrients from pediasure although she will take bites and licks of certain other foods. I'm so glad the program worked well for ur son! Hope he continues to improve! Thanks for the update!

Sep 19, 2012
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Amy update
by: Cindy NY

Amy (& others); wanted to give you an update on my son after his 10 weeks in the intensive feeding program (8-3 Mon-Fri). He was doing outpatient therapy for a year & in that time they only got him lifting a few foods to his lips & doing oral motor exercises & possibly licking 1-2 foods.

This program was a lifesend. His head therapist was beyond wonderful. For 3 weeks they tried various approaches to see what would work best for him. They said he was a difficult case as most of the children they see for feeding have a medical issue. They also had him seeing the OT to work on his sensory issues 3x a week. Throughout the program there was contact w/ the nurse practictioner, nutritionist, psychologist and the feeding therapists.

After only drinking Pediasure (nothing else) for 14 months from a bottle (he's 3.5); now at program's end he is drinking the Pediasure from an open cup & they got him eating vanilla yogurt & vanilla pudding (w/ me feeding him). Is it ideal? No, but it's 100% better than what he was eating & more age appropriate that he's not drinking from the bottle (at all) anymore. After being there day in/day out for the 10 weeks; I see how to respond; how to present the food; how to handle it when he does start swinging at the spoon or refusing.

It's going to be a long road ahead; especially when he gets out of the program & it all falls on me to carry through, yet it can be done.

Please hang in there & if you have the opportunity to do an intensive program, it is so worth it. Yes it will take over your life for that time, but to me I consider it 10 short weeks in a lifetime. The year of outpatient did nothing for him; looking back only seeing him that limited time they would have never "figured" his case out like that. The approach they had been using in outpatient didn't work at intensive place either.

Any q's, pls. drop me a line or check out our page on FB: The Non-Eating Child.

Sep 19, 2012
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reply
by: Amy

i would def have your 3 yaer old evaluated! Here in FL we have the early step program- im going through it right now with my 2 yo son who has an auditory SPD and I went through it with my now 7 yo who has the oral SPD (i originated this post several years ago)and she still gets 95% of her nutrients from pediasure! If you can get intervention and therapy now, it may really help with his eating! Good luck to you!

Sep 18, 2012
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non eating child
by: Anonymous

I have a 3yr. Old who eats no meat pep. Off pizza. He has Bern on pediasure since he was 1 and refuses to eat anything but French fries, String cheese and yogurt. I have tried everything with no avail. And the Dr. Says there is nothing wrong. But I am scared for him I think I should just stop the pediasure and see if he eats more. I don't ever think he has choked on anything but I know he will take bites of food at daycare. But I'm sure that's because he doesn't get but 1 pediasure there. I think my next step is going to a specialist and have him tested for food allergies before I do anything drastic. Can anyone give me any advice on this matter. Thank you

Jul 25, 2012
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Reply
by: Amy

Please keep me posted about your son! I wanted to that w my daughter, the intensive feeding program! Praying this works well for you!

Jul 24, 2012
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Follow your gut
by: JMom

I written below & started the non-eating child FB page; but as an update; my son was the same. He was slow to take baby food; then got up to stage 3. He refused all table food except for vanilla yogurt; so he was on baby food until 2. Then 1 day he refused baby food (at the end he was down to 2 selections). He then went on eating jags of yogurt, vanilla cake or veggie sticks. This is ALL he's EVER eaten. One day last June (2011) he stopped eating ALL food & has therefore been on Pediasure for the last year.
He never qualified for feeding services through EI/CPSE & so we did it through our insurance. We did all medical tests (barium swallow attempted, but he wouldn't accept drink; endoscopy; ENT, etc.) They believe it is a cross between sensory & behavior. In a year's time though they only got him to touching a donut or being able to do oral motor exercises.

He's 3 now & they said they need to teach him how to chew & what to do w/ food when it is in his mouth. He's currently in a Mon-Fri. eating program for 8 weeks. He's in week 2 & is all ready accepting sips of Pediasure from a cup (not his bottle) & allowing oral motor exercises & playing with food. I'm thrilled.

Please follow your gut. My ped never did & kept saying he's a fussy toddler; I knew better.

