Non-Eating Child

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Non-Eating Child

by Amy Handel
(Bradenton FL)

My 5 1/2 year old still does not eat! She gets ALL of her nutrition from vanilla pediasure! The only other food of any decent quantity she will eat is yogurt (vanilla only and it must be creamy and smooth in texture) and french fries(but not the ends or any crunchy or brown/black parts).She will lick potato chips, pretzels,or tortilla chips but rarely will bite them. We have done all types of therapies but she STILL doesnt eat. Has anyone been through this and what did you do??? Thanks!

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Non-Eating Child

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Apr 28, 2012
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There w/ you Vicky
by: Cindy NY

Vicky, I can totally relate--I wrote below, but my son will be 3 next week & since last June has ONLY drank Pediasure Strawberry. Same thing, if we tried to give him vanilla or chocolate, he'd refuse it & have a fit. He's been in feeding therapy since Sept. & they've really not gotten anywhere. He sometimes will pick the food up or smell it or do messy play with it--but as soon as they try to get him to bring to his lips, he shuts down. He has never eaten anything he had to chew. At one point (after baby food) he was eating vanilla ice cream & vanilla yogurt & smashed up bananas & then one day he just stopped.

He's been to every specialist & there is nothing physically wrong. They do believe part is sensory but they now say it's a mental thing. His fight/flight stimulus acts up when food is presented, hence his shutting down. They keep asking if anything happened to him (choking, etc.) but nothing ever has.

We're now putting him in an intensive program 5 days a week, 7 hours a day where they try to re-program him in regards to food & make it a good thing again. We've tried every other option & the program has a 99.9% success rate (w/ 1 family dropping out, only b/c the parents couldnt' commit to the hours anymore).

Also pls. look for us on FB: the non-eating child

Apr 25, 2012
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response
by: Amy Handel

Vicky, I wish I had good advice for you... my 7 year old gets 95% of her nutrients from Pediasure and only eats an extremely limited amount of food.. we have heard as peer pressure starts, then she will have more incentive to eat... I wish you luck with your 4 year old.

and anonymous- I am glad that your daughter eats now and I hope mine will start to as well as she is very skinny and needs to put on some weight too. Take care.

Apr 25, 2012
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My daughter was in her late 20's when she finally realized she was too skinny from not eating enough food.
by: Anonymous

She started doing the not wanting to eat a six and was skinnier than her older sister and younger brother. I asked her to tell me if she wanted to buy her lunch and she said no. I asked her if she wanted to make her own lunch and she made a sandwich with a half of piece of bread and the smallest amount of peanut butter you could ever put on a sandwich. I just made a regular sandwich and asked her to eat as much as she could at lunch. She would sit at the dinner table and everyone else was done eating. Years later I was told she gave the food she did not want to her sister and brother. She also spit some out in the toilet.

She grew up to be a beautiful and sweet person without the normal boobs because she was so skinny. She started eating edamame beans, she always loved rice and other foods I was not familiar with at the time. She ate a lot of health foods.

She was a tech in the ER at a hospital after completing work in the office. They always put her on top to do the CPR because she was so small. One day a doctor asked her why is she doing the skinny to herself? She did not have an answer and told me. I just said I told you to eat more as well. She finally started eating regular meals and is a beautiful 5 foot 4 inch beautiful woman who weighs 115. I am grateful she finally realized how skinny she was.

Feb 27, 2012
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Desperate Mom
by: Vicky

My daugther will be 4 in May and she is 100% dependent on Kids Essential 1.5 Vanilla flavor. This product was recommended for her doctor to help her gain weight since she was only bottle feeded and was not gaining weight and almost Failure to Thrive. Now, this is 100% of her nutrition. She is almost 4 and has never ever swallowed anything solid. She only drinks this and water. No juices, no milk, nothing solid, nothing, KE 1.5 and water. That is it. We can’t change the flavor because she won’t drink it. She also doesn't drink big volumes only probably 20 oz a day so we need a high calorie formula to help her maintain the weight. Thanks to this formula she hasn't needed a G Tube. Any advise will be very much appreciated. We are desperate.

