Tic's, Fits and sleepless nights

My three year old son has never once slept through the night and suffers night terrors. He has quite a severe facial grimace and tic when he becomes excited with arm flapping and his speech will become repetitive. From a tiny baby he has suffered from episodes of screaming fits where his body will arch severely and go rigid- these can last in excess of 20 mins and he appears to have no control of this. He craves constant attention from me but will panic if approached by another child and suffers from extreme anxiety about so many things.


He is incredibly bright and has the vocabulary of a much older child. He has seen a pediatrician who has said he is developmentally forward but has offered no further help. My older son and ex husband have Aspergers but for some reason the Dr doesn't feel this is relevant. I worry for him when he starts school next year as his behavior is so challenging and without a diagnosis I feel he will be labelled as the naughty kid.

I would be really interested to hear of anyone elses experiences particularly the screaming fits - bizarrely enough although these used to happen several times a day they now occur in blocks where he can go several weeks with none and then it will happen daily for several weeks. Thanks

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Feb 13, 2012
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night terrors and sleep
by: Anonymous

That sounds like my now nine year old son. He had such sleep challenges that we were going to medicate with prescription meds. We didn't because of the side effects. We ended up using children's benadryl under doctor's care. The change for the better was amazing. Sleep is critical for anyone to function, especially a developing child. He took the benadryl for a year or so (4-5 years old) at bedtime. Now, his sleep is typical.

Jan 18, 2012
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Thanks for your comments
by: Lisa

Thanks for your comments they are very much appreciated. We have just had yet another appointment with the pediatrition who has once again been very dismissive and blamed my parenting. My only comfort is that this was the pediatrition that told me my other son had no problems only to be diagnosed with autism a few months later.Its so frustrating I feel like I'm going round in circles.
I have asked to be referred for a second opinion so hopefully maybe we'll get some help there.
Thanks Lisa

Jan 06, 2012
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Persist to get the help, dont doubt yourself
by: Rosemary

Sounds similar to my four year old too. And the paediatrician was very dismissive of anything wrong as he is so ahead with his communication skills he charmed her. She suggested we read a parenting book to deal with the behaviors, even though I told her he will cry for no reason - hes not demanding anything, just upset! He has always been a terrible sleeper, night terrors and flails around in bed.I told her I was thinking of taking him to the OT for an assessment and she told me it was a waste of money!! Luckily I went with my instincts and took him to an OT and he is getting treatment for SPD. Make sure your child gets a thorough assessment with an OT. A mum knows when somethings not right.

Oct 14, 2011
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Tics, Fits Sleepless Nights
by: Jill

Lisa,
Our old pediatrician felt everything was normal with our son too. It was the school OT that suggested we have him tested for SID (SPD). It all started to make sense once we had him diagnosed: screaming when his hair was cut, not letting the doctors do anything too invasive, screaming and crying uncontrollably when he got a shot or had drops put in his eyes or got hurt. Not being able to calm himself once he got upset and screaming and crying and rolling his eyes to the back of his head. He also flaps his hands.

Before he was diagnosed some relatives felt we had a spoiled child or that he was just not "normal". But I had a gut feeling there was more to it. He is now 10yrs old and doing so much better. He continues to receive OT and has learned how to manage his meltdowns. He even played flag football this year!He still flaps his hands but is learning to control that too. Follow your gut, have your child evaluated by a psychologist. You may have to pay for it out of pocket, but it will be well worth it. Once you have an accurate diagnosis you'll be able to have a plan in place to help your child. Hope this helps.

Oct 14, 2011
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fits
by: Lisa

Teresa
Many thanks for your comments, I was beginning to think my son was the only one having these fits, its reassuring to know that someone else knows what its like. The amount of times I've had parents of neurotypical children say 'its his age, my son has temper tantrums too' it drives me crazy because as you will know, these are nothing like an average temper tantrum - these became so bad when we were on holiday this year that we had to come home after 3 days.
I am in the Uk and it can be so difficult to get a diagnosis or any help over here. We have been to the Drs countless times for the fits and sensory issues and they just aren't interested. The only reason I managed to get my other son a diagnosis was because he also had some quite severe developmental delays.
Thanks again for your interest,
Lisa

Oct 12, 2011
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fits
by: Teresa

It sounds a lot like my 6 year old and my 10 year old. They both have Aspergers. One also has SPD/SID. I have a blog on here about weighted blankets and vests-they work wonders!!!!

The fits in my 6 year old started at about 6 weeks. He can't tolerate being around people too well. He is the one with MAJOR Sensory issues.

My ten year old son, on the other hand-is very intelligent. (Asperger's and all)

My 4 year old sounds like a tiny professor. They think that he has HFA/Aspergers as well.

All of that said-the fits have tapered off some. Thank God!

If you think your son has any type of autism or sensory issues-don't wait!! Get him tested one way or another!!! Mom usually knows when something aint right!

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