Clothing issues

by Lisa
(Delaware)

My daughter is 9 years old and was diagnosed with SPD at 3. It began with her shoes and clothes. She would scream if certain outfits were put on her. She would say "it is too bud". I thought she was just being a "pain".


Most of her issues deal with clothing and shoes. She still doesn't wear underwear. We have never been able to find any to fit her just "right". Every morning is a challenge in getting something on her that she can handle.

She has been diagnosed with ADD and is taking Adderall to help with the attention problems. She excels at school.

I am beginning to really worry about her. She is beginning to say things like "I hate my skin". I don't know what to do to help her. We have tried some sensory diet activities. They help some but I feel like we should be doing more for her.

Any suggestions?

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Jul 10, 2016
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Issue with seams
by: Anonymous

I wear my undershirts backwards because of the inside Seam. It's poking out onto my skin and I despise it. Any help? I'm 14 btw. i need to find a nice undershirt with a flat felled inside seam, but I can't find it! It's not that I hate seams, but I hate those overlocked/coverlocked seams.

Dec 27, 2015
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Comment
by: Anonymous

It sounds like it to me.

Dec 26, 2015
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Concerned mom
by: Anonymous

My daughter is 5 and a half years old and has always had an issue with clothes. She always says she has a "wedgie" with her underwear and it's not possible to have a wedgie when her underwear covers her entire butt. She has to pull her pants all the way up as far as they will go and then pick her "wedgie" and she'll cry unTil it's fixed enough for her. She WILL NOT wear jeans. She cries as soon as she sees them. She has to pull her socks all the way until they're completely stretched. She has to pull down her sleeves completely on a long sleeved shirt because she can't stand them sliding up. And she has a hard time transitioning from summer to winter clothes because of the sleeve issue. She is just constantly complaining about her clothes. She's never been diagnosed with anything but does this sound like SPD?

Dec 04, 2015
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Option for Clothing Not Optional :p
by: Anonymous

I am ToTallY aware of how everyone on here is feeling. My parents just always told me I was onry and defiant bc I can't stand to wear clothes and never have. They make my skin crawl and clothes begin to feel like sand paper and I swear that I am scratched to pieces and bleeding but it is nothing.... I have taken MANY drugs in my years and they ONLY drug I have found that gives me any relief at all is Cymbalta. It has taken me 40 years to get a handle on this; I don't know if it is a drug that children can take but if it is and they are old enough I HIGHLY recommend giving it a try. I also only get clothing with rolled seams (I met a girl in middle school that actually would make my clothes for me) and the new light weight really fleecey fabric and then there is also is really silky strechy fabric that I can tolerate. I found early on since undergarmewnts bothered me so I would wear long flowing dresses so they has little touching to my skin and no one knew I didn't have panties on + if things got real bad there was enough fabric in the bottom of my dress to actually make myself a little tent where the clothing wasn't actually touching me (& I could feel pretty too cause it was like I was dressed up). Different weeks I can only wear a certain 1 and the other may bother me, but I switch to which one isn't hurting me and live another day. I hope this post may help someone as I really "feel" for us all.

Aug 04, 2015
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help is this spd
by: darnia

Hi, my daughter has just turned five and I am seriously worried about her. From she was a baby she had a temper and hated socks ago etc...i just put this down to a phase. Then she hit toddlerhoid and obsessed over the socks, the seams had to b just right etc.. Hated labels on clothes, would scratch her skin. Then preschool, well that was a whole new level, hated the feel of her underwear, always poking around her bumdye to this, constant hand washing also. So this settled after a while.but now we are back to the socks again. I need to add that each time these phases kick in so does her extremely violent behaviour. Help

Dec 26, 2014
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Little shopping ideas
by: Anonymous

My daughter is going on 12 ! I have listened to all your comments and feel your pain as a mom and as the one with SPF As I have been there as well and am going tomorrow shopping !! But just a few little tricks my daughter has taught me to help her :) don't dry her clothes hang to dry! She wears t shirts to bed! The socks we found the best right now are at walmart cheapest kind ( yeahh) thin thin thin the store we are finding most of her clothes justice! I know the only way my child has got through school is by finding someone in her school that has allowed her to hug them hard! When she was young I would ask the teacher if she would hug her whenever she saw her fidget ! She has been on several medications for 3 years but due to side effects we have had to stop them but it did help only because it gave her a sence of accomplishment! She can manage!! She still only wears two sets of clothes ! And it's a fight to get new underwear on! Oh underwear we have found ladies underwear better they are made with nicer material ( arie) hope this helps a little!!