Feb 06, 2012
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reply
by: Amy Handel

Wow, I couldnt imagine my daughter being GF on top of the SPD... That must be a big disappointment for you as I KNOW how difficult it is getting kids w SPD to try new things! Like your son, my 7 yo daughter eats very little and gets all her nutrients from Pediasure. As a result she has to wear pull ups at night as she will wet the bed, which is very embarrassing to her. Join us on facebook- just search "non eating child"..e may be someone that is going through the same thing you are!

Feb 06, 2012
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having serious issue
by: Debbie

Now I feel I'm not alone. It's been a trying 10 years for us. My son is now 10 and he's still an extremely picky eater. At 10, he's on pediasure, he will only eat McD nuggets and fries, Hungry Howie cheese pizza (only cheese) and apple. This has been a very big struggle for my family. We have tried everything in the world, starved him, took away all his priviledges and toys, talked to him, tried bribing him but nothing worked. He's a lot smaller than his age, we enrolled him in different sports like soccer and baseball to see if he's going to be tired and hungry and want anything or something but still did not succeed. His pediatrician kept saying we should keep introducing new foods to him and even told him that she will have to keep him in the hospital if he does not start eating his food. I finally told the doctor 2 weeks ago during his check up that I will like some blood work done, which we have done in the past. The result just came back and we were told that he might have Celiac disease - gluten allergy. I now feel we are on a long and difficult path. For a child that will not try food to save his life. How can we manage or cope with Celiac disease? Is anyone going through this? I was so frustrated before now I'm scared and worry about him.....don't even know where to start.

Jan 27, 2012
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Join us on FB
by: Anonymous

Cyndi, we started a FB page, the Non-Eating Child. A few of us are over there, writing about our trials/tribulations.

My son is now almost 3 & still only on a Pediasure diet. It frustrates me to no end that the pediatrician feels nothing is wrong as he is gaining weight. He told me he doesn't understand why he needs feeding therapy....really???

Dec 12, 2011
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Pedisure only diet
by: Cyndi

I have an non-eating child thats only on a pedisure diet and she's nineteen months, we are currently on a waiting list to be enrolled in to a feeding clinic that will help resolve this problem, Im very interested in talking to any parents with similar problems, about what they are doing to help their child cope with these issues. Thanks

Oct 27, 2011
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Facebook
by: Rose

Hello! I just posted on the facebook page you created. I hope to see you ladies on there more frequently. It would be really nice to have someone to talk to about David and the issues we deal with concerning his lack of eating.

Oct 27, 2011
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FOR CYNDI
by: Amy Handel

Thats an awesome idea cyndi! I will look for you on facebook- Its a MUCH easier way for all of us to encourage, support and give advice to each other! Peycien will be 7 in Jan and is presently eating ONLY plain chx sandwichs from Mcdons or wendys... She eats them about 3 times a week- other than that its 100 pediasure- we go through 5-6 per day and she goes to the nurses office at 10 and 2 every day for it.... I will look for you on FB and hope all you other gals will join us as well!

Oct 26, 2011
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2.5 year old son in same situation
by: Cindy NY

I'm so happy to have found this site. This has been my life for the past 2.5 years. My son started off breastfeeding (but mostly through pumped milk) & then wearily started solids (slowly) at 8.5 months. Around a year he was eating stage 1 foods & actually progressed to stage 3 (a couple). At some point he even ate plain vanilla yogurt, plain vanilla cake, powdered munchkins and veggie straws. Then at 2 years he just woke up & refused ALL baby food & all yogurt.

He would then go on 3 day jags....all veggie straws all day, then vanilla cake the next 3 days & then back to the veggie straws. He did this for a couple of months.

Then again one day he woke up & ate NOTHING. He lived on milk from a bottle (at a little over 2).

We had him evaluated through EI & they found nothing wrong :( They said he could benefit from feeding therapy but he was only lacking in that area so he didn't qualify through them. Spoke to our ped who said, "he's a typical toddler; they're picky." We ran bloodwork & it all came back normal (how I'm not sure, but happy it was). He was also gaining weight, although he's on the bottom of the curve.

We finally went through St. Mary's & had him evaluated & he currently receives feeding therapy 3x a week. He seems to have good sessions & bad sessions. She also said he definitely has sensory issues & that definitely needs to be addressed. She's recommending OT & now his speech is weak in some areas due to the lack of use of many of his muscles in his mouth/jaw since he doesn't chew anything.