Jul 24, 2012
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Reply
by: Amy

I'm Amy and I've been through the swallow study with my daughter when she was 3. She's 7 now and still doesn't eat, gets all her nutrients from pediasure. It's very distressing but I've been told she will eat more once peer pressure starts as a way of conforming. My friend went through that w her 13 year old when he was younger and he eats now due to peer pressure.... We have a Facebook page, non eating child, so add us if you have a FB. Much luck w your 3 yr old!

Jul 23, 2012
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im really stressed about my 3 yr old son
by: Anonymous

Im Happiness I have a 3 yr old son he cant chew foods nor bite them he only eats liquids foods, ive been to the therapists and found nothing, did barrium swallow everything, he likes to gag whenever he feels a lump in his mouth, please help me as this is really stressing me out, I just wish to see him biting foods, chewing them, swallowing them.

Jul 09, 2012
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Check Tonsils
by: Anonymous

Hi,

some kids can't eat because their tonsils or andenoids are too big. Snoring and gasping for air at night are other symptoms.

Apr 28, 2012
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There w/ you Vicky
by: Cindy NY

Vicky, I can totally relate--I wrote below, but my son will be 3 next week & since last June has ONLY drank Pediasure Strawberry. Same thing, if we tried to give him vanilla or chocolate, he'd refuse it & have a fit. He's been in feeding therapy since Sept. & they've really not gotten anywhere. He sometimes will pick the food up or smell it or do messy play with it--but as soon as they try to get him to bring to his lips, he shuts down. He has never eaten anything he had to chew. At one point (after baby food) he was eating vanilla ice cream & vanilla yogurt & smashed up bananas & then one day he just stopped.

He's been to every specialist & there is nothing physically wrong. They do believe part is sensory but they now say it's a mental thing. His fight/flight stimulus acts up when food is presented, hence his shutting down. They keep asking if anything happened to him (choking, etc.) but nothing ever has.

We're now putting him in an intensive program 5 days a week, 7 hours a day where they try to re-program him in regards to food & make it a good thing again. We've tried every other option & the program has a 99.9% success rate (w/ 1 family dropping out, only b/c the parents couldnt' commit to the hours anymore).

Also pls. look for us on FB: the non-eating child

Apr 25, 2012
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response
by: Amy Handel

Vicky, I wish I had good advice for you... my 7 year old gets 95% of her nutrients from Pediasure and only eats an extremely limited amount of food.. we have heard as peer pressure starts, then she will have more incentive to eat... I wish you luck with your 4 year old.

and anonymous- I am glad that your daughter eats now and I hope mine will start to as well as she is very skinny and needs to put on some weight too. Take care.

Apr 25, 2012
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My daughter was in her late 20's when she finally realized she was too skinny from not eating enough food.
by: Anonymous

She started doing the not wanting to eat a six and was skinnier than her older sister and younger brother. I asked her to tell me if she wanted to buy her lunch and she said no. I asked her if she wanted to make her own lunch and she made a sandwich with a half of piece of bread and the smallest amount of peanut butter you could ever put on a sandwich. I just made a regular sandwich and asked her to eat as much as she could at lunch. She would sit at the dinner table and everyone else was done eating. Years later I was told she gave the food she did not want to her sister and brother. She also spit some out in the toilet.

She grew up to be a beautiful and sweet person without the normal boobs because she was so skinny. She started eating edamame beans, she always loved rice and other foods I was not familiar with at the time. She ate a lot of health foods.

She was a tech in the ER at a hospital after completing work in the office. They always put her on top to do the CPR because she was so small. One day a doctor asked her why is she doing the skinny to herself? She did not have an answer and told me. I just said I told you to eat more as well. She finally started eating regular meals and is a beautiful 5 foot 4 inch beautiful woman who weighs 115. I am grateful she finally realized how skinny she was.

Feb 27, 2012
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Desperate Mom
by: Vicky

My daugther will be 4 in May and she is 100% dependent on Kids Essential 1.5 Vanilla flavor. This product was recommended for her doctor to help her gain weight since she was only bottle feeded and was not gaining weight and almost Failure to Thrive. Now, this is 100% of her nutrition. She is almost 4 and has never ever swallowed anything solid. She only drinks this and water. No juices, no milk, nothing solid, nothing, KE 1.5 and water. That is it. We can’t change the flavor because she won’t drink it. She also doesn't drink big volumes only probably 20 oz a day so we need a high calorie formula to help her maintain the weight. Thanks to this formula she hasn't needed a G Tube. Any advise will be very much appreciated. We are desperate.