Jun 20, 2014
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This is a real thing!?!?!?!?!
by: Amanda

Just found this website today because I had to buy a new bra and I am ready to knock someone's teeth out!!! I am considering leaving work for the day because it is that bad. Ugh, the feeling makes me frustrated and aggressive so I decided it was time to finally do some research... I'm about to turn 37 and I have been dealing with this since I was a kid. I hate clothes that "touch" me...always have. Seams have to fall just right or I refuse to wear it. I can try things on and be OK but trying them on a 2nd time is usually a failure that ends up with items being returned to stores, and me having a meltdown like I was a 3 year old. Nobody ever believed that I had an actual issue (even though I have been saying "I think I have some kind of sensory issue" for YEARS), I was just a "difficult kid". When I find something I can wear, I wear it until there are holes in it because I know its going to take FOREVER to find something to replace it with. I wear only 1 brand of sneakers, I refuse to purchase clothing until my clothes are thread bare and falling apart. I have taken Zoloft (for an unrelated bout of "depression") when I was younger but nothing has ever worked for this issue for me. I've been told so many times that I made it up in my head that I believed it and thought I was just crazy. I am glad I found this page and have a base to start my research in earnest. Good luck to everyone dealing with this - it sucks! I commend the parents on here that are aware of their child's discomfort - my mom has always loved me but never believed me.

Jun 03, 2014
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Sydney's mom
by: Sydney's mom

Thank you for your story Ariann!!!!! my 11yr old sounds exactly like you in everyway!!!!! we have her on Zoloft now and it helps a little, thank you again

Jun 02, 2014
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Dealing With SPD for 20 years
by: Ariann

Hi Guys , So i read a lot of youre comments and as i can see , there is a lot of mothers that are concerned. Wwell maybe i can tell you what its like to live with SPD , for ,well , 20 years now. First of al Im a 22 years old women and i started having issues with clothing at the age of 2 , couldnt get dressed cryinf for hours , it started i thing with underwear and socks but it slowly escalated to wverything elese , so much that sometimes i would be in my basement crying not to get dressed. had like 1 or maybe 2 outfit that i was able to wear and that was , without washing them cause i did not like the feal of the clean clothes. It was hell , I was diagnost at 5 with OCD and they told me thats what i had , but i never really seamed to conect with the OCD stories it was not like that , but anyway i was taking Zoloft and it helped a lot with the anxiety for like 10 years , after that , the zoloft just did not work anymore ,it was back to the hell of wetting my clothes to make them feal better , stretching them , not wearing any underwears and i could go on and on. The doctor gave me a new med called Pristiq and that Helped again a lot it worked fast and my anxiety is now well managed wich hels me deal with everything. Anyway what i want to tell you moms is , its not gonna be a eveeryday easy road and there is not really a miracle cure, its just going to be about learning to live a bit differently from the other ,just like a blind man would. It will become more and more managable but the dark toughts are always kind of there , but as you get older , you learn how to deal with thoses. Im now happy and i take it day by day , some days are better than others but its like that for everyone. If i can give you a tip , dont pressure your chuld into wearing the clothes or anything it makes it so much worst , try to understand , tell them its ok and you will find a way to get trough this , thats the thing that helped me the mist i think , my parents. It can make a huge difference =) Dont give up and good luck guys !

Nov 24, 2012
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reply
by: Anonymous

My daughter is now 13. She started with sensory issues with clothing about age 3. We struggled for years. OT helped but the medication risperdal helped the most. I remember after taking it for a week she said, "finally, my skin is calming down.". I think getting thru puberty has helped too. She doesnt have to take the riperdal as much anymore and just recently commented that she doesnt think she needs it anymore.

Nov 24, 2012
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battle
by: jlp

My son is 9 now. His started around 3, sox didnt feel right by the toes,then it was shoe laces, then pant legs couldnt touch is ankles,then the waist line. then shirts no tags, collars. texture. Then i found pants and shirts to his liking this year. Everything was going great has the clothes part. And all the sudden the clothes he liked , are his worst enenmy. Scratching all over and shredding his clothes.He has been dignosed with spd,odd,add,adhd. We are going to be starting OT on our own, not thru the school, They only could do little to help. So my Question is OT really work, and residerall.

Jul 10, 2012
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Looking for advice
by: Mommy Looking for relief

I have a 4 year old daughter who is beginning to extreme sensory issues with clothing. It started with underwear. Then it moved to pants, and now its literally everything! In her words, "it hurts". Her underwear is two sizes too big and "it hurts". When I attempt a shirt she will scratch and claw at her neck screaming that she is choking, something making herself physically sick. It takes me 2 hours everyday to try and get her to put clothes on. School will be starting in a few weeks and she is making comments like, "I wish I could cut my feet off" and "I don't want to go to school anymore." Reading other posts, I have gathered that I definitely need to place a call to her doctor and maybe a therapist. Any other suggestions?