I feel like we're getting somewhere, but no one seems to understand the frustration of a child who will only drink a bottle. They say, when he's hungry, he'll eat--But no, that isn't the case in 10% of children. He's in that 10%.

He currently only drinks 3-4 pediasures a day and juice--nothing else. Thankfully he loves his (nasty smelling/tasting) iron vitamins.

I'm going to start a page on FB for all of us who have this issue w/ their child. I think it would be a great forum for us to share our concerns/frustrations & it's a bit easier than email. I'll call it, "The Non-eating Child". Please join me there.

Sep 05, 2011
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for Michaels mom
by: Amy Handel

I so wish I had some great advice for you... Peycien is now 6 1/2 and in 1st grade and she goes to the nurses office twice a day for her Pediasures. It is her only source of nutrients at this time. She had made some advances and was eating yogurt and nilla wafers and a few other things for awhile but I believe she got so sick of eating the same things that she has pretty much stopped eating those things as well. Once in a great while she will have a bite of cheese pizza or a plain mcdonalds burger or a chx nugget- but thats few and far between. Near us there is a hospital that does an inpatient 30 day program called "Happy Mealtimes" which teaches kids w SPD how to eat but it has a long waiting list. If the program at UCLA is anything like this program I would suggest you do it as I have heard wonderful feedback about the one near me. Good luck to you!

Sep 04, 2011
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5 year old son also ONLY takes vanilla pediasure
by: michaels mom

My 5 year old son also only drinks vanilla pediasure. Pediasure and water are his entire diet. He only drinks it from a baby bottle too. Just bringing him the tiniest amount in a very tiny cup (smaller than a shot glass) will cause him to vomit. We have been doing OT since he was 2 years old and we have not made any progress. I used to joke nervously about sending my child to school with baby bottles of pediasure. Now it is a reality. We are out of ideas. He has been diagnosed with high functioning autism, but this does not provide us with a solution. I question wheter the OT approach is of any further use. We have been advised by the diagnostic team to take him to UCLA's partial hospitalization program. Would love to be in contact with anyone who has anything to offer as a suggestion other than, "have you tried offering him food?" or, "have you tried starving him until he agrees to eat or drink from a cup."

Jun 21, 2011
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Email?
by: Rose

Amy, I was wondering if you'd be willing to email me so we can swap stories/ideas? David just turned 6 this month and will be starting kindergarten in August. I'm nervous about him going but we'll get through it I'm sure. Anyway my email is TXRose0907@gmail.com. Hope to hear from you soon!

May 22, 2011
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A new strategy?
by: Anonymous

Hi everyone,

I completely understand how you guys feel. I had a son with reflux and no eating at all till he turned 1.5 yrs old. Even then, it was very minimal amounts. He would refuse pediasure and basically any flavored liquids...just drank a lot of formula. We started him on "periactin", which helped initially, but then the effects wore off. He is now almost 4 yrs old and things are a bit better. Here's what I learned:

- kids may initially start out with reflux or other sensory issues, but then as parents, we get worried and start pushing food, and eventually, food becomes an aversion to kids. It's better if we just lay off and give them options, allow them to have a ton of liquids, but continue to offer foods.

- as they get older, the aversion (and their stubbornness) just gets stronger. This completely happened with us.

- If I just let my son be, he will literally not get hungry and if/when he does, it is just expressed through tantrums/crankiness. No word of "I'm hungry" will come out of his mouth. I just have to then resort to milk as a quick fill me up. I would often wonder if I would have held back liquids at an earlier age, maybe he'd better associate food with hunger rather than milk (which he still does at this AGE!)

We started a new strategy with him - making success easy. We started with putting 2 bites of food on his plate for breakfast, lunch and dinner. He would finish (literally 2 bites of it) and feel sooo proud that he completed his meal. he knew we were happy and he was proud of himself. Gradually...very very gradually, we increased the amount to 3 bites, then 4 bites, etc. We still offer fairly small meals, but he enjoys the experience more and eats a bit better. He still doesn't eat well and i have to feed him (because it's just become a habit), but the aversion part of it is less than it used to be.

I guess that's just an idea for those of you that feel your child may have developed a behavioral aversion to food and it's become a power struggle...