Feb 06, 2012
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reply
by: Amy Handel

Wow, I couldnt imagine my daughter being GF on top of the SPD... That must be a big disappointment for you as I KNOW how difficult it is getting kids w SPD to try new things! Like your son, my 7 yo daughter eats very little and gets all her nutrients from Pediasure. As a result she has to wear pull ups at night as she will wet the bed, which is very embarrassing to her. Join us on facebook- just search "non eating child"..e may be someone that is going through the same thing you are!

Feb 06, 2012
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having serious issue
by: Debbie

Now I feel I'm not alone. It's been a trying 10 years for us. My son is now 10 and he's still an extremely picky eater. At 10, he's on pediasure, he will only eat McD nuggets and fries, Hungry Howie cheese pizza (only cheese) and apple. This has been a very big struggle for my family. We have tried everything in the world, starved him, took away all his priviledges and toys, talked to him, tried bribing him but nothing worked. He's a lot smaller than his age, we enrolled him in different sports like soccer and baseball to see if he's going to be tired and hungry and want anything or something but still did not succeed. His pediatrician kept saying we should keep introducing new foods to him and even told him that she will have to keep him in the hospital if he does not start eating his food. I finally told the doctor 2 weeks ago during his check up that I will like some blood work done, which we have done in the past. The result just came back and we were told that he might have Celiac disease - gluten allergy. I now feel we are on a long and difficult path. For a child that will not try food to save his life. How can we manage or cope with Celiac disease? Is anyone going through this? I was so frustrated before now I'm scared and worry about him.....don't even know where to start.

Jan 27, 2012
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Join us on FB
by: Anonymous

Cyndi, we started a FB page, the Non-Eating Child. A few of us are over there, writing about our trials/tribulations.

My son is now almost 3 & still only on a Pediasure diet. It frustrates me to no end that the pediatrician feels nothing is wrong as he is gaining weight. He told me he doesn't understand why he needs feeding therapy....really???

Dec 12, 2011
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Pedisure only diet
by: Cyndi

I have an non-eating child thats only on a pedisure diet and she's nineteen months, we are currently on a waiting list to be enrolled in to a feeding clinic that will help resolve this problem, Im very interested in talking to any parents with similar problems, about what they are doing to help their child cope with these issues. Thanks

Oct 27, 2011
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Facebook
by: Rose

Hello! I just posted on the facebook page you created. I hope to see you ladies on there more frequently. It would be really nice to have someone to talk to about David and the issues we deal with concerning his lack of eating.

Oct 27, 2011
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FOR CYNDI
by: Amy Handel

Thats an awesome idea cyndi! I will look for you on facebook- Its a MUCH easier way for all of us to encourage, support and give advice to each other! Peycien will be 7 in Jan and is presently eating ONLY plain chx sandwichs from Mcdons or wendys... She eats them about 3 times a week- other than that its 100 pediasure- we go through 5-6 per day and she goes to the nurses office at 10 and 2 every day for it.... I will look for you on FB and hope all you other gals will join us as well!

Oct 26, 2011
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2.5 year old son in same situation
by: Cindy NY

I'm so happy to have found this site. This has been my life for the past 2.5 years. My son started off breastfeeding (but mostly through pumped milk) & then wearily started solids (slowly) at 8.5 months. Around a year he was eating stage 1 foods & actually progressed to stage 3 (a couple). At some point he even ate plain vanilla yogurt, plain vanilla cake, powdered munchkins and veggie straws. Then at 2 years he just woke up & refused ALL baby food & all yogurt.

He would then go on 3 day jags....all veggie straws all day, then vanilla cake the next 3 days & then back to the veggie straws. He did this for a couple of months.

Then again one day he woke up & ate NOTHING. He lived on milk from a bottle (at a little over 2).

We had him evaluated through EI & they found nothing wrong :( They said he could benefit from feeding therapy but he was only lacking in that area so he didn't qualify through them. Spoke to our ped who said, "he's a typical toddler; they're picky." We ran bloodwork & it all came back normal (how I'm not sure, but happy it was). He was also gaining weight, although he's on the bottom of the curve.

