SPD and Restroom Issues
by Shannon K
PLEASE HELP ME! My daughter just turned 4 and is still having toilet issues. She has bowel held since she was 18 months old. She has really good days and then we will go days with accidents all day long. I am at my wits end and dont know what else to do or who else to turn to. She was diagnosed with SPD and now her therapist is telling me that she does not think she has SPD (because she cant replicate the "behaviors" we are reporting). Just a little background on my daughter...
She has bowel held since she was 18 months old
She is TERRIFIED of water in her face and eyes. This makes bath time VERY difficult.
She has tantrums seemingly out of NO WHERE.
She moves NON STOP
She will cover her ears at loud sounds and tells me to make it stop or will have a melt down.
She prefers to play alone or side by side play. She has few friends and always seems to gravitate toward a younger quiet child than the girls her age.
Always wants hugs or "Squeezes" as she calls them.
Her therapy is for 45 minutes once a week. They have done shaving cream on the face (and then wiped it off) which does not show her reaction to water. They do the ball pit play. Which she tolerates very well. They have done the swinging and the zipline. All things she loves (really anything that has her moving she would do ALL DAY LONG). Finger painting they did last week and she touched it twice and said "OK I am done". The therapist said this was normal (which I am questioning because I was a daycare teacher for 5 years and NEVER meet a kid who didnt get covered in head to toe when we would finger paint).
I have asked her OT what we can do about the bowel holding or to improve the bowel function. And the response I keep getting is "I just dont know. I think she may be manipulating you". I am NOT in denial that my kid can work me. I know she can. It is something I am working on as a parent but to say she is manipulating me with her bowel movements seems absurd to me (plus she started the holding at 18 months old and that is just not old enough to realize "Hey I can get a reaction out of momma if I dont poop."
PLEASE help me. I dont know what to do at this point. I was so excited when I thought we had answers and we were going to get help. Now it seems like the OT is ripping the rug right out from under my feet again.