May 21, 2011
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still not eating
by: Amy Handel

My daughter spit up alot until we switched her to a soy formula, but after that she was ok. She is 6 now and about to finish kindergarten and STILL gets all her nutrients from pediasure (Vanilla only still!) She loves water and choc milk as well but thats all she drinks except for an occasional smoothie from smoothie king. We have not progressed very much although she will take bites of chicken nuggets and a McDonalds plain hamburger. It had been 2 steps forward,1 back for the last 3 1/2 years. I have been told that she will try to eat more when peer pressure hits, as kids dont want to appear "different" from their friends...

May 20, 2011
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Mainly drinks pediasure
by: Rose

Katherine, I have no idea if there is a connection but my son spit up A LOT when he was a baby. We ended up putting him on a special formula because of it. He was never diagnosed with reflux but he did have slow growth at first. Feel free to email me if you'd like. And for those who have previously emailed me at rosenick0907@gmail.com I have a new email now it is txrose0907@gmail.com

I'd love to hear from you all again. We are not seeing any progress in our 5 (almost 6) year olds eating. :-/

May 13, 2011
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I'm in the same boat.
by: Katherine

Hello to all the frustrated moms out there. I too have a picky eater. My son would only eat Chicken Nuggets and PB & J sandwiches. Now he is sick of those and won't eat anything else. We've tried everything to get him to try new foods but he has such a intense fear of trying something new that we have held off on trying. I just feel like we're making it worse. We also give him Pediasure just to add a little bit of nourishment. I did want to ask if any of your picky eaters had acid reflux as a baby? I'm wondering if there is a connection?

Thank you,
Katherine

Mar 11, 2011
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wow!
by: sela

I found this website about having hard time trying to get child to eat real food. i read each person's story *tears* omg, i thought i am the only one mom been dealing with my son. he has vision disability & is 3 & half years old, my happiness. he used to eat his favorite homemade food such as cooked rice, soup, soft meats, chicken, fish, mashed potatoes food than fast- food up til' he got his medications for his low growth. then after that, he stopped eating, & its frustrating like i have to do try to work with feeding all over again.. it don't work. my son refused to take sippy cup or cup. he prefers the nipple bottle with pedicures mostly vanilla (so expensive) :( water, juice & milk ONLY :( is there anyone who has similar with this. please email me at tongangirly@yahoo.com. i hope to hear from you soon.

Feb 16, 2011
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Work with an OT sooner than later
by: Joan

Parents with younger kids (2 and up):Work with an Occupational Therapist who understands sensory integration sooner than later. It helps!My son will be 6 in March and has always had a problem with food-All of the comments above match our experience. He loved breast feeding and bottles. But he resisted any introduction to solids from 1 year on....he would try to eat and then just throw his whole meal up. We'd back off and try again later. He has a very limited diet, and has NO interest in food (beyond getting his stomach past hunger). He still gags/throws-up when we introduce many new foods. But he is improving (SLOWLY) since we started him on weekly OT visits at Kaiser this past year. Kaiser only offered this service to us after we received a sensory integration (olfactory) diagnosis from a private OT, and had a Kaiser nutritionist document all his nutritional deficiencies. For insurance coverage, you have to prove the problem is a ?medical? threat, and not developmental. Very frustrating b/c once we saw the Kaiser OT, she said we should have brought him in for OT services 3 years earlier. Many pediatricians aren?t well informed in these types of problems (sensory, speech issues etc.) and are very slow to respond or dismissive of red flags. So follow your gut, talk to other parents and figure it out on your own. Then pay a specialist out of pocket for a diagnosis and push on from there.

My son now meets the OT for an hour weekly and she introduces new foods in a non threatening way. He hates going but is finally eating small amounts of meat and is more willing to "try" things. Explaining the food pyramid to him, as well as his body's need for all food groups to grow strong and healthy seemed to help make sense of our food push to him. He can identify things he eats on the pyramid as protein, grain, fruits, vegs., and can see where he is falling short. We keep a point chart (25 cents a point) for cooperating during OT sessions and trying completely new foods without arguing (one bite to start). As non-preferred foods become tolerable (no gagging), he?s expected to increase the number of bites each meal (2,4,6). In addition to preferred foods, he is expected to take one small bite of everything the family is eating and his plate must include all foods on the same plate as preferred food. This took time for him to accept. The process has been painful for us.