We finally went through St. Mary's & had him evaluated & he currently receives feeding therapy 3x a week. He seems to have good sessions & bad sessions. She also said he definitely has sensory issues & that definitely needs to be addressed. She's recommending OT & now his speech is weak in some areas due to the lack of use of many of his muscles in his mouth/jaw since he doesn't chew anything.

I feel like we're getting somewhere, but no one seems to understand the frustration of a child who will only drink a bottle. They say, when he's hungry, he'll eat--But no, that isn't the case in 10% of children. He's in that 10%.

He currently only drinks 3-4 pediasures a day and juice--nothing else. Thankfully he loves his (nasty smelling/tasting) iron vitamins.

I'm going to start a page on FB for all of us who have this issue w/ their child. I think it would be a great forum for us to share our concerns/frustrations & it's a bit easier than email. I'll call it, "The Non-eating Child". Please join me there.

Sep 05, 2011
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for Michaels mom
by: Amy Handel

I so wish I had some great advice for you... Peycien is now 6 1/2 and in 1st grade and she goes to the nurses office twice a day for her Pediasures. It is her only source of nutrients at this time. She had made some advances and was eating yogurt and nilla wafers and a few other things for awhile but I believe she got so sick of eating the same things that she has pretty much stopped eating those things as well. Once in a great while she will have a bite of cheese pizza or a plain mcdonalds burger or a chx nugget- but thats few and far between. Near us there is a hospital that does an inpatient 30 day program called "Happy Mealtimes" which teaches kids w SPD how to eat but it has a long waiting list. If the program at UCLA is anything like this program I would suggest you do it as I have heard wonderful feedback about the one near me. Good luck to you!

Sep 04, 2011
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5 year old son also ONLY takes vanilla pediasure
by: michaels mom

My 5 year old son also only drinks vanilla pediasure. Pediasure and water are his entire diet. He only drinks it from a baby bottle too. Just bringing him the tiniest amount in a very tiny cup (smaller than a shot glass) will cause him to vomit. We have been doing OT since he was 2 years old and we have not made any progress. I used to joke nervously about sending my child to school with baby bottles of pediasure. Now it is a reality. We are out of ideas. He has been diagnosed with high functioning autism, but this does not provide us with a solution. I question wheter the OT approach is of any further use. We have been advised by the diagnostic team to take him to UCLA's partial hospitalization program. Would love to be in contact with anyone who has anything to offer as a suggestion other than, "have you tried offering him food?" or, "have you tried starving him until he agrees to eat or drink from a cup."

Jun 21, 2011
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Email?
by: Rose

Amy, I was wondering if you'd be willing to email me so we can swap stories/ideas? David just turned 6 this month and will be starting kindergarten in August. I'm nervous about him going but we'll get through it I'm sure. Anyway my email is TXRose0907@gmail.com. Hope to hear from you soon!

May 22, 2011
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A new strategy?
by: Anonymous

Hi everyone,

I completely understand how you guys feel. I had a son with reflux and no eating at all till he turned 1.5 yrs old. Even then, it was very minimal amounts. He would refuse pediasure and basically any flavored liquids...just drank a lot of formula. We started him on "periactin", which helped initially, but then the effects wore off. He is now almost 4 yrs old and things are a bit better. Here's what I learned:

- kids may initially start out with reflux or other sensory issues, but then as parents, we get worried and start pushing food, and eventually, food becomes an aversion to kids. It's better if we just lay off and give them options, allow them to have a ton of liquids, but continue to offer foods.

- as they get older, the aversion (and their stubbornness) just gets stronger. This completely happened with us.

- If I just let my son be, he will literally not get hungry and if/when he does, it is just expressed through tantrums/crankiness. No word of "I'm hungry" will come out of his mouth. I just have to then resort to milk as a quick fill me up. I would often wonder if I would have held back liquids at an earlier age, maybe he'd better associate food with hunger rather than milk (which he still does at this AGE!)

We started a new strategy with him - making success easy. We started with putting 2 bites of food on his plate for breakfast, lunch and dinner. He would finish (literally 2 bites of it) and feel sooo proud that he completed his meal. he knew we were happy and he was proud of himself. Gradually...very very gradually, we increased the amount to 3 bites, then 4 bites, etc. We still offer fairly small meals, but he enjoys the experience more and eats a bit better. He still doesn't eat well and i have to feed him (because it's just become a habit), but the aversion part of it is less than it used to be.

