Uk help for kids with SPD

by Vicky
(UK)

I found this site by chance last year and it has been so reasuring to know that this condition is real ! From going through the check list I believe my eldest daughter (8yrs ) has tactile defensiveness but I am at a loss to find help from my local GP in England. My doctor had never heard of the condition and so I'm just wondering if anyone has any Uk contacts/ help /advice they can let me know about ? (we live in Hampshire , England).

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Aug 01, 2015
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SPD
by: Sarah

I have just got my 10y old son diagnosed with spd, through private ot, diagnosis confirmed by local nhs ot and paediatrician but no support available in CWAC unless private. Struggling to get support in school as he's behaviour is 'perfect' there and they know nothing of spd. He also has growth hormone deficiency (SOD). Anyone else had similar issues?

Jul 07, 2015
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uk help
by: Anonymous

i think my child has spd hes getting intervention at school for school work but not any of the otrher behaviours even so the dr refused to refer him until the school has finished their findings is there anywhere in east anglia where we could get help

Mar 31, 2015
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OT in Liverpool
by: Anonymous

Yes, OT for Kids, Rodney street, Liverpool.

Feb 18, 2014
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OT in Liverpool
by: Anonymou

hi does anyone know any OTs specialising in sensory issues for children in or near Liverpool

Jan 02, 2014
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uk diagnosis spd
by: Anonymous

Hi Vicky, I am in the UK, and the occupational therapists in my area had no traing in sensory issues, so I paid for a private sensory assessment for my son. He was diagnosed with SPD last year (he already had a diagnosis of Asperger Syndrome from age 10) . I am in the North West, I can give you the details of the private OT that I used if that is any help.

Feb 05, 2013
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I'm with you
by: Marie

Hi Vicky
I started the journed like you of trting to get my 5 year old daughter diagnised, eventually we got there as she does have SPD. However it took a lot of persistence with her Community paedatrician to contact a place in wolverhampton (GEM CENTRE) that specialises in children with SPD like ours. I too had the battle with the local GP's and Primary Care trusts who refused funding for her treatment as they did not recognise SPD as a condition and they required lots of data to support the fantastic work the GEM centre do. I would advise to keep pushing and pushing. There are lots of us around for support. Good Luck......

Sep 29, 2012
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UK?
by: Marissa

hi

How can we contact people from the UK, I woulds like support please

Mar 02, 2012
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Uk Help!
by: The Sensory Smart Child Ltd

I run an Occupational Therapy practice that specialises in Sensory Integration therapy for the treatment of SPD in Surrey, UK.

Please take a look at our website and give us a call if there is anything we can do to help!
www.thesensorysmartchild.com

Feb 12, 2012
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SPD
by: KelsiBlu

Hi Vicky, I can completely understand your frustration. I have a 6 year old girl who among other things(possibly) I think suffers from SPD.
I went to the doctor who referred me to a Child Paediartrician, Occupational Therapist, Child Psycologist and Speech and Language Therapist. I have been to see all but the Child Psycologist, who I am still awaiting an appointment 9 months later. Until I have seen her, the Paediatrician cannot make a diagnosis.... Catch 22. The school have approached the LEA to ask for support, but nearly a year down the line it really is not good enough. I live in Kent.

Feb 08, 2012
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investigate
by: Anonymous

Hello Wiki, we live in Italy and here too
the pediatrician is not informed of SPD symptoms, but child psychiatrist understands the disorder. In my case SPD family, is a consequence of PDD-nos. greetings.

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