Urinary symptoms possible complication of SPD?

by Julie Woodson
(Offutt AFB, NE)

My son is five years old. He was diagnosed, if you can say that, at the age of 18 months with SPD. We did Occupational Therapy for years and he seemed to be doing better; no more crying when eating applesauce or yogurt or when his hands and face are messy. He even plays with playdough and sand and MUD! There was a lot more to it then but too much to go into detail.


Now two years later he seems to be having issues with urination. He says that he has to go but nothing will come out and he only seems to do this when it is time to get dressed, or when there is too much activity going on. He has had some urine cultures and tests done and there was blood in one but none since the first, the rest are clear. I have noticed the pattern and it seems to relate to his pants and the tags in his clothes.

Could this be all sensory related, can it come back again after it has been out of the picture for a long time? This has happened over the last month since he had an ear infection and took antibiotics? I will make sure that there is no physical cause, but I truly believe that he is regressing if you will back to having the same sensory issues as he did when he was younger.

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Apr 15, 2009
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We need help!
by: Phyllis

My 8 year old daughter is going through the same type of thing! She has all the symptoms of a UTI but has been repeatedly tested and it came back negative every time! We've been to the specialists too and they've done ultrasounds, tested for relux, checked her kidneys, sent her to physical therapy, upped her fiber intake... the list of things we've tried goes on and on.

They finally put her on 5 mg. of Ditropan once nightly and it's stopped her from crying every time she urinates and seems to stop the need for repeated going, but she can wear less and less of her clothing and is miserable in most underwear, tights, pants and shorts! She has practically nothing to wear now that doesn't send her into fits and we live in Michigan so skirts are not always an option!

It's been a year and a half of her suffering with this and it seems to be getting worse and is really affecting her emotionally now. We really need help badly. I do believe she has SI symptoms. Any comments PLEASE send them to me at SPDV@aol.com as I don't know if I'll find this site back again. I'm not on my computer. THANKS!

Apr 07, 2009
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UTI?
by: JOANNA

HI, NOT SURE IF I CAN OFFER ANY ADVICE THAT MIGHT HELP BUT THOUGHT I WOULD MENTION MY 4 YEAR OLD HAS SPD AND ALSO COMPLAINS OF THE SAME SYMPTOMS. BEFORE WE REALIZED SHE SUFFERED FROM SPD WE EVEN HAD HER REFERRED TO A SPECIALIST WHO FOUND KIDNEYS AND BLADDER ALL TO BE NORMAL DESPITE HER CONSTANT PROTEST-ANXIETY- AND DISTRESS! THERE IS LITERALLY NOTHING WE CAN DO FOR HER!

ALTHOUGH EVERY TIME SHE RE COMPLAINS, I SEND HER URINE FOR SENSITIVITY AND CULTURES TESTS JUST TO ALWAYS BE SURE THAT IM NOT PRESUMING SPD IS THE CASE.

Dec 03, 2008
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Regressing
by: Jessi

I have read, in my research into SPD, that children who have had success with therapy may sometimes need to go back for a time for 'tuneups'. My son has been in therapy for over a year and we are not ready to stop, but his therapist and I have noticed that when he goes through growth spurts, his SPD tends to kick in full gear again. I have a feeling that even when he no longer needs weekly therapy, we may need to go back during those times.

Another thought I had while reading your post is that if he did have a UTI (I'm assuming since there was blood in the urine) that the memory of how that felt may be affecting him still. For an SPD kid, it may have been unbearable, and may be having some type of PTSD-like effect on him. In that case, some type of emotional therapy may help also.

Good luck and let us know what you find out.

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