I guess that's just an idea for those of you that feel your child may have developed a behavioral aversion to food and it's become a power struggle...

May 21, 2011
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still not eating
by: Amy Handel

My daughter spit up alot until we switched her to a soy formula, but after that she was ok. She is 6 now and about to finish kindergarten and STILL gets all her nutrients from pediasure (Vanilla only still!) She loves water and choc milk as well but thats all she drinks except for an occasional smoothie from smoothie king. We have not progressed very much although she will take bites of chicken nuggets and a McDonalds plain hamburger. It had been 2 steps forward,1 back for the last 3 1/2 years. I have been told that she will try to eat more when peer pressure hits, as kids dont want to appear "different" from their friends...

May 20, 2011
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Mainly drinks pediasure
by: Rose

Katherine, I have no idea if there is a connection but my son spit up A LOT when he was a baby. We ended up putting him on a special formula because of it. He was never diagnosed with reflux but he did have slow growth at first. Feel free to email me if you'd like. And for those who have previously emailed me at rosenick0907@gmail.com I have a new email now it is txrose0907@gmail.com

I'd love to hear from you all again. We are not seeing any progress in our 5 (almost 6) year olds eating. :-/

May 13, 2011
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I'm in the same boat.
by: Katherine

Hello to all the frustrated moms out there. I too have a picky eater. My son would only eat Chicken Nuggets and PB & J sandwiches. Now he is sick of those and won't eat anything else. We've tried everything to get him to try new foods but he has such a intense fear of trying something new that we have held off on trying. I just feel like we're making it worse. We also give him Pediasure just to add a little bit of nourishment. I did want to ask if any of your picky eaters had acid reflux as a baby? I'm wondering if there is a connection?

Thank you,
Katherine

Mar 11, 2011
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wow!
by: sela

I found this website about having hard time trying to get child to eat real food. i read each person's story *tears* omg, i thought i am the only one mom been dealing with my son. he has vision disability & is 3 & half years old, my happiness. he used to eat his favorite homemade food such as cooked rice, soup, soft meats, chicken, fish, mashed potatoes food than fast- food up til' he got his medications for his low growth. then after that, he stopped eating, & its frustrating like i have to do try to work with feeding all over again.. it don't work. my son refused to take sippy cup or cup. he prefers the nipple bottle with pedicures mostly vanilla (so expensive) :( water, juice & milk ONLY :( is there anyone who has similar with this. please email me at tongangirly@yahoo.com. i hope to hear from you soon.

Feb 16, 2011
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Work with an OT sooner than later
by: Joan

Parents with younger kids (2 and up):Work with an Occupational Therapist who understands sensory integration sooner than later. It helps!My son will be 6 in March and has always had a problem with food-All of the comments above match our experience. He loved breast feeding and bottles. But he resisted any introduction to solids from 1 year on....he would try to eat and then just throw his whole meal up. We'd back off and try again later. He has a very limited diet, and has NO interest in food (beyond getting his stomach past hunger). He still gags/throws-up when we introduce many new foods. But he is improving (SLOWLY) since we started him on weekly OT visits at Kaiser this past year. Kaiser only offered this service to us after we received a sensory integration (olfactory) diagnosis from a private OT, and had a Kaiser nutritionist document all his nutritional deficiencies. For insurance coverage, you have to prove the problem is a ?medical? threat, and not developmental. Very frustrating b/c once we saw the Kaiser OT, she said we should have brought him in for OT services 3 years earlier. Many pediatricians aren?t well informed in these types of problems (sensory, speech issues etc.) and are very slow to respond or dismissive of red flags. So follow your gut, talk to other parents and figure it out on your own. Then pay a specialist out of pocket for a diagnosis and push on from there.

My son now meets the OT for an hour weekly and she introduces new foods in a non threatening way. He hates going but is finally eating small amounts of meat and is more willing to "try" things. Explaining the food pyramid to him, as well as his body's need for all food groups to grow strong and healthy seemed to help make sense of our food push to him. He can identify things he eats on the pyramid as protein, grain, fruits, vegs., and can see where he is falling short. We keep a point chart (25 cents a point) for cooperating during OT sessions and trying completely new foods without arguing (one bite to start). As non-preferred foods become tolerable (no gagging), he?s expected to increase the number of bites each meal (2,4,6). In addition to preferred foods, he is expected to take one small bite of everything the family is eating and his plate must include all foods on the same plate as preferred food. This took time for him to accept. The process has been painful for us.