Jun 19, 2012
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LITTLE GIRL STRUGGLES WITH CLOTHES/SHOES
by: Anonymous

My little girl has had sensory issues with clothes/shoes/socks/buttoned pants/bathingsuits/underwear, well everything!!!!! since she was a toddler and she is now 9 and it has not gotten any better :( we have been thru OT brushing and psychiatry(anxiety meds/add meds)nothing has helped :( it's a struggle every single day :( any suggestions?????

Jul 19, 2010
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medication
by: Anonymous

My daughter takes Risperdal 1.25 mg per day. I was leary about medication, but I really felt like I had exhausted all other possibilities. Let me say that it was the best thing that we did for her. She still has issues with clothing, but it is so much more manageable now. Before the medication, she was very down on herself and she would say things like "I wish God hadnt made me this way." "I just want to be normal." She was beginning to have lots of self esteem issues and was becoming reclusive. I am not hearing things like that anymore. When there are clothing issues, we are able to work through them in a calm manner. Good luck to you and I hope this helps. Post again if I can help you more.

Jul 18, 2010
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more info please
by: Anonymous

would love more insight on the medication for anxiety. my son has SPD and has had a few years of OT. we've really outgrown or learned to overcome/deal with most of his weaknesses but clothing remains the biggest problem. he is bothered by pants around his waist no matter size/type we buy and now even shirts. his self esteem is getting worse and worse & he so wants to be normal. i hate to think of medicating him but if it will help, i'm all for it. please let me know more! thank you for sharing.

Jul 06, 2010
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Fashion News
by: luciyahelan

My daughter would also rather be naked and sometimes she would come home from preschool and take her clothes off and just hang out. We accessed an Occupational Therapist and that helped. It didn't make the sensory issue go away, but OT made it manageable. I learned to accommodate her clothing needs. If I find pants that work, then I buy 5 pairs and 5 shirts, etc. She is now 10. I wish I could say the sensory issues were gone but they are not and last year was an extremely difficult year for her. I believe it was the onset of puberty. She could barely get dressed in the morning and was having frequent melt downs over her sensory issue. Finally, I got in touch with a child psychiatrist who prescribed a anti anxiety medication and it has helped tremendously. The medication has not taken away the sensory issue, but it has made it manageable once again. We also continue with OT. If I can be of more help, please post again.


Jan 27, 2010
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SENSORY ISSUES
by: Anonymous

I feel your pain. My daughter was 3 when all this started for her. Have you talked with your pediatrician. My daughter would also rather be naked and sometimes she would come home from preschool and take her clothes off and just hang out. We accessed an Occupational Therapist and that helped. It didn't make the sensory issue go away, but OT made it manageable. I learned to accommodate her clothing needs. If I find pants that work, then I buy 5 pairs and 5 shirts, etc. She is now 10. I wish I could say the sensory issues were gone but they are not and last year was an extremely difficult year for her. I believe it was the onset of puberty. She could barely get dressed in the morning and was having frequent melt downs over her sensory issue. Finally, I got in touch with a child psychiatrist who prescribed a anti anxiety medication and it has helped tremendously. The medication has not taken away the sensory issue, but it has made it manageable once again. We also continue with OT. If I can be of more help, please post again.

Jan 26, 2010
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sensory issues
by: Anonymous

HI.I HAVE A 3 YEAR OLD DAUGHTER,WHO HATES WEARING PANTS,LONG SLEEVE SHIRTS,ANYTHING WITH TAGS,SOCKS,ANY SHOE THATS NOT A SANDAL.SHE ONLY WEARS THE COTTON TRAINING UNDERWEAR.EVERY OTHER UNDERWEAR BOTHERS HER.SHE HONESTLY WOULD RATHER BE NAKED ALL DAY LONG.IM SO LOST OF WHERE TO GET HELP FOR HER.ITS A NIGHTMARE TRYING TO DRESS HER.PLEASE IF ANYONE COULD OFFER ADVISE.THANK YOU FOR YOUR TIME.

Feb 01, 2009
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There is help
by: Lynn Rickert

I have 2 children with clothing issues because of SPD. Check into the Wilbarger brushing protocol. Find a speech therapist or occupational therapist that knows about it - the therapists at your daughter's school will either know about it be able to find out about it. They can do it at school.

It involves using a particular kind of soft bristled brush on the skin in a very specific way, followed by other movements called joint compressions. It is done at home every day. It begins at frequent intervals, spreading out as time goes on.

This therapy was a HUGE turning point in my kids' lives, making them more at ease in their skin. It is definitely worth the time and effort!

Lynn Rickert
Owner of Pedaling Backwards a wordpress.com blog


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