By 6 there is a learned behavior playing into this. But he insists many foods disgust him (smell and appearance). And I see him turn white, and look sick so I know he's not kidding. Our OT is having him looked at by a GI and allergist next week to insure nothing else is a cause. A Kaiser child therapist (deals w/ eating disorders) is assessing him next week to address the fear/anxiety he feels around food, and provide tools to help. It's been a year+ since we started pushing this, but we're seeing improvement, and if we keep at it, it will get better each year. Best!

Feb 16, 2011
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son with food aversion
by: Frustrated!

Hi everyone,

It's really really great to see others going through similar issues. My 3.5 yr old son has a complete food aversion. He was born very underweight and I was always an anxious feeder, whether it was nursing, going to a bottle, starting solids, etc. It now is at the point where he cares to eat and drink NOTHING! I am able to get him to drink whole milk from a sippy (24 oz a day), but that's about it. He will have 1-2 bites of breakfast, 1-2 bites of lunch, and 1-2 bites of dinner and even that, not at his own volition. I have to have him sit down and literally feed him. He doesn't care for chips, cookies, ice cream, literally nothing! I am sooo frustrated, sad, have sleepless nights over this.

We have met with tons of specialists...feeding specialists, GI docs, nutritionist, etc. Everyone just says the same thing...there's nothing wrong with him, we just have to lay off. I have laid off for quite a while now and maybe it'll take years of laying off for him to get over the aversion, but it's very difficult to see your son eat so little. Things also become a power struggle with him very easily. For instance, this food thing is primarily an aversion, but it's also a power struggle/control thing for him. If you have any pointers, please email me:
shikha.m.malhotra@gmail.com

Jan 24, 2011
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In shock
by: Rose

I am nearly in tears reading this! My 5 and a half yr old son only eats Sunchips, fries, pizza crust (with no sauce or cheese on it), and 100 cal pack cookies and MILK. I allow him 2 pediasure drinks a day (they're expensive!). He won't try new foods or even drink water. I have to dilute his milk (without him knowing) to get any water in him. It is SO frustrating and heartbreaking to me. I feel so alone and so JUDGED by friends and family. I've been looking all over the internet for someone, anyone, who is going through the same thing.

His two younger brothers are also picky but not nearly as bad. Even when he was a baby starting new foods, any weird textures would make him gag. He ate babyfood until he was almost 2 because of this issue. I've tried everything I know to try. I even (at the drs orders) cut him off from the milk and sunchips and by the end of the second day he was throwing up stomach bile, his eyes were sunken in and he was lethargic...I felt like I was the worst mommy in the world. At that moment I swore never to "starve" him again. Is there any way you (or anyone on here!) could email me and we could keep in touch about it? I feel so alone! Here's my email: rosenick0907@gmail.com

Thank you, again, for sharing your story. It helps just knowing I'm not alone!

Dec 02, 2010
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picky 8yr old
by: Anonymous

I don't feel so alone now, I never knew there were so many kids with this same problem. My son is 8 years old, he met all his developmental milestones and never gave me any feeding problems until about 15 mos old. He stopped eating solids all together. He only ate baby food until he turned 5 when we decided to take him off that to see if he would finally start to eat. That did not work, now he only eats nuggets (mcdonalds) cheerios (w/out milk), yogurt, milk(which I mix w/pediasure w/out him knowing), fries, and some cookies or chips not even all kinds of junk food, he's picky about that too. Thankfully he is growing and his labs are fine, but it is extremely frustrating. He doesn't fit all the signs from the checklist, only about 2. he just simply refuses to try anything new, it does not interest him in the least to eat. I have tried everything & the pediatricians just tell me to let him go hungry, that does not work.
Any suggestions are welcome.

Nov 29, 2010
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response
by: Anonymous

@momof1- my daughter went into a special pre-k class when she was 3 at our local district elementary school due to her sensory and ADHD issues and it helped her tremendously in every area except eating! Now she is in a mainstream kindergarten and I pack her lunch daily with vanilla Activia yogurt, water and 4 vanilla wafers. She also has a choc milk daily. That's all she will eat at school.
@breastfeeds only- my daughter would NEVER latch on to the breast! i worked with a lactation consultant but she wanted nothing to do with nursing and began losing weight so we had to supplement her. I would get your baby evaluated now....

Good luck to you both!!!