By 6 there is a learned behavior playing into this. But he insists many foods disgust him (smell and appearance). And I see him turn white, and look sick so I know he's not kidding. Our OT is having him looked at by a GI and allergist next week to insure nothing else is a cause. A Kaiser child therapist (deals w/ eating disorders) is assessing him next week to address the fear/anxiety he feels around food, and provide tools to help. It's been a year+ since we started pushing this, but we're seeing improvement, and if we keep at it, it will get better each year. Best!

Feb 16, 2011
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son with food aversion
by: Frustrated!

Hi everyone,

It's really really great to see others going through similar issues. My 3.5 yr old son has a complete food aversion. He was born very underweight and I was always an anxious feeder, whether it was nursing, going to a bottle, starting solids, etc. It now is at the point where he cares to eat and drink NOTHING! I am able to get him to drink whole milk from a sippy (24 oz a day), but that's about it. He will have 1-2 bites of breakfast, 1-2 bites of lunch, and 1-2 bites of dinner and even that, not at his own volition. I have to have him sit down and literally feed him. He doesn't care for chips, cookies, ice cream, literally nothing! I am sooo frustrated, sad, have sleepless nights over this.

We have met with tons of specialists...feeding specialists, GI docs, nutritionist, etc. Everyone just says the same thing...there's nothing wrong with him, we just have to lay off. I have laid off for quite a while now and maybe it'll take years of laying off for him to get over the aversion, but it's very difficult to see your son eat so little. Things also become a power struggle with him very easily. For instance, this food thing is primarily an aversion, but it's also a power struggle/control thing for him. If you have any pointers, please email me:
shikha.m.malhotra@gmail.com

Jan 24, 2011
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In shock
by: Rose

I am nearly in tears reading this! My 5 and a half yr old son only eats Sunchips, fries, pizza crust (with no sauce or cheese on it), and 100 cal pack cookies and MILK. I allow him 2 pediasure drinks a day (they're expensive!). He won't try new foods or even drink water. I have to dilute his milk (without him knowing) to get any water in him. It is SO frustrating and heartbreaking to me. I feel so alone and so JUDGED by friends and family. I've been looking all over the internet for someone, anyone, who is going through the same thing.

His two younger brothers are also picky but not nearly as bad. Even when he was a baby starting new foods, any weird textures would make him gag. He ate babyfood until he was almost 2 because of this issue. I've tried everything I know to try. I even (at the drs orders) cut him off from the milk and sunchips and by the end of the second day he was throwing up stomach bile, his eyes were sunken in and he was lethargic...I felt like I was the worst mommy in the world. At that moment I swore never to "starve" him again. Is there any way you (or anyone on here!) could email me and we could keep in touch about it? I feel so alone! Here's my email: rosenick0907@gmail.com

Thank you, again, for sharing your story. It helps just knowing I'm not alone!

Dec 02, 2010
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picky 8yr old
by: Anonymous

I don't feel so alone now, I never knew there were so many kids with this same problem. My son is 8 years old, he met all his developmental milestones and never gave me any feeding problems until about 15 mos old. He stopped eating solids all together. He only ate baby food until he turned 5 when we decided to take him off that to see if he would finally start to eat. That did not work, now he only eats nuggets (mcdonalds) cheerios (w/out milk), yogurt, milk(which I mix w/pediasure w/out him knowing), fries, and some cookies or chips not even all kinds of junk food, he's picky about that too. Thankfully he is growing and his labs are fine, but it is extremely frustrating. He doesn't fit all the signs from the checklist, only about 2. he just simply refuses to try anything new, it does not interest him in the least to eat. I have tried everything & the pediatricians just tell me to let him go hungry, that does not work.
Any suggestions are welcome.

Nov 29, 2010
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response
by: Anonymous

@momof1- my daughter went into a special pre-k class when she was 3 at our local district elementary school due to her sensory and ADHD issues and it helped her tremendously in every area except eating! Now she is in a mainstream kindergarten and I pack her lunch daily with vanilla Activia yogurt, water and 4 vanilla wafers. She also has a choc milk daily. That's all she will eat at school.
@breastfeeds only- my daughter would NEVER latch on to the breast! i worked with a lactation consultant but she wanted nothing to do with nursing and began losing weight so we had to supplement her. I would get your baby evaluated now....

Good luck to you both!!!

Nov 29, 2010
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Breastfeeds only
by: Sara

Hi,

My 17 month old is on this path. She has never taken to food, bottles or sippy cups - so we can't even get pediasure in her. She looooves breastfeeding. I'm wondering if you ladies had similar experiences. Did you have a hard time weaning these kiddos? A part of me feels like I'm going to nurse her forever. I'd really love to get her to transition. Any suggestions?

Nov 11, 2010
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thank you!
by: momof1

I thought I was the only one dealing with this! My son is 4 an still only has pediasure and will only drink it with a bottle top on it!!!! It's been frustrating trying to get him to eat food. I'm so happy to know we are not alone. I'm just afraid of sending him to school next year. Has anyone had to deal with that yet?

Nov 03, 2010
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In The Same Boat
by: Sarah

Dear Amy, We too have a 5yr old who has been entirely fed on Paediasure milk drinks. We were unable to wean him. He is hypersensitive especially around his mouth and we struggle greatly to brush his teeth. He finds messy play difficult and is very anxious in new social situations. I would very much like to be in contact with a family in a similar position to us as it is very isolating and our situation is much misunderstood. If you feel able to email me at sarahwood60@hotmail.com I would be so pleased to hear from you. (We are in the UK). Very best wishes. Sarah.

Oct 28, 2010
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update
by: Amy

Thank you all for your responses! Ive just gotten my daughter (finally) off the sippy cup- she now takes her pediasure with a straw except for her nighttime one (she has a pediasure in middle of the night STILL and has never slept through the night)and it makes me feel better that there are others who go through this!
as far as meds- she actually takes some easily now and the ones she resists we put in her pediasure... the only thing we haven't found is a vitamin that can be easily mixed into her pediasure without making it taste gross... if her pediasure tastes weird, she will not touch it. Also, do any of you have a hard time getting your child to sleep in their own bed? She is the only child (we have 5 but 1 is a teenager)of ours that doesn't stay in her own bed....usually she falls asleep in it but always comes into ours... anyway- thanx again for the responses!

Oct 25, 2010
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3 year-old on Vanilla Pediasure
by: SC

You are not alone. My 3-year-old daughter is also on Vanilla pediasure. She has never eaten solid foods of any kind, including baby food, soup, etc. She has progressed to licking crackers and pretzels, but will not take a bite. She has been in therapy for a year and a half, with no improvement. She will only take the pediasure from a bottle, she is still unable to drink from a cup.

Any kind of sickness is very difficult for us too. We have to keep an extra close eye on her, she has been hospitalized twice with dehydration, since she refuses all water/juice.

Anyway, glad to know we are not the only ones dealing with this!

Oct 09, 2010
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nutrition problem
by: Anonymous

I live the same experience with my baby, she eats very little food "junk food. " I have not managed to improve his nutrition, when she is sick is a big problem because it does not take medicine and I send her mouth with a syringe without needle. she has PDD-NOS.

Oct 09, 2010
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I am in the same situation as you.
by: shahnaaz

Yes this is a very difficult situation. I have a really hard time when my son gets sick and does not take meds. He has his antibiotics intravenously. If any one knows how to get these kids into the habit of taking their meds pls let me know.

I have been told that new foods should be introduced small portions at at time in to the foods that your child already eats like in a spoonful of ice cream you could add a quarter or less of the new food at the back of the spoon and this way every week you should increase the amount very little at a time.

If any one knows how to get meds into a child like this please let me know.

And i would like to tell all the parents out there keep going and neer give up.

Oct 09, 2010
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thanks!
by: Amy

Thank you for your post! its good to know that im not alone in this... most people look at me so strangely when i tell them my daughter doesn't eat...
Does anyone know of any support groups for parents of kids with SPD's?