Nov 29, 2010
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Breastfeeds only
by: Sara

Hi,

My 17 month old is on this path. She has never taken to food, bottles or sippy cups - so we can't even get pediasure in her. She looooves breastfeeding. I'm wondering if you ladies had similar experiences. Did you have a hard time weaning these kiddos? A part of me feels like I'm going to nurse her forever. I'd really love to get her to transition. Any suggestions?

Nov 11, 2010
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thank you!
by: momof1

I thought I was the only one dealing with this! My son is 4 an still only has pediasure and will only drink it with a bottle top on it!!!! It's been frustrating trying to get him to eat food. I'm so happy to know we are not alone. I'm just afraid of sending him to school next year. Has anyone had to deal with that yet?

Nov 03, 2010
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In The Same Boat
by: Sarah

Dear Amy, We too have a 5yr old who has been entirely fed on Paediasure milk drinks. We were unable to wean him. He is hypersensitive especially around his mouth and we struggle greatly to brush his teeth. He finds messy play difficult and is very anxious in new social situations. I would very much like to be in contact with a family in a similar position to us as it is very isolating and our situation is much misunderstood. If you feel able to email me at sarahwood60@hotmail.com I would be so pleased to hear from you. (We are in the UK). Very best wishes. Sarah.

Oct 28, 2010
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update
by: Amy

Thank you all for your responses! Ive just gotten my daughter (finally) off the sippy cup- she now takes her pediasure with a straw except for her nighttime one (she has a pediasure in middle of the night STILL and has never slept through the night)and it makes me feel better that there are others who go through this!
as far as meds- she actually takes some easily now and the ones she resists we put in her pediasure... the only thing we haven't found is a vitamin that can be easily mixed into her pediasure without making it taste gross... if her pediasure tastes weird, she will not touch it. Also, do any of you have a hard time getting your child to sleep in their own bed? She is the only child (we have 5 but 1 is a teenager)of ours that doesn't stay in her own bed....usually she falls asleep in it but always comes into ours... anyway- thanx again for the responses!

Oct 25, 2010
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3 year-old on Vanilla Pediasure
by: SC

You are not alone. My 3-year-old daughter is also on Vanilla pediasure. She has never eaten solid foods of any kind, including baby food, soup, etc. She has progressed to licking crackers and pretzels, but will not take a bite. She has been in therapy for a year and a half, with no improvement. She will only take the pediasure from a bottle, she is still unable to drink from a cup.

Any kind of sickness is very difficult for us too. We have to keep an extra close eye on her, she has been hospitalized twice with dehydration, since she refuses all water/juice.

Anyway, glad to know we are not the only ones dealing with this!

Oct 09, 2010
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nutrition problem
by: Anonymous

I live the same experience with my baby, she eats very little food "junk food. " I have not managed to improve his nutrition, when she is sick is a big problem because it does not take medicine and I send her mouth with a syringe without needle. she has PDD-NOS.

Oct 09, 2010
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I am in the same situation as you.
by: shahnaaz

Yes this is a very difficult situation. I have a really hard time when my son gets sick and does not take meds. He has his antibiotics intravenously. If any one knows how to get these kids into the habit of taking their meds pls let me know.

I have been told that new foods should be introduced small portions at at time in to the foods that your child already eats like in a spoonful of ice cream you could add a quarter or less of the new food at the back of the spoon and this way every week you should increase the amount very little at a time.

If any one knows how to get meds into a child like this please let me know.

And i would like to tell all the parents out there keep going and neer give up.

Oct 09, 2010
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thanks!
by: Amy

Thank you for your post! its good to know that im not alone in this... most people look at me so strangely when i tell them my daughter doesn't eat...
Does anyone know of any support groups for parents of kids with SPD's?

Oct 08, 2010
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non-eating child
by: Anonymous

My child was the same way. He wouldn't eat and we did all kinds of therapy also. After talking with the pediatrician I just decided to stop trying to get him to eat new food and to let him eat what he wanted and supplement his nutrition with the shakes. With the pressure gone he seems to be more willing to try things. He now asks to try different things. If he likes it great, if he doesn't no big deal. In the year that I have done this he has gone from 41 pounds to 50 pounds. I used to be happy if he at least stayed the same weight between doctor visits. This seems to work for him. No pressure, no arguments ect. He still really doesn't eat that much of a variety but is more willing to try.

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