Oct 08, 2010
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non-eating child
by: Anonymous

My child was the same way. He wouldn't eat and we did all kinds of therapy also. After talking with the pediatrician I just decided to stop trying to get him to eat new food and to let him eat what he wanted and supplement his nutrition with the shakes. With the pressure gone he seems to be more willing to try things. He now asks to try different things. If he likes it great, if he doesn't no big deal. In the year that I have done this he has gone from 41 pounds to 50 pounds. I used to be happy if he at least stayed the same weight between doctor visits. This seems to work for him. No pressure, no arguments ect. He still really doesn't eat that much of a variety but is more willing to try.

Oct 20, 2015
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5 year old will not try any new food no matter what!
by: Shevona

I try everything to get my 5 yr old to try a new food but he will not budge. Not even money or toys will make m change his mind. He is dairy intolerant which limits him even more. As a baby he only started eating table food at 19 months and did not do purée food. He will not eat cooked veg, he will eat fresh raw vegetable but is not consistent, his palate seems to prefer strong flavones as he will eat raw onions, fresh herbs straight from the tree, a lot of Indian seeds, loves DHA and flaxseed oil, eats breaded chicken nuggets, fish sticks, boiled pasta with butter and salt, bacon, peanut butter and edamame along with French fries which is the only cooked veg that he will have. He also eats ages and oatmeal. We thought he may have a texture issue but he will eat oatmeal. He would rather starve than try one mouth and get whatever toy of his choosing. We don't go out and I always try to feed him before going anywhere.

When he first started eating around 2 years old he used to lick the salt of fries and want salt in his hand to lick. School lunches is becoming more difficult. Anyone else go through this or have any advice? He did have a speech delay and had to have therapy for it.

Aug 31, 2015
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6 year old finally eats
by: Anonymom

Our son is 6 now and he'll eat, it at least try, just about anything. Up until about a year ago, he only ate a handful of foods. Even as an infant, he never liked formula and never would eat baby food. Kindergarten, I believe, is what changed him. He took his own lunch most of the year, but it seems like he got curious, and started to taste a few new things his friends had, and he hasn't looked back since. Even now though, he gags frequently when trying new food, but he's trying! We make a very big deal out of him trying new things and he gets very proud. It definitely helps. Doctors never took us seriously because he was never underweight. His speech therapist was supposed to help with the food issue, but it never helped. I have no advice other than keep trying. I've been there. Good luck!

Jul 18, 2014
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Confused!
by: Seppe

Does Cassandra have a point. Healthy food is great. What does that have to do with our topic! Cassandra you should be banned unless you help us with our childrens immediate problem of not eating. Weather it's potato chips or a vitamin supplement. They just need to take in food of any sort. If they eat, then we can focus on healthy.

Jun 12, 2013
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my almost 2 yr old will not eat
by: cass

my son will be two in july when he turned one and even befor he ate everything ive given him woth no fuss about it but since he turned 16 months he refused to eat what i made till this day he only eats junl food yogurt and fries chicken nuggets n pizza rolls and sometimes cereal eggs and pbnj sandwiches . i get very upset cuz his father gose behind my back and gives him sugary foods behind my back when i tell him not to my ways of parwnting is if they dont eat whats in front of them they dont eat at all until the next meal. seems harsh but it worked ounce for like two months and it took me three months to get him to eat the food i made now he wont touch noting when his father is home he refuses suppers due to his father cuz he knows daddy will give out the treats n its stsrting to wreck the whole family my son is looseing weight he still fits in sise 12 month clothes n is tall comes up to my waist im 5"5 so plz any one plz give some suggestions im in desprate need n im scared that is his father keeps his crap up my son will eventually get sick or diabeties or die from malnutrishon plz email me at kubsh71@gmail.com thank you

Jun 03, 2016
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My 5 year won' t eat
by: Amy

My 5 year old won't eat. He too takes pediasure, but that is because he was and has always been under weight. Has anybody ever thought that this could be something psychological. Especially if there is abuse going on in the home?

Jun 02, 2014
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4yr old want eat at all
by: Edna

I have never seen a kid that Does Not eat at all

May 16, 2013
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My experiences
by: Good luck to yah

I am a ten year old to u with the strep throat child right now I have strep throat I tried to eat cereal earlier and it still tastes funny (and hurts) how long exactly has she said this

Jan 20, 2016
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child not eating normal
by: Anonymous

2 yrs chilled not eat any kinds foot only water some time drinking milk not all the cub,all the time he but his fingers in his mouths,he active and walking,plying

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